468 Comments

Colostomy Reversal Surgery

Written by:  • Edited by: Leigh A. Zaykoski
Published Aug 29, 2009

This article will focus on colostomy reversal surgery and its elements.

A colostomy reversal, also referred to as a laparoscopic colostomy reversal, is a surgical procedure in which the large intestine (colon) and rectum are reconnected after a prior colostomy. A colostomy is defined as an opening in the stomach in which a bag is placed to drain bowel movements. This procedure is fairly common and most patients experience an improved quality of life after having it performed.

Purpose of This Procedure

The purpose of this surgical procedure is to restore the function and appearance of the patient's intestine, abdomen and rectum. This surgery allows the patient to live without having the colostomy bag attached to the stomach. Many patients who have this surgery are able to have normal bowel movements again that pass through the anus.

Procedure Description

To prepare for the procedure patient's will consume a medicine that helps to flush out bowels because they must be empty for the procedure. The patient will then need to change into a hospital gown and will have an IV placed into a vein in their arm. Then the anesthesiologist will administer general anesthesia so that the patient is asleep. The surgeon will make two to five small incisions. These incisions are made so that any necessary surgical instruments and the laparoscope can be passed through. The patient's abdominal wall will then be lifted from the internal organs by being filled with carbon dioxide. The rectum and colon will then be reconnected with a stapling device that is inserted into the anus and colostomy opening. Once the surgery is complete the incisions will be stitched closed and wrapped with bandages.

Possible Complications

A colostomy reversal can present certain complications. Typical surgical complications may occur such as adverse or allergic reactions to the anesthesia or other medications used or infection. Other complications that may occur include inability to drink or eat, blood during bowel movements, less frequent urination or absence of urination, having bowel movements more frequently than before surgery, hard or tender abdomen and absence of bowel movements for more than two days.

Outcome

Patients who have this surgery often find that it greatly improves their quality of life. Though complications can occur they tend not to occur often and most patients recover well. The majority of patients can go on living without needing a bag and after they recover they find that they are easily able to eat, drink and pass regular bowel movements.

Resources

Drugs/WebMD. (2009). Laparoscopic Colostomy Reversal. Retrieved on August 27, 2009 from Website: http://www.drugs.com/cg/laparoscopic-colostomy-reversal-precare.html

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Comments

Showing all 468 comments
 
jodee Feb 5, 2012 2:35 AM
RE: Colostomy Reversal Surgery
This response is to Joe53.  I seriously don't understand what is going on with your situation.  If you can't take the prep stuff they are telling you to take there are alot of other options out there.  And, since you are wearing a bag there shouldn't be that much stuff to get out of your body.  I drank a small bottle of liquid, I don't remember the name of it, I'm sorry.  But, it was clear and they had a citrus flavor.  I drank that without much problem and had to take 2 laxative tablets.  That was it.  Not to sound like I know alot but I'd consider finding another surgeon.  If this one isn't helping you after 3 attempts, something is wrong.  Keep us posted and maybe you can fill me in on a few more details to help me understand why you're having to go thru so much trauma.    JoDee
shell Feb 4, 2012 9:39 PM
RE: Colostomy Reversal Surgery
Hello<br>please know that your young friend is not limited to the illesotomy after the j-pouch<br>I had both<br><br>she can have the Koch pouch...been around since the 70's<br>its fantastic<br>internal pouch<br><br>and more and more folks with the j-poch are going back to the koch pouch<br><br>Dr Beart@ Glendale Memorial hosp in california is the best...(mayo clinic, whitehouse doc)<br>please  tekll her..help her...the illeosptomy isnt fun<br>
Darnatall Jan 27, 2012 3:04 AM
RE: Colostomy Reversal Surgery
You have such a great attitude!  It sounds like you have truly been thru the wringer.  It is never easy to have surgery.  The initial surgery seems to really kick you hard, but it does keep you alive.  I hated waking up with the bag, but (as you have said) I was alive because of it.  I did have the reversal almost 10 months after the colostomy.  My colostomy was in Sept 2010.  The reversal in June 2011.  I couldn't be happier.  I don't care much for the scar, but I love being without the hassle of the bag.  (My scar didn't leave me with much of a belly button at all.  :)  ) <br><br>It is wonderful that your family is so supportive!  It makes a big difference.  I am a single mother of a teenager who was more concerned with how inconvenient things were for him than he seemed to be concerned with my health.  It wasn't easy, but I did have friends to help me thru it.  You are truly blessed to have the support you have.   <br><br>If you are comfortable with the bag and don't want to risk another surgery, it is your option.  I will tell you that having the reversal was easier than going thru the initial surgery for me, and I was told that's common.  I was back to work in just under 7 weeks.  It was so much easier to heal than the 1st one.  It really is amazing.  I was not happy that I had to wait so long for mine.  I had hoped to get it several months earlier, but I think the extra wait time was better for me.  It gave me time to prepare mentally &amp; physically for it.  I'm glad I did.  I can finally wear jeans again.  I couldn't wear them due to the location of the ostomy.  It has been great taking regular showers again, too.  It is wonderful that you are pampering yourself.  Such a great way to help you get thru this.  Keep your spirits up!!  And best wishes on whatever you decide!!  -  Darlene
Denise49 Jan 26, 2012 5:29 AM
RE: Colostomy Reversal Surgery
<br>Hi, I have read everyones comments with interest and admiration for their courage in dealing with what is a very traumatic situation. I had my colostomy surgery in October 2011. It was emergency surgery for a perforated bowel, they also removed my ovary which threw me into the menopause exactly one week after the surgery, I am "hot flushing" as I type. The perforation was caused by diverticular disease which I didn,t know I had. For years I have suffered chronic back pain through prolapsed discs and stenosis. When I developed severe pain in my groin and bowel problems it was put down to defferred pain from my back and <br> side effects of pain killers. After months of feeling really ill things came to a head and I ended up in hospital<br>having emergency surgery. My inital reactions at being told I had to have a colostomy was to cry and say I'm not having it. I knew I had to, but felt angry after the being told in what I thought was a very dismissive way by the doctor. Thankfully my family have a rather twisted sense of humour and telephone calls with my daughters where they basically made" poo bag", jokes, turned my tears to laughter within 15 minutes.  Within an hour I was in surgery. Recovery was painful and slower than I had hoped. Whilst I was told that it may be possible to have a reversal I am reluctant to have one as I don't want to go through surgery again, unless it is more detrimental to my health not to do so. I feel so much healthier now that I don't have to deal with the pain in my groin , dreading going to the toilet, and obviouslybeing free from infection.  My family have been wonderfully supportive. My husband just wants me to do what I feel is best for me, I just feel that I am alive and as well as I can be, the bag doesn't matter. I've had leaks and bursts which myself and my family have dealt with with laughter. I have also noticed that despite an awful scar which has left me looking like I have 3 belly buttons,( this was due to the wound bur
Marina Jan 16, 2012 1:48 PM
RE: Colostomy Reversal Surgery
Hi there<br><br>I started with abdominal pain after a FANTASTIC holiday in Kenya, Africa and thought it was due to water/food that did not agree with me.<br><br>After 10 days off work, hardly anything to eat and LOTS of blood in the toilet bowl, I went to the trauma unit of our local hospital to be checked out and was hospitalised immediately.  Went in for a colonoscopy the the following day and was told that they(the doctors) advise strongly that my ENTIRE colon be removed-I WAS DEVESTATED to say the least!!!!!<br><br>The necessary was done on 31 August 2011 (I could not have aked for a better surgeon to look after me-he was absolutely FANTASTIC-bedside manners as well as surgery - 3 and a half hour operation). Upon awakening it was asif somebody had rubbed a kg of salt into my raw abdomen or maybe more like a vulcanic mountain had errupted!!!!  I have NEVER experienced pain like that-I had to get "rescue meds" and it took me two full days to actually lift the blankets to look at the colostomy bag-mentally this affected me BADLY.  The surgeon said that "my colon looked like an old rusted train"<br><br>After ten days post surgery, I was discharged and now the stoma sister was not nearby to help fitting the bag every 3 days and after 5 attempts to fit it myself and it coming loose and stool running down my legs onto my carpets and myself in histerics, I decided that I will pay for peace of mind and for the entire 3 months until the reversal, I visited the stoma sister and pay for her to fit it-a new bag(with a belt around my waist to keep the bag sturdy) was suggested and on 23 November the reversa took place-the horisontal short cut to me took longer to heal than the first, long vertical cut of the operation.<br><br>I was off work for 3 and a half months and today(one and a half months after the reversal) I have learned to stay away from fruit, unless it is peeled, not to have corn or popcorn or nuts,to be careful of tomatoes, but I am well and I am so grateful to G
Joebono2115 Jan 11, 2012 3:33 PM
RE: Colostomy Reversal Surgery
Hi, I have tried for the third time having my colostomy reversal, with no luck. every time I take the pre surgery antibioadics, I get really bad stomack pain and head achs. I also have a hard time drinking the golightly prep. Not only for the discusting taste but the meds make it worse. I throw-up and have a hard time even putting it to my mouth.<br>this third time they tried putting a tube threw my nose down my throat, it was to big and I gagged to much.<br>I feel there is no hope for me having the reversal and I stuck living with this bag.<br>Please if anybody have any ideas, I would love to hear them. Thank you, Joe 53
Shelby Dec 30, 2011 4:10 PM
RE: Colostomy Reversal Surgery
Tania... very well said and very informative. I had many of the same thoughts and experiences. Leaving the incision open to prevent infection, missing the squeezing of the butt cheeks (when needed), not wishing it on any enemy, walking Walmart just to regain my strength and so on. Your story was pleasant to read. Keep moving forward and tackling life. Congrats on your weight loss. <br><br>Shelby..
jodee Dec 29, 2011 8:38 PM
RE: Colostomy Reversal Surgery
Great story and words of advice, Tania.  I couldn't have said it any better.  None of us will ever look at life the same nor will we ever take pooping for granted.  My Hubby calls me the "Poop Queen" cuz I am constantly aware of my daily BM's.  That is just crazy, isn't it?  Good luck to you Tania it sounds like you are doing great!
Ecuaprnena Dec 29, 2011 6:51 PM
RE: Colostomy Reversal Surgery
Hello everyone, my name is Tania, 35 yr old Latina from NYC.  On Jan 27th it will be 1yr since my colon perforated and also had to have emergency surgery and deal with a colostomy bag for 3months.  On April 25th I had the reversal and I am happy and blessed for being given another chance in life.  I also would have died if I wasn't at the hospital when it perforated the way it did.  My insides were infected, I was on strong antibiotics and in the hospital for 12days, and had to come home with an IV in my arm to continue the antibiotics since my WBC wouldnt go down.  This was a life changing experience, at the age of 35, just beginning to date again, not having kids, and losing weight, this happens to me.  As greatful as I am for the outlook it has given me in my life and being able to be alive, it is something I dont wish on my worst enemy.  Not only do you go through a physical challenge but also mental.  I was depressed, I cried, and having to change that damn bag was horrific for me.  I was scared to go out in the beginning afraid of people noticing or worse having an accident.  I would say after the 3rd-4th week of surgery, I was out and about again, I would go for walks to the stores, malls, anywhere just to get my strength back and my life back.  I had to learn how to eat better and avoid certain foods that would mess with my stomach.  When you dont have a bag, you can control your urges to go to the bathroom and even "squeeze" your butt cheaks together till you get to the nearest bathroom (lol) but with a bag you cant control the urge.  It has a mind of its own, and as you avoid certain foods and keep yourself on a schedule you will learn how your colostomy works.  DEAR AMY, just look up certain foods your mom should avoid, gassy and high fiber meals.  The bag does "fart" and a high fiber diet will make her go to the bathroom more often and you want to avoid that happening on a regular basis or when your out in public.  After 2months, I went back to work for
julianna Dec 29, 2011 6:00 AM
RE: Colostomy Reversal Surgery
Very positive story of your epsiode you wrote. This happened to my husband and he wants his bag off sooo bad!! . We are hoping less than 3 months.  It's so sad to see him so down in the dumps! I try and encourage him, butI know in the end he is the one to deal with it.  God Bless all of you that have to go thru this!!I I hope you continue to grow stronger and look back at that small minute in your life as "lifechanging" and embrace your loved ones around you!!!
Thomsonadae Dec 28, 2011 2:13 AM
RE: Colostomy Reversal Surgery
My name is Amy. My mom just had surgery yesterday for diverticulitis that had ruptured. They removed an ovary and Fallopian tube that were infected and she also now has a colostomy. This was a total surprise to us as she has never had any symptoms before. She is in her 60's and is very overweight but has never had any health problems. She went to her doctor last week for some mild stomach pain and they told her she was constipated. One week later my mom was having emergency surgery and could have died. I am the only person to care for her after the surgery so I am trying to learn everything I can but I am so overwhelmed. I would appreciate any information on diet and what to eat and do once we get her home. Se is still in the hospital and will probably stay another week. I am exhausted and very worried. I just want to help my mom. She also has poor vision so I worry about her changing the bag,etc. I would appreciate anything. You can email me at thomsonadae@aol.com
Darnatall Dec 12, 2011 4:23 AM
RE: Colostomy Reversal Surgery
Thanks for the information. I certainly will forward the doctors name on to her. I don't understand all that is involved with the j-pouch and have never heard of a k-pouch, but it may mean a lot to her!<br><br>Sorry to hear you had to deal with such things at such a young age, but I'm glad your alive. I presume you're doing well, too. Thanks, again, for the info. - Darlene
Devorah Dec 12, 2011 1:58 AM
RE: Colostomy Reversal Surgery
Darlene<br>Hi<br>just reading about your young friend in your ostomy group<br>jpouch is very tough<br>I'd like to let you know about Dr Beart in Glendale california<br>where he has his own clinic and hospital floor...folks come from all over the world to see him<br><br>he specializes in "ostomy avoidance"<br>and is quite experienced in the  jpouch and either how to save it<br>or turn it into a  k-pouche ( which is what I have now)<br>BTW<br>I had a total colectomy at age 7 and many many surguries since<br><br>I hope you will tell her about Dr Beart<br>he is a master revisionist...doing this since the 70's<br>he and his team are amazing<br><br>he gave me my life back after a General surgoen almost killed me<br><br>blessings<br>K
43bagged Dec 2, 2011 3:26 AM
RE: Colostomy Reversal Surgery
thanks for your reply Shelby, All did not go as I had planned at Dr. today but I kind of expected it not to . As I am sure I am the same as most on here and cannot wait to get rid of this damn bag. Unfortunatley my surgeon is almost ass stead fast to wait for 4-6 months as I am to having it reversed at 12 weeks which does not seem to be that unusual. At this point the only thing we were able to agree on was setting up my next appointment for the first week of January. We also both agreed on me having a colonoscopy either the day before or day of my surgery. I believe this is being done to avoid any further problems if there are any in my bowel that I am unaware of. <br><br>AKA Bagged 43
Shelby Dec 1, 2011 3:36 PM
RE: Colostomy Reversal Surgery
Dear Sean &amp; Nancy...<br><br>Sean.. I'm not sure on what side of irregularity you're leaning towards. If it's the timing and frequency.. the colostomy/stoma has a mind of it's own and will discharge at any given time. You don't have the normal control from the sphincter to hold the feces in. I nearly spewed on my bedroom dresser, while using mirror for assistance. If you're talking consistency, don't worry about that. The last thing you need is a thick stool causing an obstruction. Also, you have less colon, which is responsible for drawing fluid from the stool. Try to be positive.. I am a fond believer that it helps to heal us.. easy for me to say. Let us know how appt. went and what dr says.<br><br>Nancy.. I, too, have been thinking of you and hope all is going well. Same for your husband. I can't imagine dealing with all that is going on. That BCIR is an amazing procedure.. no stoma or bag!!! I wonder if I still have that C-Diff. I have been told about it. I have been eating quality yogurt for the enzymes, as well, as a probiotic. My diarrhea is still terrible 13 months after reversal, but it's still better than the bag. My dr. gave me Cholestramine. It supposedly absorbs excess bile. My thoughts are with you and wish you a trouble free recovery.<br><br>It's now been 5 weeks since a 6"x9" hernia was repaired, and 13 months since my reversal. The dr. completely reconstructed my abdomen. My stoma scar is now my belly button (it seemed to have dissappeard somewhere along the journey). I'm thankful for my competant dr... minimal drainage and not a single dehiscence.<br><br>Shelby...<br><br><br>
43bagged Dec 1, 2011 5:22 AM
RE: Colostomy Reversal Surgery
just checking in with all of you dying to find out how Nancys reversal went I hope all is well you are in my prayers. A relativley uneventful thanksgiving here but that god for big familys loud rooms and a family who is suppportive. I still have no regularaty with the sac as I now call it and am seeing the dr tomorrow to try and get a date set for the reversal tomorrow will be 6 weeks to the day . I am pushing for 12 weeks to the day does anyone know if legally I can compell a dr to perform the surgery . My wife who has always been my rock god only knows how she has stayed with me the last 20 years actually said I am getting way to negative about this so I am going to try and get my head straight 50/50 chance there but we will see. Hope all is well with all of you take care and let me know how you are all doing<br>Sean<br>aka bagged43
43bagged Nov 22, 2011 8:18 PM
RE: Colostomy Reversal Surgery
good luck to you with your reversal please let us know how it all went for you. also best of wishes to your husband for a speedy recovery
Shelby Nov 22, 2011 5:18 PM
RE: Colostomy Reversal Surgery
Dear Sean and All...<br><br>You go and get yourself into the shape you were 20 years ago. Stock up on the Ensure and Protein Powder (got mine from GNC). Also, vitamins A, C and Zinc are good for muscle and skin tissue regerneration.<br><br>I can't help to chuckle at your comments of being stubborn. It is great to hear of your quitting of cigarettes. That has been on of my small success stories, too, out of all of this. I was told smoking is TERRIBLE for the healing process!!<br><br>We all have our own HELLISH experiences/stories to tell. We all have rebounded as stronger individuals from our experiences'. And, we all are sincere and want to help others on this site, being that we can relate to eachother. Nobody can ever know, or feel, the physical, emotional and mental states we are in. <br><br>It's been 13 months since my reversal, and I truly enjoy sharing and reading other peoples' input and experiences.This site has been part of my healing process, as well. I have learned so much on this site. That Diverticulitis stuff scares the crap out of me. My colostomy resulted from a car accident and the seatbelt lacerating my colon. Gosh.. The day of waking with that bag on my side... UGHH!!<br><br>So Sean.. Stay strong and stick around this site for any other questions you may have and for support. We all know your situation.<br><br>Sincerely, ... Shelby <br><br><br>
43bagged Nov 22, 2011 7:10 AM
RE: Colostomy Reversal Surgery
Thank you all once again for the support and your expierences. It is comforting to know that I am not alone in what I will refer to from this point as my transitional state....lol might as well call it something. It amazes me how profound the effect has been on many of you who have already been through your initial surgery and your reversal yet you still come here to inspire and direct or comfort as best you can you all must be very special people. I am increasing my dailey activities andwill hopefully be hunting tommorrow morning and for the next week going forward I will also be returning to the gym. I have 9 weeks to get myself back into shape that i was 20 years ago I think I can do it . My wife reminded me how much my own stubborness and disposition has not only helped me but hindered me in the past so I promised her I will not overdo it . But to all of you THANK YOU and THANK YOU for all of your thoughts and well wishes .My prayers and good thoughts go out to all of you
Jane Nov 21, 2011 9:20 PM
RE: Colostomy Reversal Surgery
Hi 43bagged, I had a Hartmanns colostomy in February this year, diverticulitis perforated colon and abscess attached to small intestine, no idea what was the matter, thought that I had blocked wind...a bad case of, and was told that it was permenant by my Stoma Nurse. You can imagine my mental state, it crumbled, then as I began to learn more, I realised that it was possible in some cases to have a reversal. Like you I was keen to get rid of the bag, it made my life truely miserable, or perhaps I made my life a misery, it takes every bit of strength that you can muster to cope, work is a nightmare. It leaked made noises at the most inopportune moments and I felt that I couldn't carry on, dark days I agree. But with time and a good sense of humour I manage now to focus on me, and to laugh it off when it misbehaves, "I've been to hell and back, what's your story?" ! If I didn't do this then I would be morose believe me! My surgeon is now going to reverse the stoma 21st December, here in the UK it is common practice to leave well alone for a year, to allow for healing and general settling down of the bowel before going in again. I will be just over 10 months. If you are young, fit and in general good health then surgeons should entertain you. I am 52 and in fairly good shape, so bring it on! I know what you are going through believe me, I felt low at times and contemplated drinking myself into oblivion. Family and friends are supportive, but they don't know really what you have to put up with, it's constant and drains you both physically and emotionally. Please try and be strong, this forum is a great place for info &amp; support. It is better to wait patiently and get a good result than rush in and muck up your chances. Hard I know but hang on in there buddy! I will let you know how I get on , my fear is waking up with the bag still there! Ugh! Charlie I call it....it has to be a man doesn't it?! <br>Good luck, you are in my thoughts.<br>Jane - Ostomate from Ye Olde E
Darnatall Nov 21, 2011 5:50 PM
RE: Colostomy Reversal Surgery
I do understand your hesitance in going out in public with it, as I also had some of the same issues.  Have you tried wearing a belt for the appliance?  I have not personally worn one, but they discussed it at my last group meeting.  There are several people there who do wear one.  They say it does help.  You might check into one of them.  I don't know if there are different ones for the 1pc and 2pc bags or not.  It might help you.  Also, do you use an adhesive aid?  There are the ones that come in a pkg kind of like the alchol wipe pkgs.  They do not sting the skin at all.  They are a skin prep.  I didn't find out about them until just before my reversal so I can't say how well they work.  They are suppose to help keep things 'stuck' to you better.  There is also a special powder that you can apply over the adhesive which is suppose to be helpful.  If you do try the prep, be sure to let it get tacky before you apply the bag.  That is the one thing the nurse at group stressed.  One thing I did make sure to do was carry supplies in case of a 'blowout'.  It is helpful, too, to carry an extra set of clothing just in case.  <br><br>I think the wait time really does depend on the individual, as well as the doctor.  I was tired of the bag and all that changed in my life because of it, but I do think it was best for me to have gotten stronger (both mentally &amp; physically) before having the reversal.  Just remember though, just because you get the reversal doesn't mean your recoup time is done shortly after.  It is major surgery.  My surgeon told me I will likely have slight issues with pangs of pain around the incision area for about a year.  It's not every day, and it isn't extreme pain, but it does happen.  He said he wouldn't be surprised if it is actually longer than that.  The body does take time to heal.  It's not on our time, but its own time.  I'm not positive, but I think if surgery is done before the skin around the incision is healed it can make healing after
43bagged Nov 21, 2011 5:13 AM
RE: Colostomy Reversal Surgery
thanks for your thoughtful and informative reply. I do realize that it is importaant to maintain a positive attitude I guess I just have a very hard time dealing with something that has had such a profound effect on my ability to have a normal life between the unexpected noises being emmitted without warning, I am very hesitant to leave my house in general unless i am going to someplace very loud where any such noises will go hopefully un noticed as well as the fear of having an accidental leak which did occur the first time I tried to go out which was absolutley horrific expierence. <br><br>I truly believe what makes this colostomy so hard for me to deal with is no matter what other medical issues I have ever had in the past from broken bones to kidney stones to shoulder reconstruction there was always a definitive recouporation time it might vary by a week or two but this is anywhere from 12 weeks to 52 week before reversal surgery is performed. I am not looking to put myself in jeapordy or do anything that would possibly make my situation permanant I do not understand the wide range of wait time between surgeries or at least the broad range. I believe that the surgeons themselves have set most of these wait times for their benifit to make their jobs easier. I dont think they truly acknowlege the situation the person with the colostomy is dealing with . and I still do not fully understand what I am suppose to be resting before my second surgery and if they go in through the same incision why do I want it to be fully healead only to be opened up again.
Darnatall Nov 20, 2011 10:38 PM
RE: Colostomy Reversal Surgery
Nancy, so glad to hear your husband is out of the hospital.  I trust he is doing well.  He sure deserves it after all he's been thru - you both do!  <br><br>There is a gal from my ostomy support group that has had the J pouch.  She had too many issues with it and decided to make her ileostomy permanent.  She is very young, but just couldn't personally cope with the issues she had with the J pouch.  I realize it's not the same as the BCIR you're speaking of.  I could ask her if she'd contact you about her personal  experience.  I'm sure she would.  She has been quite helpful to many of us in the group, as she has done a lot of research on various things on her own.  <br><br>How wonderful that you have a good friend to care for both of you!  I will be thinking of you tomorrow and next week.  I pray everything goes perfectly for you!!<br><br>Happy Thanksgiving to you and your husband!!  -  Darlene
Darnatall Nov 20, 2011 10:18 PM
RE: Colostomy Reversal Surgery
So, Jane, long time no hear.  How did things go last week?  Be sure to update us.  <br><br>Things here have been going very well.  Feel more like the old self every day.  I hate to see the scars, but I'm happy to be without the bag!!!<br><br>Hope you are well and things are progressing as you had hoped!  Take care!!!
Darnatall Nov 20, 2011 10:14 PM
RE: Colostomy Reversal Surgery
Wow, I posted a reply to this several weeks ago, but I don't see that it ever officially got posted. <br><br>I am glad your mother was able to have the reversal at her age.  As to the leaking, I presume you are speaking of internal leakage.  It would be my guess that if she has made it this far without having a problem, she will be fine.  The healing does go pretty fast.  Granted, I'm no dr, but my surgeon was not as worried about leakage from the reconnection.  He seemed more interested in being sure there was no issue with blockage.  He had said it was recommended to have a coloscopy 2 - 3 months after the surgery to be sure everything still looked good.  I decided I wanted to wait until after the first of the year.  I didn't want to test things.  I had read of people on here having had to have a colostomy because of the colonoscopy puncturing the intestines.  I told him I felt more comfortable waiting, as long as I wasn't having any complications.<br><br>I hope she has gotten better in the last few weeks!!  She truly did have a rough go of it with all that happened.  Hang in there!
Darnatall Nov 20, 2011 9:57 PM
RE: Colostomy Reversal Surgery
There are many of us who have been thru exactly what you're going thru now.  My emergency temp colostomy was Sept 2010.  I wanted my reversal asap, but things were always delaying it.  I had hoped it would be in Jan, but I had to have a barium enema first.  Then I was hoping for Mar, but I had to have a colonoscopy.  I wanted April, but the surgeon &amp; his wife were expecting a baby so no surgeries were scheduled that month.  I was getting frustrated!  I wanted it done!!  I finally (after a postponement) got to have surgery on Jun 28, 11.  It had been almost 10 months.  <br><br>Hindsight, I am glad I hadn't had it as early as Jan or Mar.  My body really wasn't ready for another major surgery, nor was I mentally ready.  I would have hated to have wound up with the complications that others have experienced due to having it too soon.  I hated the bag, but I reminded myself every day that at least I was alive.  I came very close to dying.  My diverticulitis was in my large intestine (colon) and was perforated - then it ruptured.  Knowing that having the bag was my only way to be alive and knowing it would only be temporary made it easier to stay positive.  <br><br>I found a group of other colostomates to discuss issues with.  Most of them had permanent ones (which they named - mine was only temp so there was no way I was going to name it).  They gave me insight on issues I had been experiencing.  It was very helpful both in dealing with issues and coping mentally.  You might check with your health care provider to see if they or the visiting nurse program have a group similar to this.  When the time does come, just be both mentally &amp; physically ready for it.  Be prepared for complications, just in case.  If you go in only planning for the best, you could be devistated if complications arise.  <br><br>As for the smell, it is horrible, I agree.   It is mainly due to the fact that it has not gone thru the entire colon to have the moisture extracted back into the bod
43bagged Nov 20, 2011 9:30 PM
RE: Colostomy Reversal Surgery
Thanks SNChef and Sue for your input This surgery is definatley a life changing and life altering event the positive things that have come out of this are that I have finally quit smoking after twenty years and it has slowed the pace down of my life enough to truly reconnect with my wife and kids <br>That I am grateful for but living in this state is a very difficult and trying expierenceI truly feel for those people who are left with this condition permanatly, although I am sure it is better than the alternative for most it is still a daunting way to have to live one I would not wish on my worst enemy
Shelby Nov 20, 2011 4:33 PM
RE: Colostomy Reversal Surgery
Sean... I can tell you want rid of that darn thing and don't blame you! It's great to hear you're in good shape... that will help recovery. Keep up the exercising for when you do have reversal. Just make sure: your incision is fully healed, you trust and feel safe your dr. is competant and go with what your gut tells you. I still had small, unhealed spots on my incision at time of reversal. I didn't go with my gut and thought dr. was moving too fast. I'm just telling you because I had no input from others, at the time. Good luck!! <br> <br>Shelby.. AKA.. SNChef<br>
Sue Nov 20, 2011 4:33 PM
RE: Colostomy Reversal Surgery
Hello Sean,<br>I know exactly how you feel about "THE BAG".  How I hated that thing.  I would have offed myself if it was to be a permanent thing.  I got rid of it after less than 3 months.  The surgery was no piece of cake but I lived through it.  This happened to me on Nov. 4, 2009 and here I am 2+ years later and still quite alive.<br>I don't blame you one bit and I wish you the very best of luck with your surgery.<br>Your friend,<br>Sue <br><br>
43bagged Nov 20, 2011 3:45 AM
RE: Colostomy Reversal Surgery
AKA  43bagged
43bagged Nov 20, 2011 3:42 AM
RE: Colostomy Reversal Surgery
Thanks for the reply .I just not sure exactly what is being rested being in fairly good shape I would expect 3 months to be more than adequate for my body to ready for another surgery I cant see having this damn bag one week longer than is absolutley required. I see the dr next week so I am hoping to know more by then
SNChef Nov 19, 2011 6:01 PM
RE: Colostomy Reversal Surgery
Hi 43bagged...<br><br>I am a 33/male and know how it is to live with the bag, although my reversal is 12 months in the past. It's terrible and hopefully temporarily. It will take a toll mentally.<br><br>Do not rush having your reversal. My dr. performed my reversal only 3 months after putting the bag on. Things went terribly wrong with my reversal, because my body had been through so much trauma. All 32 staples pulled loose after reversal, which left a gapping hole in my abs. I was put on a wound vacuum for 3 months. Now, 12 months after my reversal, I just had a complete ab. hernia (6"x9") repaired. It was complete reconstruction of my belly and would've been totally unnecessary, if my dr. wouldn't have rushed things.<br><br>My suggestion... wait until your body is fully healed. Your body has been through alot and needs time to recuperate. It really stinks having the bag, so be patient. <br><br>Sincerely,<br>SNChef
SNChef Nov 19, 2011 5:40 PM
RE: Colostomy Reversal Surgery
Hi CORVVET..<br><br>I hope your mom is well. I, too, have frequent trips to the bathroom. I have found out that fiber helps me out a bit. I take metamucil and fiber pills. Try those. She will evetually get to know her body. Fluid in the lungs at her age isn't good. If, by chance, you still have a spirometer from the hospital visit, I would suggest using that. You don't want pneumonia setting in at her age. Hope all is well.<br><br>SNChef
Nancy Wall Nov 19, 2011 4:47 PM
RE: Colostomy Reversal Surgery
Well, time is fastly approaching for my colostomy reversal.  I go to the surgeon on Monday, Nov 21 for my pre-op assessment.  My colonoscopy is on Nov 28 and my reversal surgery on Tuesday, Nov 29.  It will be 9 months out from my original colostomy surgery for a perforated colon with diverticulitis.  I am looking forward to my reversal surgery.  I adjusted so well to having a colostomy, with only 8 blowouts during the 9 month period.<br>In the meantime, my husband is living with an ileostomy.  He developed acute pancreatitis after having gall bladder surgery in mid July.  If was from a retained stone in the common bile duct.  Along with the pancreatitis, he had Clolastrium Difficile (C Diff) and ulcerative colitis.  This resulted with him having his colon removed and having an ileostomy. He was in the hospital for 46 days, rehab 6 days, hospital for 9 days, home 3 days, hospital for 5 days, and rehab for 28 days.  He came home on Tuesday of this week.  It has been a long 4 months.In addition to the ileostomy, he has 3 drain tubes.  This may go on for several more months.  He is currently on short-term disability and will be eligible for long-term disability beginning Jan 27, 2012.  He is so grateful that he enrolled in the short and long-term disability insurance.  <br>He has lost 70 lbs and most ofhis muscle tone and endurance.  The inpatient rehab helped with his lower extremity strength and balance, but he still needs to work on his upper body strength.  He will be having home health PT and OT for the next few weeks.  Then it will be outpatient PT and OT after that.<br>With so much going on with other things, he has not had time to think about having an ileostomy.  Hopefully after a few months, he can have it not totally reversed, but have a modification done to it.  There are several options.  <br>If anyone is familiar with modification to an ileostomy, I would like to hear from you.<br>I have researching a procedure called BCIR.  Not sure where to find a physi
43bagged Nov 19, 2011 3:56 AM
RE: Colostomy Reversal Surgery
Hi all , I am as I am sure you have guessed a 43 year old male 1 month and 3 days out from my very unexpected colostomy surgery. I went into the hospital with abdominal pain that i had been expierencing for approximatley 5 days. After recieving antibiotics for 3 days and my second cat scan I was told that I needed to have emergency surgury due to a perforation in my bowel thout to be caused by diverticulitis. I was told that worse case senerio I might end up with a temporary colostomy. In my opinion worst case senerio became my new hopefully  very temporary way of life. I awoke from my surgery in the most horrific pain I have ever been in. I was begging for the nurses to just knock me out.After about an hour and a change in pain medications I was able to cope with the pain I was having but still had no idea where I was in regards to what had been done to my body. The next morning I surveyed the damage I did indeed have a colostomy as well as having an incision that ran from the top of my waist line to approximatley 3 inches above my belly button the incision was left open in case the surgeon needed to go back in and to help facilitate drainage,the sutures were in place I was told it was going to be laced up later before i left the hospital. At this point I must say this if it was not for my wife I think I might have truly lost it at this point I was angry, I was confused and I was in a lot of pain but thanks to the love and support of my wife and my kids They got my head turned around. I left the hospital 4 days after my surgery I think they were happy to see me go and I was happy to be leaving I had a one hour sit down with the stoma nurse before discharge who was very helpful but I still didnt even have any idea as to the questions that I should be asking. I had no idea why my stool was the consistancy it was nor why it had the most god awful smell I have ever had the displeasure of expierencing. The post op pain was severe the first four to five days I was home b
CORVVET Oct 29, 2011 1:26 PM
RE: Colostomy Reversal Surgery
MU MOM HAD THE REVERSAL AT 83 YEARS OLD AND SO FAR SO GOOD...MY CONCERN IS AFTER THE SURGERY COULD IT START LEAKING LIKE MONTHS AFTER THE SURGERY...<br>SHE WENT THREW HELL WITH THIS REVERSAL. SHE GOT C-DEF WHICH IS A INFECTION U GET AT THE HOSPITAL OR FROM TO MANY ANTIBIOTICS. SHE GOT FLUID BUILDING UP IN HER LUNGS. IT WAS A VERY ROUGH SURGERY..BUT  THE GOOD NEWS IS SHE DOES NOT HAVE THE BAG BUT SHE DOES GO TO THE BATHROOM MORE THEN SHE EVER DID...BUT I WILL SAY HER DR WAS AMAZING DR.LIEBOFF HE IS ON LONG ISLAND AND HE WAS THERE AT LEAST 3 TO 4 TIME'S A DAY TO CHECK ON HER...ONE OF THE BEST  DR'S I HAVE COME ACROSS IN A LONG TIME...
Mary Ann Oct 10, 2011 6:36 PM
Post reversal,
I had my reversal Jan 5, 2011, I did wait a year before having it done. I'm glad I had it done but very limited what I can eat and had pouchitis once post opera. I have not had any pain and I am walking 20 miles a week. I have about 10-12 bowel movements a day and a little incontinence, hoping it will get better but still better than wearing appliance. Good luck to all having reversal surgery everyone is difference keeping a log of what and when you eat is helpful. Staying away from caffeine, fried foods and high sugar foods is helpful (chocolate gives me instant diarrhea). I'm also lactose intolerant so have substituted Silk light for milk.
Jane Oct 9, 2011 1:36 PM
Reversal Date
Darlene, Nancy & All
Just checking in with you. I have got my date for reversal, 19th December,10 months after stoma, I know close to Christmas, but it will be my present to me! I am slightly apprehensive because I have been filling my head with horror stories of loop ileostomies, surgical problems and the like on the internet, but I am never the less sure that I am doing the right thing. Would love to hear from you all and learn of your experiences...good and bad. Got pre-op assessment 10th November, may get to know a bit more then. In the meantime, take care everyone, I will update as soon as there is any info.
Jane - Ostomate from Ye Olde England!
Darnatall Sep 20, 2011 12:46 PM
Re: Mad
I do not know what to suggest other than checking in your area for a support group. I wish I had something better to offer, but if he could get into a colostomy support group he might get some comfort from others who may be in the same situation. If he is having major mental issues, maybe there is some help available thru your local health department for low or no cost counseling. When he had the initial surgery, did they tell him there was a possibility of it being reversed? I only ask, as some are not reversable. It is a shame that he has had to have this at such a young age. I hope someone else can possibly help you more. At least check into a group or counseling to help in the mean time. Good luck! - Darlene
Darnatall Sep 20, 2011 12:33 PM
Nancy Wall
Sorry to hear about your husband. I hope he has been released and has gotten better so you can have your surgery. If you're not in there today, I trust the 27th still works for you! And trust me, no matter how use to "Dorothy" you have gotten, if you're like me you won't miss her at all. I joke on ocassion about how I didn't have to worry about a bathroom before, but I love not having the bag anymore!! I've worn real jeans 3 times now. It was just over a year ago since my initial surgery. I hadn't been able to wear them due to the location of the bag. I am a bit tender since the zipper and button/snap hits my incision, but I know in time it won't bother so much. It has been nice to get out of the stretchy pants!

Curiosity question - why a colonoscopy before the surgery? I had one a few months before mine. The surgeon mentioned at one of my follow-up appts from the reversal surgery that I should consider having another one this month just to be sure things were looking good. I'm a bit skiddish about having one so soon, but I don't understand them having you get one the day before the surgery. As I said, curiosity.

Well, I hope all is well with you and your husband. Post an update when you can. - Darlene
mad Sep 19, 2011 9:20 PM
collostamy reversal
I have a boyfreind who is 6,2" 332 lbs. He has had a collostamy bag for 6 years.This thing is driving him nuts and is causing him really major mental problems. He doesn't have much money right now. Is there a way to get the surgery anyways? He is 23 years old and is not qualified for medicare and does not have medical insurance to cover because he cant afford it. Please if someone can help me who knows we could really use the help.
Nancy Wall Aug 27, 2011 9:10 PM
Reversal Surgery Postponed Until Late September
Things can change over night. I was scheduled for reversal surgery on this past Tuesday, Aug 23, but had to reschedule. My husbsand was admitted to the hospital for pancreatitis (inflammation of the pancreas) and colitis (inflammation of the colon) on Aug 12. He is still here 16 days later.
My tentative date is either Sep 20 of Sep 27. I need to make sure my husband has recovered before I think about undergoing my reversal surgery. I am glad that I still have plenty of wafers and disposable bags. I will have to get use to not having the bag. "Dorothy", as I call her, has become an intregal part of me for the last 7 months.
Just wanted to post that my surgery had to be rescheduled.
Hope everyone is doing well.
Nancy Wall
Nancy Wall Aug 23, 2011 11:46 AM
Reschedule of Colostomy Reversal
Nancy Wall here. I was scheduled to have my reversal today; however, my husband has been in the hospital since Aug 12 with an acute case of pancreatitis. He had his gallbladder taken on July 17 and was doing fine for 3 weeks and even returned to work. He came home on Aug 11 with severe abdominal pain. We met his surgeon who did the gallbladder surgery. He sent him to St Thomas Medical Center in Nashville. He had to have an ERCP which is a procedure where they go down the mouth endoscopically into the abdomen to the CBD (common bile duct) which connects to the pancreas and remove stones and sludge that was blocking the flow of bile through his system. Therefore, I have postponed my surgery until we get him recovered. My tentative surgery date is Sep 27 with the colonscopy on Sep 26. I have gotten use to "Dorothy", (the name of my colostomy friend), so I am fine with waiting. I have a great attitude which has gotten me through the last 6 months. I am glad your recovery has gone well. I hope I am fortunate to have the good luck with recovery as you did. I will remember to get up and walk afterwards. I will keep the forum posted of my progress before and after my surgery.
Take care. Nancy
Darnatall Aug 22, 2011 9:33 AM
Nancy Wall
Sorry, I haven't been back on this site for a bit. No, I have not had the prep with pills. I hope it went well for you. Good luck with the colonoscopy today. I will be thinking of you tomorrow. Hopefully, your surgery will go as well or better than mine. I didn't have any real issues at all! Recovery has basically been text book. I will pray this for you, too.

I'm curious, how did the irrigation sleeve thing work? I hadn't heard of that before. As for unused items, do you have a home nurse that will be coming to your house to check on you and change dressings? If so, you could give them to her to give to patients that she knows that might not have insurance or don't have much coverage. I have a support group that I was going to that I will be getting my unused items to.

Good luck today and definitely tomorrow. Let us know how you are doing. Rest well tonight, and walk as much as you can (as early as you can) to help speed healing. Just don't push it too much. I hope you find recovery after this surgery is easier than after the first surgery. This is what I have found.

Take care, Darlene
Nancy Wall Aug 5, 2011 4:42 PM
Countdown to Reversal Surgery
Reversal surgery will be here before I know it. I have an appointment on Aug 15 with the surgeon, the colonoscopy on Aug 22 and surgery on Aug 23. I will be taking pills for the colonoscopy prep. Has any one else use this kind of prep. Also, I ordered an irrigation sleeve. I figure it would be better that the disposable pouches. It will be easier to empty and will hold more output.
What do you do with your unused wafers and pouches? I thought of donating them to my local hospital. Are there any other places I could donate them to.
Let me here from some of you.
Darnatall Aug 3, 2011 1:17 PM
Darlene's Reversal Update
Well, it's been a little while, but things are so much better. Other than the 1st weekend home, things have been going very well. That first weekend home, I did have a bout of not being able to keep things down. I had to go to the ER. They didn't find anything wrong so sent me home. Course, I didn't even get out of the lobby before I got sick again. They wheeled me out to the curb anyway. All ended well, though. I finally got things moving in the right direction.

It is great not having the bag. I have had to change my dressing on the stoma site wound. I wore the wound vac on the larger incision until yesterday. The dr decided the wound wasn't deep enough to warrant wearing it any longer. It is still kind of wide, but has been healing quite nicely. At one of the home nurse visits, the wound was about 19cm long. A week and a half later, it measured 14.5cm. I thought that was quite a difference. The dr is very pleased with my progress. I don't think I'm quite ready to go back to work, but short term disability has me approved only thru next week Tues. I don't want to go back without the wound being more closed than it is. I will have to change the dressings at work. It's not my idea of fun!

Jane, has there been any changes in your status? Are you going to be able to get the reversal? I hope things are well with you. Please keep me posted. If you like, you can email me personally at darnatall@yahoo.com. I'd love to hear from you either way! Take care! Darlene
Jane Aug 2, 2011 10:46 AM
Darnatall Update
Hi Darlene

How are you? Not heard for a while and I am concerned.
Jane
Jane Jul 6, 2011 1:04 PM
Darnatall Update
Darlene...It worked! So pleased for you, I hope that you are recovering well, you are very brave. I gather from your last message that you had a little morphine to zonk you out! ..Good stuff eh!? Let us know how you are progressing, I bet you feel good now.
Love and best wishes,
Jane
Darnatall Jul 1, 2011 1:49 PM
Darnatall update
Hope to get this all in before next mishap!

Surgery went well. Had to clean up adhsions for first hr, surgery, then another hr to repair several hernias.

Pain was mostly related to th NG tube I had. I feel it today, tho!!! I'm hitting the button today tho!!! Did get some good walks in.

Darn!!! Keep dozing off!!! Making it hard to post anything!

Still open - both sites. Likely going home with wound vac - fine with that!!!!

Going for now...will post more soon...just tired of dozing!!!

Later... love to you all!!! Darnatall
Jane Ellison Jun 29, 2011 1:09 PM
Darlene minus a Charlie!
ny helpful hints from your group to stop the bag from 'pancaking'? Mine goes as flat as a fluke after a short time! Your surgeon surely won't knock you back again...they must know how this will upset yuo, so try to think positive, just think, this time next week eh! What liberation! Keep cool, my thoughts are with you.
Jane x.
Sue Jun 28, 2011 9:05 PM
Darnatall
You will be ok my friend. I can understand why your surgery was postponed. I live in a very rural part of America myself and there a few good surgeons. I had my reversal after 10 weeks.

I would have been very upset had I needed to wait any longer. I too was counting the days and was desperate to get rid of "the bag".

I''m sure things will go as planned now and when you go in tell them it is very important that your pain is controlled.

Mine was not well-controlled and I was treated as being un-cooperative, etc. It turned out I had a hernia! This hernia was discovered after the reversal which was my third abdominal surgery but it I could have been born with it or developed it after the first abdominal surgery I have been advised.

Take care my friend and be sure to take a Xanax or something to stay calm as you need all of the rest you can get! Best of luck and let us know how you are doing.
Darnatall Jun 28, 2011 8:06 AM
Surgery rescheduled
I am scheduled to go into surgery today at 1:00 eastern time. I have to be at the hospital at 11:00. I will come back on when I can to let you know how things went.

Thanks, again, for all the well wishes!!

Darlene
Darnatall Jun 26, 2011 12:05 AM
Jane & Charlie :)
Yeah, I'm taking it in stride. I've worked myself up nerves-wise though. You'd think I had already started the 2 day prep! I hate when my nerves do this to my system!! I've been trying to relax. I'm so afraid the surgeon will call back to reschedule. I hope not!! I am staying positive, but I can't help but be disappointed too. It is scheduled for Tues afternoon. I will know the exact time on Mon eve. I figure I'll need to be at the hospital by 10 a.m. at least. What a long day that is going to be, but I can't wait to wake up and not have a bag.

I went to my ostomy group today. There were a few new ostomates that have joined. One gal is looking forward to a reversal in about another month or 2. I believe all the rest are going to have to keep theirs. We had a nice exchange of ideas and helpful hints.

Well, got to get some rest. Can't go to the hospital in hopes of getting any!! LOL!! Take care! I should be able to keep you posted from the hospital, as I have a new phone plan. I've been learning to manuver on the web with my phone, and it's a lot easier to keep tabs on than a laptop. Later - Darlene
Jane Jun 24, 2011 8:38 AM
What a Pain!
Oh Darlene, what a stroke of bad luck. Keep focused, it probably wasn't meant to happen yesterday! A Surgeon with no back up is too scary! So try and take the knock in your stride, you are still going in the right direction, never mind, you will soon be bagless. Let me know how you get on. Keep your chin up matey!
Jane & Charlie - The Bag!
Darnatall Jun 20, 2011 2:29 PM
Sugery Delayed
I cannot believe this!! The surgeon called this morning to reschedule my surgery. When it was scheduled originally, he didn't take into account that it would be the 'end of the year' for the residents. They've all left. He wouldn't have any backup/support for my surgery. I have to wait until next week. I'm trying to get in contact with him again to actually set the date. I'm hoping for the afternnon of the 28th. That's the soonest he could safely do it. Otherwise, I could schedule for any day later that week or wait until the week after the 4th. I don't feel like waiting that long. I HATE this!! I was so looking forward to being done with the bag!! It's a good thing I didn't do what I had intended to do. I had counted how many bags I had left & figured a couple for any possible leaks when I am on the liquid for 2 days before surgery. I was going to take a shower every day finally! Something I haven't done in over 9 months. It didn't work out that way & now I guess I know why. If I'd done that, I'd have run out of bags before my surgery came around. Oh well...I guess I have to go back to work for a few more days and try again for next week. I'll keep ya posted. - Darlene
Darnatall Jun 17, 2011 2:25 PM
Jane
CONGRATS!! Glad to hear first of all that you have no infection!! Also, glad to hear that a reversal is not out of the question!!! Hurray for you! And on losing lots of weight - wonderful! Keep up the good work!! I wish I had been able to lose more weight. I've only lost 15 - 20 lbs. I was hoping for more! Been eating healthier than I ever have in my whole life, but still have excess weight. There have been many changes in things like BP and cholesterol levels. I guess I should be happy with that, but it would have been nice to lose more. I will continue to try after this next surgery. I hope to be able to do more walking when I get out this time. The weather should be nicer for such things.

Well, getting down to the wire...only 6 more days til surgery. I've gotten disability claim filed, bills lined up to be paid, and working on getting to the clinic to get the pre-op blood work done. Next to do is boxing up items for donations and getting them picked up or delivered. Straightening house up, laundry, and yard work. I want to do some personal paperwork too, just in case...

Take care all!! And thanks for all the well wishes! I will keep you updated on my progress. Continued sucess to all of you! Your fellow ostomate, Darlene
Tania Jun 17, 2011 1:13 PM
Hi Darlene and Jane
Hello Ladies, thanks for replying on my post. Glad my experience is giving some form of relief Darlene. Sorry to hear it's been 9months with the bag, I know you can't wait to get rid of it. Hope all goes well and you have a speedy recovery.

To answer your question about the gas, it actually hurt more the first 3-4 days at the hospital. It kept blowing up in my stomach and I would feel my stomach swell up, they had to give my some medication for it. I didn't have much of an appetite, so it added to the gas accumulation, and I was very nauseous, and in lots of pain as I moved around. Morphine drip didn't help at all, I pressed that button every 6minutes on the dot, and nothing. They gave me toradol which helped better with the pain, and eventually percosets. Defenitely walk around as much as you can, it helps so much with the gas. When the first one actually came our from the bottom it was like the heavens opened up, lol, I said to myself, it works, it actually works! The little silly things you appreciate..lol.. The gas does get better after 5-6 days, you can pass it, but not pushing so hard. Eventually things will be back to normal. Right now almost 8wks since my reversal, I can thankfully say things are pretty much back to normal.

Hope this information helped and once again a speedy recovery and to you as well JANE!
Jane Ellison Jun 17, 2011 5:15 AM
Hi Darlene, Tania, Cindy & Nancy!
Hello Ladies! Just been to see the Stoma Nurse at my local Hospital...and it wasn't all bad news! My (infection) as I thought wasn't around the stoma site, but I thought that it was in my gut as I have been having a terrible time suffering from acute diarrhoea, turns out that there wasn't any infection at all, just me taking high strength fish oil capsules which set Charlie off mega style!! My own fault entirely, you live and learn don't you?! So to update, as I have lost a lot of weight, I was bloated up like crazy, the nurse said that a reversal wasn't out of the question, but I would have to continue my healthy lifestyle, loose a bit more weight and then there will be no reason not to have reversal. I was very pleased, so now it is up to me to look after myself better.
I don't have a hernia...not yet anyway so that was a relief.
Thanks for shareing your experience of reversal Tania, I hope that you are repairing well now and enjoy going to the toilet properly! What a luxury !
Darlene, Thursday will soon be here, keep in touch and good luck, I will be following your progress with great interest.
Nancy, whilst swimming is encourage here in UK, you've got to ensure that you have a good seal on bag! I have tried it but was very self consious so didn't stay in too long. Irrigation is something that has not been encouraged here, don't know if they are over cautious of damage, but it isn't unheard of. Personally I have kept away from that one, but each to their own!
Love to all.
Jane in ye olde England!
Darnatall Jun 14, 2011 8:18 PM
Tania
Congratulations on having had your reversal and things going so smoothly with it. It makes me feel a little more at ease about my upcoming surgery. I've been getting more 'worried' about it as the day gets closer. I hope mine goes as well as yours did!! Thank you so much for sharing your story!! If only mine could have been done sooner. It's been just over 9 mos since my initial surgery. I am grateful to be alive and will be more grateful when this bag is gone!! I am a single parent of a teenage boy (and just turned 47 today).

I have to ask, was the gas those first 10 days a killer because there was a lot of it, and the bottom was 'out of practice' or was there something more going on? Is it back to normal now?

Thanks again for sharing your story. It gives me hope. Continued blessings on your recovery!! - Darlene
Tania Jun 13, 2011 11:22 AM
cont.. 7wks after Reversal
Hi this is Tania again wanting to finish my story...

6wks after my reversal I went back to work, wound healing very well, ans no pain. Just getting my body use to waking up early in the morning but so grateful for another chance in life.

I dont have any kids, I will be 35 in a few weeks and its great to look forward to a healthy life and take better care of myself. I want to wish you all speedy recoveries and a life full of many blessings.. Thank you all for sharing you stories.. God Bless

Wonderful thanks to the awesome surgeons of NYHQ, you all saved my life and thank you.
Tania Jun 13, 2011 11:17 AM
7WKS AFTER REVERSAL
Hello all, my name is Tania. I have not been able to keep up with all the posts but I was glad about 2months ago to learn many of your experiences and not feel like I was alone in the world with a coloctomy.

I did preforate Jan 27,2011 at the age of 34, and my reversal was 3months later April 25th. I was hoping I didnt have to wait the 3months, since I was mortified having the bag. I eventually with the hekp of my family and friend overcame my depression and was grateful to have been given another chance in life. I went back to work for a month after 2months at home with the Colostomy, I can honestly say it was very challenging with the bag. My stoma wasn't so big and did have to endure issues with the wafers and changing it every 3-4 days. As well as 2 or 3 leaking issues but nothing major and eventually became an expert in changing it. It defenitely didnt hold me back from moving on with my life, going out to dinner, and having fun with my friends.

Thankfully April 25th came along and it was time to get rid of the bag, I was nervous going under again but excited to get rid of it and feel "normal". Doctor said in my recovery from anestesia first thing I went for was my stomach and asked the nurse if it was gone, and indeed it finally was. I spent 5days in the hospital, gas after 2 or 3 days, liquidy bowels after 4-5 days, normal stool after 10-12. Which I had never been sooo happy to use toilet paper! lol.. The gas the first 10days was a killer, it hurt like hell. I had Visitig Nurse come by daily to clean up my wound since the surgeon decided to leave the hole where the colostomy was open and let it close on its own. I couldnt handle taking care of it myself in the beginning since I was squeemish and it hurt. 3 1/2 wks after surgery I was healing well and was able to fly to Miami for 6days and enjoy a long overdue vacation. I didnt get into the water but sitting by the beach enjoying another day of life was a beautiful thing.
Darnatall Jun 10, 2011 12:43 PM
Jane, Cindy & Nancy
Hi ladies! Glad to see more have made it back. I had to ‘join’ in order to get in at all then I couldn’t find the site. I was just a bit freaked!

Thanks so much for the thoughts, well wishes and prayers. I've been counting the days down – 13 to go. I doubt I'll be out by this time that day, but hopefully I will be close to being finished. I hope you'll soon be in my shoes, Jane. I really hope you can get the reversal. I’ve been praying for that for you!! As for an infection, I've not (knock on wood) had any issues of the kind this entire time. I’ve been lucky, I guess. I’ve made sure to clean the area really well when I do get to shower. I try to let the skin air-dry for a while before putting the bag back on, too. I’ve been pretty careful to watch what I’m eating..not sure if that makes any difference, but I figure I’ll do whatever I can. I've been pretty lucky my entire life in the fact that I haven’t generally had many health issues. I have to be sure not to get sick these next 13 days though. If that happens, I’ll be rescheduled. I decided to take the week before off – hope that helps!!

Cindy, I hope Rob is continuing to do well! I haven't seen anything new so figure it's no news is good news!

Nancy, glad to hear of your upcoming surgery!! I’ll be thinking of you! As to your swimming question, I haven’t found anything that keeps everything dry! I tried to take showers, but they didn’t work out for me. I’ve had to wash up the days in-between showers. Not sure if it makes a difference, but I wear the 1pc bag. My stoma is in my crease so a 2pc wasn’t possible for me. No input on the irrigation, sorry. Congrats on only 1 leak in public. I’ve had a few. Ick!! I’m glad my surgery is just around the corner, as I have been having a few leaks. My skin is getting a little irritated, but I try to keep on top of it.

Keep in touch!! I'll try to be back on before the 23rd. If not, I'll 'see' you shortly afterwards!! - Darlene
Nancy Wall Jun 9, 2011 11:04 AM
Swimming with and Liv ing with a Colostomy
Nancy Wall here again. I forgot to enter Notify me of comments via email. Please share your experiences with swimming with a colostomy.
Nancy Wall Jun 9, 2011 11:01 AM
Swimming With and Living with a Colostomy
Hello Everyone,
Nancy Wall here. I am scheduled to have my reversal on Aug 23.
We have a in ground swimming pool and I would like to enjoy using it this summer. However, I have a question about swimming with a colostomy. What do some of you do to protect the wafer and pouch to prevent a leak?
Is it necessary to change the wafer after swimming? I just ordered a double supply of wafers and pouches for this reason. Has anyone used a cap versus a pouch during active activities.
Also what about doing an irrigation with a colostomy. Please share your experiences.
Living with a colostomy was trying at first, but I have it down to where I don't even notice any inconvenience except when I have a leakage. I have been fortunate to have had only one leakage out in public.
I can wear a wafer for about 4 or 5 days without any problems.
Let me hear from you.
Nancy in Kentucky
Cindy Munch Jun 7, 2011 8:41 PM
Hi Darlene
It's me Cindy. I found the site. Good to see you are here. Good luck on your upcoming surgery.. I'm sure everything will go as scheduled. You are in my prayer..
Jane Jun 7, 2011 6:13 AM
Not long now!
Hi Darlene,
Woke up this morning and thought of you... not long to go now! Just to let you know that you are in my thoughts, keep strong, just think of the benefits. I am envious!
Been to the Doctors for blood tests this morning, think that I may have an infection, "Charlie is acting up!" Did you have any problems like this four months in? Your chum, Jane
Darnatall Jun 6, 2011 2:57 PM
What's next??
So glad I found this site again. Took me a while, but finally!! I hope everyone else makes their way back here. I would hate to think I was on my own again. The surgery is just 17 days away. I want to still be able to converse with everyone!! - Darlene
Cindy Munch Jun 1, 2011 1:09 AM
Dear, Reversal surgery wait time.
Hi there,,, I'm Rob "Cindy's husband". Since I am the actual person who has endured both emergency colostomy (perforation) and colostomy closure I thought it was time to clear up some "exaggeration" Cindy might have put forth throughout this board.

At age 54 being in otherwise good health, the surgeon who performed the emergency surgery advised a period of 3 to 5 months for the reversal. He mentioned poorer health or advanced age as a determining factor regarding the time for the wait. In my case he indicated 3 months for me "surgery was actually 3 month and 10 days.

Surgery went well. Gas was passed in approx 3 days, with no discomfort" . The one issue I did have was a lengthly delay in passing my first bowel (12 days). I have no diet restriction and am as regular as I was prior to the perforation.

Surgeons opinion and other research indicate how much of your colon was removed will probably determine what your future bathroom routine will be. In my case they removed approx 25 cm (10 inch).

The only other problem I still currently have is the healing of a section (about 3 inch) of the incision which is slowly begging to heal (no skin graft as Cindy is claiming). Scar will not be attractive.. I have another doctors appt next Monday.

More to follow.
Darlene May 31, 2011 12:45 PM
Dear Jane
Wow! Silly me! Forgot when I was writing that your money would be different than ours. (lol) I don't know what I was thinking. If our quarter is about the size of your penny then you have a rather large penny! In metric measurements, it would be roughly 24mm. In inches it's about .95 - just under an inch. A pretty big hole anyway.

I will certainly be thinking of you come September. I hope you don't have to unleash all that hell fire & fury on him, but if necessary...don't hold back!!

Well, the count-down started last week...23 days until surgery! I'm getting a bit more nervous, but I am looking forward to being more normal again!! I'll let you know how things go afterwards. Take care!!
Cindy Munch May 30, 2011 2:16 PM
Dear, Reversal surgery wait time.
Dear, Reversal surgery wait time. This is Cindy talking. I wasn't the one that had the perforation, it was my husband Rob,,, He perforated on Christmas morning 2010. His surgery the first time around went very good. He was out of the hospital New Years Eve (7 day). In going through the full thing with Rob (PLEASE READ ALL OUR PRIOR POSTS) I would wait at least 6 months.. Rob reversal surgery went very well,,, but the after math was horrible. He passed gas right away (about 3 days after) but didn't have a bowel for 12 days... His incision has opened and now it looks to me like he will possibly need a skin graft in the 3 1/2 section that is open. Rob is a healthy 54 year old guy, a thin guy that doesn't just sit around.. I know every person is different but I would wait just a bit longer than 3 months.. Remember,,, the reversal will determine the REST OF YOUR LIFE. I will say one thing,, Rob has no problem in the daily bowel movement area.. He is very on schedule and has no diarrhea or constipation. Good luck
Jane Ellison May 30, 2011 12:18 PM
Jane UK
Darlene, Thanks for your support and sound advice. I too had a similar problem and was very "septic". I will have to live with things until September, then I will start to demand and not request reversal...we are too damn polite in England! Well my Dr better wear his asbestos pants! I will breath hell fire & fury at him!
Darlene, had to figure out what a "quarter" was, then it's size! About the size of our penny I think.
The "Life Style" cop out is used purely to save cash. What a nonsense. Wonder if our Doctors would put up with the "lifestyle change" of having a stoma and sacrificing a chance of reversal on the alter of cost. Not flippin' lightly!
Please keep in touch, just good to talk to people in the same boat.
Jane..letting off steam!
Nadine May 29, 2011 2:19 PM
Jack
dear jack

That is exactly what happened to my husband in december. (he is 43) To be honest with you yes it is possable to have the reversal in 3 months but........i would really suggest to wait between 4-6. The longer you wait the better chance you have that your insides are healed up and ready to be put back together. They had to do my husbands at 4 months because his stoma was recessed that the opening on the outside was closing and if he waited it would have just closed up completely. If they go in and attemt to reconnect you in 3 months and you are not healed on the inside there is a good chance that the colostomy will be with you for chance. (well thats what our surgen said.) your body wont beable to handle 3 major surgeries that close together. The way we saw it was he would have rather had the bag for 6 months then for the rest of your life. Its hard..... my husband had every problem that there was from leaking every other day because we couldnt find the right product for him to have to do an emergancy change in the back of a moving truck with a flashlight because we were at a parade. Dont give up and just know that things will get better. Just give your body time to heal and take care of your self. see if there is a support group that you can go to. Yes it is temperary but going to a support group was the best thing that my husband did. if you need help finding one in your area let me know i'd be glad to help! :0)
Jack May 29, 2011 4:12 AM
Reversal surgery wait time...
Hi everyone. I had an emergency surgery on May 12th due to a perforation in the sigmoid colon. Because the CT scan injection caused the stool to leak into my abdominal area, they've had to cut me open and clean everything out. My surgeon performed a sigmoid resectioning (no idea how much he cut out) with a colostomy. My initial surgery went well and I'm still semi-young (35 y/o) so my recovery went quickly. I was out of the hospital on my 6th day of admission and was able to eat solid food without a problem.

Does anyone know how soon I can have my reversal surgery? I am really hoping it'd be in 3 months. Based on my initial surgery recovery, things are looking pretty good. Also, I'm curious... how does it feel during the first time you passed gas or stool after the reversal? Is it painful since they've stitched things back together? Thanks for all your help.

Jack
Nancy Wall May 23, 2011 1:18 PM
Ostomates in Ye Old England and UK
My reversal surgery is scheduled for the end of August. That will be 6 months since my emergency surgery in February. My doctor suggested that I wait 6 months so that everything has time to heal and to recuperate from the initial surgery which resulted with a colostomy. I have gotten use to the colostomy, except when it decided to leak on occasion. It is just something I have had to get use to. I am so fortunate to have great insurance which pays for a most of my surgeries and my medical supplies.
It is ashamed that some of you have to justify getting the reversal surgery as it is considered an elective surgery. Go figure. After all, we did not ask for the initial surgery, it just happened. Best of luck with your reversals.
Darlene May 23, 2011 12:22 PM
Jane - UK Ostomate
Thanks for the well wishes! I will be sure to let everyone know how things went after my surgery. I intend to see about taking my laptop with me so I can update everyone…although, I need to check to be sure they have Wi-Fi available to use. One way or another, I’ll let you know. I’m hoping all goes well!!!

Health coverage certainly is different from country to country! I’m glad I have the coverage that I do. I hope you will be able to get your doctor to change his mind about a reversal. I know I don’t want to stay this way the rest of my life!! I doubt you do either!

I ended up with an emergency temporary colostomy due to a perforation in my colon. I had diverticulitis and didn’t even know it. There were 2 pockets, and one was perforated. While I was in the hospital getting things checked out, my colon ruptured. They removed almost 2 feet of colon. The hole was about the size of a quarter. I had leaked into my system and had become septic. The surgeon mentioned at my 1 month appointment that had he waited to operate, IF I was still alive, I would have still been in the hospital – just in the intensive care ward. Very scary times!

Yes, it will be just over 9 months when I finally have the reversal. As for when the surgeon first mentioned the reversal - that would have been from the beginning. I didn’t see him after the operation, but he spoke with my mother about it. He and I discussed it at my 1 month appointment. He really wouldn’t consider doing it until at least 6 months had passed. I had a colonoscopy scheduled in March. I was hoping to schedule surgery in April, but he and his wife were expecting the arrival of their child so he wasn’t scheduling any surgeries at that time. I opted for June so my son would be out of school while I was in the hospital.

I hope and pray your doctor decides on the reversal for you!! Keep your head up!! Stay in touch. - Darlene
Jane May 19, 2011 10:32 AM
Ostomate from Ye Olde England
Hi Darlene, this is Jane here from UK! It was good to hear from you. I hope that all goes well for your reversal surgery next month, I will be thinking of you on 23rd, when you are up to it, please let me know how you are doing. I will see how it goes in September with my Dr, and ask for a second opinion if he doesn't want to procede and there is no sound clinical reason for his decision. Here in the UK, with the NHS, decisions relating to elective surgery are dictated by individual budgets, so may have to pay to see someone privately. (different to United States eh!) Did you have your stoma for the same reason as me? So it will be roughly 9 months since your first surgery, when did your Doc start talking about a reversal?
Cindy Munch May 19, 2011 1:31 AM
RE: Colostomy Reversal Surgery
Hi all,, It's Cindy.

We went to the doctors again today. The open incision just doesn't look much better. Dr said he was glad we came in. He looked at the incision and had to remove the Necrotic tissue, it's a process called debridement. OUCH!! He cut the ick out and took a couple of the stiches out. He told us not to be concerned. So long story short,, the reason this happened is because the top part of the incision healed before the bottom part which in tail caused a infection pocket. Rob is laughing at me right now,,, so that is a good thing. This has been a really long road that I'm so ready to get off of. Good luck to all out there that is still in the woods.
Darlene May 17, 2011 12:31 PM
Ostomate from the old UK
Hi, sorry to say this, but welcome to the club! I had my surgery in Sept. I found this site and one of my first questions was about the reversal being an elective surgery. I was afraid my insurance company would not cover the costs. I have since learned that (at least here in the US) there are several factors in the whole thing. It could be considered elective, as we can continue to live this way. The big question - would our quality of life be better if we had the reversal? I think everyone would likely say yes. I have been told a lot depends on the dr and how he writes up the paperwork. I am scheduled for the reversal on June 23. I guess I'll find out then whether or not they cover it. I believe they will. It will cost less for the surgery than to cover my supplies for the rest of my life. I will be 47 in June.

You might want to entertain the idea of getting a second opinion. I know I would. I'm lucky to have gotten such a great dr the first time around.

This site has been a great help and comfort to me. Keep checking in. I hope all goes well for you!! - Darlene
Jane May 13, 2011 4:31 PM
Colostomy Reversal
Hi There, just stumbled upon your very helpful site. I am living in England, so have to adapat a little to your Health Care ways! But a colostomy is a colostomy and the bag is a flipping bag where ever you go! I had my stoma in February because of abscess and diverticulitis. Saw my surgeon April 1st, he didn't want to entertain idea of reversal as wants to leave to see how I go on. To see me again in September, but he did say that a reversal is a "Lifestyle Choice" operation, unlike the emergency procedure to save my life. So I feel that he really can't be bothered, I am 52, at least your stories inform me that reversals do routinely go on...in America that is!!! Please keep in touch!
Your ostomate from the old UK!
Shelby May 11, 2011 8:39 AM
Dear Laprascopyc ovarian cyst gone wrong:
Hi... I'm sorry to hear of your negative encounters.

If you had a fever that high and he didn't give you any antibiotics.. well the dr. needs to get his head out of his "rear end!!"

I hope that tape works. If he cut out 3 staples, I would think some gauze would be needed to absorb any excess bleeding or drainage.

It seems familiar that the doc sends us all home with an open wound. Keep an eye on that wound. You don't want any infection setting in.

I'm not sure the bleeding is normal, but it does happen. It may bleed lightly here and there, but shouldn't be bleeding alot. I hope it's not bleeding at a rapid rate.

As bad as it may sound, bleeding is kind of good. It means there's good blood supply to the incision, meaning the wound is healthy and the blood is aiding in the healing process. Mine never bleed much, just a tiny bit. The nurses always told me that seeing blood was a good thing. The last thing you want to see is infection/ puss oozing from the wound, so keep in mind... blood is good.

I'm sure you read Cindy's posts.. It's terrible to hear of what can happen.

There were times when I : shed lots of tears, just screamed to let it out, wanted to put my fist through the wall and felt there was no end in sight. You are a strong person and will pull through this.

Keep a close eye on that wound, and if pain or fever sets in, call that dr. and be on his butt.

Feel free to ask any questions. I know you are a strong person.. Stay strong and be positive.

Shelby...
Shelby May 10, 2011 5:20 PM
Dear Cindy and Laprascopyc ovarian cyst gone wrong
Hi Cindy....

You're welcome.. I try to help in any way I can. I know (in some way or another) what you're going through. I've been wondering how things have been going.
It's sounds as if you are learning alot about nursing, as well. You are already helping others on this site, and that is a great thing.

The news is terrible , and I'm so sorry to hear of the setback. The necrotic tissue is new to my ears, so I had to research it. How the heck did that happen... tissue dying???

I visited a Wound Clinic for 8 weeks and did hear of similar things. They cut out the bad tissue and start from good healthy tissue. I am wondering if they stapled him back shut, or if it will heal over on it's own.

If the infection was bad enough for the dr. to cut it out, I'm hoping they put him on some kind of antibiotic???

For my big open wound, I had this super strong peroxide... It literally bleached my pants at beltline.

Keep us posted. I hope things progress in a positive manner, from this point.

Shelby....
Cindy Munch May 9, 2011 10:15 PM
Rob's Update
Hi all, It's Cindy, I hope everyone had a wonderful Mother's Day. Well we are not out of the woods completely. I was telling you about the 2 troubled spots in Rob's incision, well over the week-end the trouble spot on the top really started bugging him. You could see the infection starting and Rob could feel the fluid pocket. He went to the doctors today and long story short - they cut it wide open again. About 3 1/2 inches. It's dead tissue (Necrotic Tissue). So now I will become his nurse again. I will keep you updated.

Nancy, I think you are very wise to wait the additional 2 months. After reading all these posts you will be an experting in knowing how to prepare for August.

Nadine, your input is very helpful to all on this site. Thanks

And Shelby, you always answer all my questions and concerns. Thank you for that. Until the next chapter-everyone stay well.
Josie May 9, 2011 1:17 AM
Laprascopyc ovarian cyst gone wrong.
Outpatient laprascopyc on January 2011 but woke up with colostomy and catheter.just recently had colostomy reversal.5 days in the hospital during the stayed I'm spiking up a fever 103 and yet the resident dr did not gave me any antibiotic after 3days of high fever then gave me flagyle.but it was to late because they had to cut 3 staples from my incision blood burst out from the cut.so came home with open incision,stuffing my self with gauze 3xa day.after one wk I saw the dr.he put a tape that supposed to close my incision he said everything is going to be okay now I don't have to do any dressing anymore.went home my incision is bleeding I'm just trying to be strong as much as I can it's almost a month and my incision still bleeding I want to know is this normal? How long do I need to bleed? I'm so dissapointed to all this dr's.does anyone have this experience? Hope all of us will soon feel normal again!
Mary Ann May 7, 2011 8:49 PM
Showering & fluid.
I showered every other day with The bag and did not cover it. Just use lukewarm water and don't stay into too long. My appliance was a ConvaTec Sure Fit which I had very good luck with changing about every 4-5 days. I had it a year and only had a few seal that broke thru at night maybe about once a month.

I had fluid pockets about 10 days after my initial emergency surgery needed to go back in the hospital had to have a surgical procedue to place a drain which was in for about 4 days. It wasn't painful just another appliance to carry around.
Shelby May 7, 2011 10:58 AM
Dear Cindy/Rob and Nancy Wall:
Cindy/Rob.... I'm happy to hear the dr. appt. went well. Hopefully you are out of the woods and things are all positive from here on out.

I had terrible back pain in the weeks following my reversal. I was told it's from a weak core/abs, since the muscles were severed and what muscles are left aren't really being used. So pretty much... my back was SORE bc there are no core muscles to support the back. It all got better though. No more back pain and I've been doing super light ab training, with the ab muscle I have left.

Time will heal those 2 bad spots along with everything else. I hate telling you that, bc that's all I ever heard, but it's true. I got so sick of people telling, "It will heal with time." Be patient and hang in there.

Keep on moving forward in a positive manner.

Nancy Wall..... I think it was a good decision to wait the 2 extra months. It stinks to have that dreaded bag, but life will get better soon. I so wish I could rewind time and have waited 6 months.. my personal impatience got the best of me.

Ahh.. the good ole dreaded days of limited and timed showers, with "the bag!" Everyone finds their own lil ritual. I always timed my showers with a wafer change. The shower/ water won't hurt the actual stoma.

If you're trying to conserve wafers or lessen the wafer changes, I used to face my belly opposite of shower spray, so wafer wasn't in direct contact with the spray.

Be patient, keep your chin held high, and stay strong and positive.

Shelby....
Nancy Wall May 6, 2011 12:31 PM
Surgery the End of June
Thank you for your support with my post. My follow-up appt with the surgeon resulted in having my reversal surgery two months later in August versus June. That will be 6 months after my emergency surgery on Feb 27, 2011. I feel more comfortable waiting, as I would have healed better than if having the surgery at 4 months.
Shelby, my name is Nancy Wall. I live in Hopkinsville, KY. My email is nancy.wall@yahoo.com.
Nancy Wall May 6, 2011 12:13 PM
Follow-up visit Surgery Date Changed
This site has been very helpful. My follow-up appt went well. I asked about 10 questions about the surgery procedure. I rescheduled my reversal surgery date to the end of August. That will be 6 months after my emergency surgery on Feb 27.
This means that I will have the bag for 2 more months, but caring for it has not been that bad, as I have been changing the wafer and showering twice a week.
My insurance is very good about paying for my supplies. How do some of you do when taking a shower with the bag on? I have been covering the stoma which has the wafer and bag attached with a piece of plastic and duct tape. I tried using the waterproof tape, but it did not stick. I change the duct tape each time I shower.
Any other recommendations would be appreciated. My name is Nancy Wall.
Nadine May 5, 2011 10:35 PM
To: Reversal in June
What they did for my husbands reversal was put him on a clear liquid diet for 2 days before. It started at noon so we made sure to have a good breakfast so he would be ok the rest of the day. At 6pm that night they had him drink 10oz of the magnisium citrate.He was literally in the bathroom like every 10 min as soon as he was done it would fill up and back he would go. Finally it settled down about midnight. Then the next day just clear liquids and then stop everything at midnight the night before. He had his done on the 21st and is doing really well! Some people dont even believe that he just had surgery because he doesnt even look like it, Things were slow at first but when they started they went well! GOod luck with everything!!!!!! --Nadine E.
Cindy Munch May 5, 2011 8:40 PM
Rob Update
Hi All,

Things are going very well at this point. Rob is doing better every day. We went to the doctors on Monday the 2nd and the doc wasn't concerned about the CAT scan showing fluid in Rob's pelvis. He said everything looks good and no fever. Shelby, thanks for what you said in regards to your experience and only having a slight fever. Then all hell broke loose with you.. I am really keeping an eye on Rob because his back is now starting to hurt him. He has those 2 bad incision spots and one is worse than the other. I will keep you all posted as things progress
Shelby May 5, 2011 4:14 PM
Dear Nadine E and Reversal on 4/25/11
Nadine...

I never had a fluid pocket like that, so I can't really help ya.. sorry. If he had a CAT Scan and it's fluid.. It's prob not good news, unfortunately. It it's bad fluid/infection, hopefully they can put a drain tube in for easy removal of fluid and maybe some antibiotics. I hope it's nothing extreme to deal with.

Best wishes to you.

Reversal on 4/25/11... I'm so glad to hear things are well for you. Waiting 3 months is a short amount of time.. It's great things are well for you. My dr. did the same. He left my stoma site open in case there was any remnants of fecal matter, thus causing infection.

Stay strong and keep healing.
Tammy May 4, 2011 7:05 PM
I had my colostomy reversed 4/25/11
I just found this post about reversals, been looking for one for a while but most of them are not current. I am finally relieved to have had the procedure. I had an emergency colostomy on 1/27/11, and 3months later the reversal. I can say it was truly challenging physically but especially mentally living with that bag. Thank God for my loving family & friends I was able to go out and go back to work temporarily before my reversal. I am in lots of pain since the surgeon did try to do it laparoscopic but had to open up my original incision again and decided to keep my stoma opening, open for now. He wanted to prevent infection and wants it to close on its own but he did offer to stitch it up a bit since its too wide open for me to clean and deal with on my own. Right now I have a nurse come everyday to clean, and patch it up for me. I can gladly say my appetite has gotten alot better, my bowel movements are pretty regular and because of the pain killers that can cause constipation I am also taking stool softeners. It's pretty cool to finally use the bathroom normally and toilet paper for the right reasons..lol.. Goodluck to all and God Bless..
Darlene May 4, 2011 12:53 PM
RE: Scheduled for Reversal Surgery the end of June 2011
You will definitely want the open end bag for the prep! I've already had to prep for 2 other procedures. I've experienced gushes of liquid frequently. As for the actual prep, my dr has me on a clear liquid diet for 2 days prior to surgery. The day before, I have to drink 2 8oz bottles of the liquid stuff. I can't eat anything after noon time that day, I believe. (I don't have my instructions with me to look at, but I think that's what I remember.) Your dr will give you instructions to follow. I wouldn't worry about starting a week before it. You might easily become weak. You'll want to be as strong as possible prior to surgery.

As for questions, I asked what the procedure would involve, how the attachment would be made, how long to expect to be in the hospital, etc. I wanted to know good and bad. I can plan for worst, but expect the best.

I hope your follow-up appt went well. Were you able to schedule surgery? Mine is on the 23rd of June. Good luck! Keep us posted on your progress.

Darlene
Sue May 4, 2011 11:01 AM
reversal surgery
Hi everyone, it is Sue.
In my case, I was suicidal after finding out I had a bag on me! I wanted to get rid of it immediately and I did not care if I died or not as I was given my last rites in the hospital being peritonitis had set in and I was in the ICU for weeks.
Regardless of what others may hope for or want, I knew what I did not want and that was that horrible bag.
I got rid of it quickly despite my already failing health. To have waited longer would have meant I would have had to wait even longer to DX the inguinal hernia I had that was "missed" or whatever the excuse was. It was strangling my large intestine! Such idiots, all of them!
I have few options where I live, there were no "support groups", etc. All I got was a two bit video on a cart shown to be at the hospital with some guy on there saying how happy he was with his bag and a woman with a baby and a bag on her that matched her skin perfectly. She was happy as a clam too.
This surgery has left me a butchered up mess and permanent pain and scarring. What a nightmare is all I can say.
They said it would take up to 18 mos. for me to heal after the inguinal hernia surgery this past August. I have permanent nerve damage from that surgery (a sharp pain shooting down my left leg).
We do what we need to do. Whether others agree or not is none of their business IMO.
re: Rob, glad he is doing better. Probably the opiates had his system slowed down/constipated is my guess as things began to move when he cut down on the Dilaudid is my thought.
Shelby May 4, 2011 10:08 AM
Dear Reversal at the End of June 2011:
Hi... Your 1st 2 questions are good... How many reversals has he done and will it be laproscopic.

Having it done 4 months after the initial surgery is uncommonly soon, from what I've learned from this site and my own encounters. It is imperative that your body has healed up physically from your initial surgery, especially after your colon flipped and became abbcessed.

Don't worry about the colon prep. It's easy bc you just empty the bag and don't have to worry about your "bottom" being rubbed raw. Definitely use a drainable bag, bc you'll empty it often.

I've learned that many dr.s practice different techniques from this site.

1. If it's not laproscopic, where will he do reconnection from (through stoma site or vertical incision on abdomen)?

2. How do they reconnect it and how will dr. know the reconnection is proper.

3. How are they sure the colon won't flip/ twist again?

4. Any special diet, post reversal and how soon will they have you eating solid food?

5. How soon do they plan to discharge you?

6. Are they confident initial surgery has healed and is your body ready, after only 4 months?

7. Any possibilities of blockages after the reconnection?

8. Will they totally staple up incision of leave some open for drainage purposes?

9. Will there be post op antibiotics?

Make sure you feel confident with your dr. and that they aren't rushing things. Ensure that you are personally ready mentally and physically. Make it a point to be in good physical condition, so it helps with the post op rebound.

Consider vitamins, Ensure and lots of protein for the healing process. Protein is good for new muscle tissue.

By the time you read this, you will have already had your 2nd follow up.

Keep us informed, and ask any questions that come to mind.

May I ask your name???

Shelby...
Nadine May 3, 2011 5:07 PM
Fluid Pocket
So we went ot the ER the other night because he was having alot of pain where the colostomy was. Well they did a CAT scan and they said that he had a pocket of fluid that was building up in there. He goes back to the surgen tomorrow so we will see what happenes. Has anyone else had that problem?? ----Nadine E
Shelby May 3, 2011 3:35 PM
Dear Cindy:
Hi Cindy.. It's Shelby...

NOT the news I wanted to here!!!

I would think bowel movements would be regular, even if they are small or watery. Mine were. I'm sure Rob's on a solid food diet???

As far as the 2 non-sealed places on his incision. Keep an eye on them. My holes started to "tunnel," as the nurses called it. The technical term is a "dehiscence." It's nothing extreme to worry about. It naturally happens with large wounds.

As far as the CAT Scan, I'm hoping for good results. I know the strories are long. I don't have enough space to express my thoughts.

Demand answers.. be pushy like they pushed you out of hospital. Having no fever is a good sign. I had a fever of 99.7and the dr. brushed it off. I went to ER, had CAT Scan and they found an enormous pocket of infection in my lower left back. I ended up with a drain tube on my side and another surgery. I'm not trying to be negative, but instead, give you input so you can ask dr.s what the heck is going on.

I'm hoping for some positive feedback on your next post. I'm with you in spirit.

Shelby...
Darlene May 3, 2011 12:31 PM
JoDee??
I am assuming the May 1, 2011 6:10 PM post was by JoDee just by some of your comments. If I'm wrong, I apologize. Anyway, I'm glad to hear you're ok. I've heard so much about the storms and all those who lost lives down your way. It would be nice to think we're done with all that now, but that might be a bit too hopeful. Are you and your neighbors getting enough help taking care of all the damage? Glad you're ok!!

Darlene
Nancy Wall May 2, 2011 4:10 PM
Scheduled for Reversal Surgery the end of June 2011
I had emergency surgery for a perforated colon from diverticulitis on February 27, 2011. My colon had flipped at the descending and sigmoid section. Also there was an abcess.
I go back to the doctor this Wednesday, May 4 for the 2nd followup appointment. My plan is have my reversal surgery the end of June, which will be four months between the initial surgery/ .What questions should I ask my surgeon. The questions I know I am going to ask is how many reversal surgeries has he performed and will he be doing it by laproscope. When I have to do the colon prep for the procedure, how bad was it? I was planning on using a open end pouch, so that I could empty between the bowel movements. Right now, I am using a closed end disposable pouch. I plan to be on a soft diet the week before the prep. Are there anymore suggestions? They was be appreciated.
Shelby May 2, 2011 10:03 AM
Dear Cindy:
Dear Cindy... It's wonderful hearing of Rob's Movement!! I KNOW that a huge weight has been lifted off both of your shoulders!!

It is kinda neat that you can now help others in need of mental support, even though you're still in the mental (Rob in mental & physical) healing stage. I went through hell (as we all do) and make it a point to support others, as much as possible. When responding to you and others, I think of my personal ups and downs, during healing. Supporting others has helped me heal mentally. When someone/ you post a thank you, I know I've helped another.

I can't believe it took him 12 days to pass something.. perfect example of how our bodies differ. It took me 6 days for 1st one.

I hope that incision is healing up well!!!

Take care Cindy... May all things go well for you and Rob.



Dear Illeostomy Patient... I have no input on ileostomies, however I think all the interior plumbing is repaired in the same manner as colostomies.

You need to demand answers!! You have the right to know what's going on. It's your body. If he doesn't answer your questions, I'd consider a new surgeon.

Good luck on everything.

P.S.. Can everyone please include their names on their posts??? Everyone is posted as "anonymous."
Cindy Munch May 1, 2011 10:46 PM
Hi Everyone - It's Cindy
So It's Cindy talking. Don't know what's up with this site,,, but they are still letting us contact each other.. Rob I feel is out of the woods but the doctor called EARLY Friday morning and said he FINALLY read the CAT Scan "long story' but he sees some fluid deep in his pelvis. OK,, so now what does these mean?? We go back to Doc on Monday afternoon. Rob has no fever, pain is still here, mostly in the wound site. He has 2 places that the wound has not sealed and is releasing lots lf fluid still. He has had a few bowel movements but now it Sunday and he hasn't had a movement since Friday afternoon,, So here I think we are out of the woods,,,,,, are we really,,, Until next post,,,, good luck to everyone out there,,,
JoDee May 1, 2011 6:10 PM
Cindy and all
what is up with this site and the anonymity? Anyway, Cindy and Rob, I am soo excited for you both. Sounds like things are getting back on track. That is such a wonderful feeling! And, yes the people on this site helped me and I in turn want to help out anyone if I can. So, you need to do the same. Shelby and I have grown close and found that helping give others insight is also a way to help our own personal growth. Sorry I haven't been on, but I'm in Ala and the tornado hit the homes Literally in my backyard. Had no power, and alot of damage, but I am here. Feeling extremely lucky AGAIN.
Darlene Apr 30, 2011 11:32 PM
RE: Questions...ilostomy
No answers from your dr? Maybe he/she was having a bad day. You could try asking your questions again to see where you get. Myself, I think I would be contacting a new dr. I got extremely lucky with mine. He really is a gem. He's answered all my questions and then some. It's your body and your decision. You should feel comfortable with your dr - especially for major surgery. Good luck, I wish you the best!!
Darlene Apr 30, 2011 11:19 PM
Colostomy Reversal posted Apr 27, 2011 2:11 PM
I will be having my reversal after about 9 1/2 months. It's not as soon as I would have liked, but it has given me more time to prepare both physically and mentally. My dr said it could be done 3-6 mos after the initial surgery, but he really didn't want to do it before 6 mos. I had to have a barium enema and a colonoscopy to be sure things looked good for the reversal. The colonoscopy was just to be sure I had no cancer and no more affected colon. I passed both with flying colors.

I believe you should decide for yourself what is best for you, but I do believe it is better to wait at least 6 mos. I think you will know when you are ready. Don't let your dr rush the surgery, if you're not really ready. You will likely do better, if you are prepared and comfortable with the timing. Good luck in whatever you decide.

Darlene
Nadine Apr 29, 2011 3:13 AM
RE: Colostomy Reversal Surgery
My husband had his reversal after 4 months. they wanted to wait 6 months but since his stoma was recessed the hole was just closing up and he couldnt wait any longer. you want to give your insides plenty of time to heal. What his surgen was saying is that if they go in and he wasnt healed that they would have had to move the stoma and then he would have to have it for life since there would not be enough intestine to connect. its kind of one of those things that the longer the better. arounf 6 months is a good time (usually). My husband had his reversal on the 21st and it went picture perfect. He only had his for 4 months and he is already out of the hospital and feeling good. There is still the pain of the cut,staples and retention stiches but other than that no complications. it took 5 days to pass gas and then the next day he had a bowel movement. Small but it was there. You will know when the time seems right for yours. just make sure you give yourself time to heal. Its better to have the bag for a little longer than risk the surgery and it not work. ---Nadine

P.S. Cindy how is rob doing??
Cindy Munch Apr 27, 2011 10:26 PM
What a Glorious Day
Hi Everyone,

So here is how the day progressed:

Went to the Surgeon's at 12:00pm. Dr took the remaining staples out and released a BUNCH of liquid from Rob's incision. Packed a couple of spots with gauze. He said we shouldn't be to concerned, just keep it dry. He felt some soft stool in his colon but still didn't know why he hadn't passed a bowel movement. He sent us to go get a cat scan.

After 2 hours at the imagining place (drinking the barium) and finally finishing the CT and went home. Dr was suppose to call us with the results and never did... But at this point I don't care,,,,, ROB HAD HIS FIRST BOWEL MOVEMENT ABOUT AN HOUR AFTER WE GOT HOME!!!!!.

I know you all know the feeling and how excited we were. Today was day 12... I really feel today is the first day we are out of the woods. I'm sure the Dr will call tomorrow and say he saw no blockage, Rob will tell him he had a movement and life will begin to start again. I will never take things for granted again. This was truly an eye opener.

I will be on this site for sometime to come, helping others through anything I may be able to help with and getting help from all of you here. I can't tell you all enough how much you have helped me. You all are truly a GOD SENT.

As for the person that asks the question: "how you all knew when to have your reversal",,,, that is such an individual question. Rob's surgeon said these are some factors:
1. Age
2. Over all health
3. And mentally ready

He said the longer you wait, the more scar tissue you build up, you don't want to let the rectum sit unattended too long.

BUT Rob just told me,, if he would have ended up back in the hospital, he would have totally blamed it on not waiting and thinking he rushed things.

Good Luck Everyone.
Mary Ann Apr 27, 2011 7:16 PM
Reversal
I waited 11 months for my reversal and had no complication. I wasn't released from hospital till I passed gas, had bowel movements and could tolerate a low fiber diet for two days.
Make sure your fully recovered before your reversal. I never had any problems with hernia's but was very careful about not execrating myself and did not lift anything over 10lbs for 3 months. Both my surgeons are excellent.
Shelby Apr 27, 2011 6:42 PM
Dear "whomever"... bc this site is giving me any names.
To whomever...

First off, I would say your mental and physical state play a role in your decision of when to have it. You've got to be prepared in both ways.

I definitely recommend waiting 6 - 9 months (or more), so your body has had a substantial amout of time to heal.
I had my reversal after 3 months and regret it. My surgeon and I were eager to have it done. My body wasn't fully healed, after the 3 months, and I experienced a big setback... Every staple ended up pulling lose, but fortunately the reconnection went well.

Trust in your dr., don't rush your reversal and decide on it when your mentally and physically ready.

Feel free to ask any questions. Keepus posted. ... Shelby
Debbie Apr 27, 2011 6:36 PM
Questions...ilostomy
Not many of my questions were answered by my drs. I went in to have a lung partially removed because of cancer and came out with an ilostomy. I was in the hospital for a month and a half. They say they will reverse mine in 5 more weeks. Wonder what I'll come out with then????
Shelby Apr 27, 2011 6:26 PM
Dear Cindy and Darlene:
Hi.. This is Shelby. First off... This site is being goofy. I'm not getting any names of who's posting comments.

Cindy... I hope things are going well. I'm so glad I could provide you some useful knowledge. Been in your husbands shoes, so I try to support anyone I can.
How's that incision healing up???

Darlene.... I too laugh about my belly button.. LOL!!! My stomach is one heck of a mess, but I'm proud of my wounds.

9 1/2 months is a good deal of time to fully heal, so you'll do just great!! June will be here fast, so start getting in shape.. some exercise and all that good stuff.

Yeah.. the seatbelt that saved my life, almost took it as well. I had mine reversed after 3 months and things went terribly wrong, bc my body wasn't fully healed. My 1st surgeon, and 1st operation was done as you mentioned... the bad section of colon cut out, reconnected WITHOUT colostomy. It ended up pulling lose, causing massive infection and for me to have another surgery WITH colostomy.

It is really good that you are trusting your surgeon. Trusting him will make you so much more confident. He seems to not want to rush things. You sound as if your in a very positive mental state and ready for it. Keep that frame of mind.

Good job on lowering your cholesterol and BP!!!

P.S.. I'm a professional chef, so it's terrible that I haven't prepared high fiber foods. I'm a young guy and dread cooking at home. LOL

Stick around and keep me posted, Cindy and Darlene. Include your names, bc this site isn't giving names.
Carol Apr 27, 2011 2:11 PM
colonostomy reversal
Would like to know how you all knew when to have your reversal. My surgeon in Fla. said 3 months, but now that I am home they are telling me 6-7 is the norm! I don't want to get it done too soon for fear of it not being ready. I have no idea what I am in for and it was interesting reading some of your posts!
Darlene Apr 27, 2011 12:21 PM
Shelby
Shelby: I figured the lack of a belly button was of little concern, but it was just so funny that it’d been one of my 1st thoughts after surgery. The things we don’t think of, huh? LOL!! Anyway, when I have my reversal, it will have been almost 9 ½ months since the initial surgery. The dr wouldn’t consider doing it any sooner than 6 mos really. He had said 3 – 6 but said the longer I waited the better it might be. I decided on June since my son will be out of school. It works better for us both. Wow! So a seatbelt caused your problems, huh? My dr had mentioned he could’ve cut the bad section of colon out and reconnected me instead of giving me the bag, but he wasn’t comfortable with it. I’d already been thru so much, and he’d had better success doing the surgery in more steps. I actually appreciate his decision. He may be a young dr, but he really seems to have a great handle on things. I feel very comfortable putting my life in his hands again. Shame on you for not getting more of the natural fiber in your diet! (That’s the mom in me!) That seems to have been one of my problems, but not anymore. I’ve changed my eating habits which has already made a difference in my cholesterol levels and BP. I figure the dr will have me on a low fiber diet again at the beginning then slowly increase my fiber back in. I have to remember to ask him just how big around these staples are going to be. I certainly don’t want blockage issues with them! I sure hope this posts. I’ve been having trouble getting them on here. Thanks for all the input! - Darlene
Nadine Apr 26, 2011 3:37 PM
Yay!
Finally after 5 days hes had already 3 bowel movements. They were very small but none the less they wree there. The Dr. just put him on a clear liquid diet so hopefully he can move up from there.He still has the JP drain but hasnt produce much from there. Hopefully he cna get that out soon.
Shelby Apr 26, 2011 10:39 AM
Whomever had reversal on the 21st...
I'm not sure whom I'm responding bc my computer is being goofy.

I'm finding out dr.s practice differently, and we all have different bodies that act differently.

I would think he should be starting clear liquids soon, but mybe they're waiting to take NG out.

At 1st, they didn't give me an NG tube. Then, I had a very "sour" stomach (like heartburn), so they gave me one. I had the NG for like 3 days, after reversal. I think stomach acid just sat in my stomach, bc the bowels weren't working. As I told Cindy, they gave me a pill to "wake" my bowels up and get them working.

Let's hope "passing some gas" comes very soon. It's easy for me to say, but be patient. I know it's nerve wracking waiting for the 1st bowel movement. I had my reversal on a Thursday and had my first movement the following Wednesday.. 6 days til 1st movement.

Stay positive for your husband, care for him, be observant, make sure they keep that incision clean and keep on dr.s and nurses butts about stuff. Don't let them brush you off. I wasn't pushy, my nurses got lazy and it caused me a setback.

It's now been a couple days, since your post so I'm hoping some changes have occurred, such as: NG removed, on clear liquid diet, some gas and/or using the toilet. Keep us posted and ask any questions. Take care... Shelby
Shelby Apr 26, 2011 10:09 AM
To all:
For some ridiculous reason, everyone on this site (on my computer) is showing up as "anonymous" and there aren't any names, so I have no idea who I'm responding to, so I'm just rambling.

That's so funny! I too told my dr. I was on this site looking for answers, and he got SUPER PISSED at my questions, the info I was getting and of negative things that have happened. My dr. is also old school and stubborn.

Dr.s are too pushy and want you out of hospital ASAP. Sadly, I think it's bc of insurance reasons and costs. I was also told it's for infection control, since there is alot more bacteria/germs in hospital, rather than one's home.

Cindy... I KNOW it's nerve wracking, but try to be patient and don't get upset (easy for me to say). Still be observant of Rob and keep on the dr.s butt about stuff. Remember.. passing gas is a great sign!!

I too was told the pain meds cause constipation, but I still took them.They gave me a pill to "wake" my bowels up and to get them working. Are they giving him such a pill???

There was ALOT of drainage from my incision. At one point, I was standing, shaving and the dressing literally fell off my stomach, not being able to bear the weight of excess drainage. Keep that incision clean. My dressing needed changed 2X a day.

Keep a close eye on his body temp. A high temp sometimes means infection. I found out hard way.

Things will be good. You're taking good care of Rob. Be observant and keep on dr.s butt. I'm thinking of ya... Shelby.
Nadine Apr 26, 2011 2:33 AM
Cindy
Oh wow I was just reasons some of the previous posts and we are in very similar boats. My husband and I had gone to go eat on Dec. 15 and when we got home he had a terrible pain in his stomach. It got so bad we called 911 and when we got to the hospital they said it was diverticulitis with a perforation. They tried to control it with meds but finally on the 21st of Dec. 2010 he had the surgery. He spent 5 days in ICU because they didn't know if he was going to make it. He got out on the 25th and we were discharged on the 30 th 2010. And now he just had his reversal on the 21st. My husband is 43 so it was pretty hard on him even more so on our 3 little ones under 5. The didn't know where daddy was or why he couldn't carry them. Just thought I'd share our story since it was so similar to yours. :0)
Nadine Apr 26, 2011 2:15 AM
Good news
Cindy: Omg every one said the same thing about my husbands surgeon. He is rude and blunt but has a brilliant mind! Lol I'm not to sure why he had the tube but he had it since the surgery. Oh and good news today. . . 4/26 1am he passed gas! I've never seen any one so excited to pass gas before! Lol
Cindy Munch Apr 26, 2011 12:26 AM
Thanks Shelby
Everything you are telling me is very much what I need to hear. I think the hospitals in California want you out sooner than later.. I thought they would leave him in the hospital until he passed a bowel movement, but they said they just needed the gas to pass.

In your remark "Be bold and demand answers. Don't let the surgeon brush you off and act as if you're making a big deal over nothing". THANK YOU FOR THIS. This doctor is old school. Doesn't answer question and got REALLY mad when I told him I was looking for answers on the internet. OH WELL,, where else am I going to get the answers (and he still won't talk)..

Talk to you soon.
Cindy Munch Apr 26, 2011 12:13 AM
Still no Bowel-Going on 11 Days
Hi all...

Nadine: Rob didn't have a tube in his nose this time. Why did your husband have one? Don't worry about passing gas right now, you are 4 days into it and I think it was the 5th day Rob passed gas.

JoDee: I totally hear you about going to the ER. I was going to take Rob this morning but he opted I call the surgeon first.

So here is the latest:

Doctor called and said he's not yet concerned. Rob asked, what are the chances this is a bowel obstruction, maybe the closure has "failed" Doctor said," due to the fact your still passing gas, doesn't believe it's an obstruction issue at this point". He told Rob to try to stop taking the pain medicine (oral dilataded) this will cause constipation. Rob went all day only taking one pill. Then at about 6:00 tonight he HAD to take one. Lots of pain.. I'm telling you, he didn't have this kind of pain the first time around.

This waiting game is getting really old. His incision also is leaking (again Dr not concerned at this point).

He has an appointment for Wednesday afternoon... I will keep you all posted.

PS.. this is suppose to be a GREAT surgeon,, but I will say his bedside matter is HORRIBLE.
Shelby Apr 25, 2011 9:15 AM
Dear Cindy:
You should definitely call the surgeon, now that it's 9 days. I wasn't sure if he was still in the hospital or discharged. I was under the assumption he was still in hospital and had the nurses and surgeon observing him and movements. They made it a point to keep me in hospital until I had a movement.

Now that his incision is oozing and bleeding, it's definitely time to take action and call surgeon. Keep in mind though, bleeding is better than infection. Keep a close eye on oozing discharge. You don't need infection and a setback.

Be bold and demand answers. Don't let the surgeon brush you off and act as if you're making a big deal over nothing.
Nadine Apr 25, 2011 3:40 AM
No bowel movement
My husband just had his reversal on the 21st and still nothing. He hasn't passed gas or had any kind of bowel movement. They still haven't taken out the NG tube from his nose and still has not had anything except for IV saline since the surgery. Not sure what to think right now.
Cindy Munch Apr 24, 2011 7:18 PM
Thank you Shelby and Sue
I hear both of you. Each person is different and just by listening to your responses it helps me to know I'm really not alone in this whole mess. Rob is resting comfortable right now,, and if we can just make it to tomorrow (when I will be calling the Dr) hopefully he can shed some light on this. I will keep you posted after tomorrow..
JoDee Apr 24, 2011 5:56 PM
Cindy
I'd go to the ER ASAP. Not to concern you, but 3 to 4 days is normal. Even tho he is on a clear liquid diet something should be moving. If there is pain, there is something wrong. Please keep us posted.
cINDY mUNCH Apr 24, 2011 5:15 PM
Should I be concerned
Hi, It's me again Cindy.. Well I am very concerned now. It is Easter Sunday, 9 days after the colostomy reversal and still no bowel, pain is starting to get more intense and one part of Robs stitch area is bleeding and oozing. At this point in his initial perforated surgery the after math was much better. He would be eating grilled cheese sandwich's and soup. If we don't go to the ER sooner, I will be calling the surgeon tomorrow morning. I will keep you all updated. HAPPY EASTER ALL...
Sue Apr 24, 2011 10:44 AM
Cindy -
Cindy, I would take my husband to the hospital. Something should have happened by now! They don't let people go home from the hospital if they don't pass something first (at least around here anyway). I don't know where you live but I was told if nothing happened for THREE DAYS that I could have a blockage. Luckily, it has never gone that far for me but I still use stool softeners and Miralax when needed. I would consult with a doctor ASAP!
Shelby Apr 24, 2011 8:45 AM
Dear Cindy:
Hi Cindy Munch... I truly wouldn't be very concerned, but I'm not the dr. It's very good to know he's passing gas. That means his digestive system is working and things are moving through. The bowels litterally have to "wake up". They gave me some type of pill to wake them up and get digestive system working.

My personal belief is that his system was totally flushed of all matter presurgery and needs to get some food in him to have one. Has he been eating any type of solid food??? It may still be early for that.

I was so loopy on pain medicine, at the time that I can't quit remember how long it took for the first movement. It was approximately 6 days. I do remember how happy I was to have it.

I do remember also that the dr. was very happy to hear that I passed gas. It's a very good sign he is. When he gets some substinence in his body, things will soon get better.

Nourish his body and get vitamins and protein in him. Protein is good for muscle tissue. I personnally took protein powder shakes. You can find protein powder anywhere, including GNC. I also took "Ensure". All my dr.s recommended that.

I hope things move along well. Take care and stick around. Hope I could help.

Shelby,
Cindy Munch Apr 23, 2011 10:10 PM
should I be concerned?
Hi everyone, Thanks again for all your comments & advise. Taken with open arms. Can anyone out there tell me if Rob should be concerned that he still has not passed a bowel movement? It's now been 8 days since his surgery. He is still passing gas, been on clear liquids, and no sensation to go. Is this normal?
Shelby Apr 23, 2011 2:16 PM
Dear Darlene:
I meant to bring up another point. I think you are having your reversal in June???

I was wondering the time frame from when you had your colostomy put on to when you'll have it reversed???

It was only 3 months for me, from when colostomy was put on to when it was reversed.

This, I unfortunately know now, was a mistake. Both, my surgeon and I, were both eager to have reversal. The incision from my reversal had not enough time to fully heal, so when I had reversal the skin was 'thin," thus causing my staples to pull out. This and the nurses not changing dressing caused my setback.

Just wanted to bring that point up. It's hard to explain, but I hope that made sense.

Point being: I had reversal surgery done before the colostomy surgery was fully healed, which caused major problems.

I now wish I would've waited 6 months to a year before my reversal. I trusted the surgeon's decision and that he knew what he was talking about.

Take care...
Shelby Apr 23, 2011 12:47 PM
Dear all:
I'm finding out surgeons have many different practices, thoughts and techniques.

My scars, like all of ours, are an eye opener and nasty. I cherish them and think of where I've been in life... Like JoDee says.. Keeps me grounded too.

Darlene... Not having a bellybutton is the least of my worries.. haha!! You REALLY seem to be educating yourself. I REALLY wished I would've. It was very interesting to hear of reconection and air bubble theory. My colon was lacerated from seatbelt in auto accident. My 1st surgery was emergency (w/ NO colostomy) and reconnection tore lose causing massive infection from fecal matter draining into me. Wished I would've knew & asked about air bubbles.

They may have you on a restricted diet directly after surgery (no nuts, popcorn, seeds & hard to digest food). You don't want firm "movements" to interfere w/ staples and don't want to be "pushing" hard with act of "going."

Months after reversal, I take Metamucil (fiber) bc of diarrhea. Jodee takes softeners. I don't get alot of natural fiber though, bc my diet stinks.

I too was on a wound vac for 8 weeks, and it works WONDERS!! They only put it on after my staples pulled lose.

Cindy... Keep being the good support you are. Make sure they keep that wound clean. You don't want infection or "tunneling" of the wound. JoDee said it right... Focus on being a positive factor for your husband, no matter how irritating things may be.

Jodee... Keep on being strong... Like you always have! I know that black cloud always appears. Youre a great person and supported me through my whole ordeal.

I still havent returned to work bc its my own decision not to. I will within the weeks coming. Now.. I volunteer at the hospital escorting patients. One thing that irritates me is... My surgeon put me on NO lifting restrictions. I work in culinary arts and sometimes unload up to 300 cases of stock a day. We'll see where the near future takes me.

Thanks for your support as well and being a good friend.
Darlene Apr 23, 2011 12:29 AM
Sue & Shelby
Sue – Sorry to hear you had such troubles! I do appreciate your sharing, though. I truly do want to know the good and bad so I can be fully prepared. My vertical scar is just about exact center – just slightly right of my belly button. I’m single and 46, but I don’t get upset about the scars. I’m alive…I almost wasn’t. I guess I’ll have to study up on scar tissue. I’m glad you’re doing better.

Shelby – Thanks for the input on the hernias. I hope I can avoid them, but I know now they’re a possibility. My stoma site will be fully closed, as the larger incision will be left open for drainage. Sorry to hear about the belly button! After my 1st surgery, I thought I’d lost mine, too. After much of the swelling went down, and as the incision healed, it made an appearance. May be trivial, but I was glad. lol

Thanks, all, for the information, thoughts and well wishes!!
Darlene Apr 23, 2011 12:28 AM
JoDee
JoDee – Thank you so much for the information. I do so appreciate it. I’m currently having some problems with coughing due to sinus drainage. It’s been a week now. I was getting some pains that were starting to concern me. I even had nightmares that my insides were coming out thru the stoma!! lol I now have some powerful cough syrup.

My surgeon plans to reopen my abdomen at the original site (like Shelby). My reconnection is really low in my pelvis area making it difficult to stitch. I’ll get round staples that’ll be placed on each end and lock together. Now I wonder how big around they’ll be and if it’s something I have to keep in mind forever. I mean, will I have to keep my stool soft so it doesn’t get blocked? I’ll have to ask about that next time. I was also told my wound will likely be left open again. I think I’m ok with that, considering the issues some have had with the staples. I’ll take the wound vac over them! I may end up with a temporary ileostomy to avoid chances of leakage. I was told they’ll fill my cavity with water, insert a balloon up thru the bottom to just above the connection site, fill me with air and watch for bubbles to know if there is a good ‘seal’ or not. I’m more informed than I was with the first surgery since it was an emergency. Some don’t like so much info, but I find it more comforting than scary.

It isn’t silly to look at your scars and thank God you’re alive. I don’t like them, but they are a reminder of what almost was. I’m thankful too!! I wasn’t ready to leave my 15 year old son!

I’m feeling stronger both mentally and physically. I’ve lost 20 lbs, but I’d really like to lose more before surgery.
JoDee Apr 22, 2011 2:38 PM
Cindy and Shelby
It makes me so mad to hear about the hospital's screw up! There have been sooo many people on this site that have come and gone and so many were in the situation that they were because of someone's error. After getting to know Shelby and all that he went through because of negligence, I often wonder...who are these idiots? Keep the positive attitude that Shelby and I remain to have...no matter what, it helps. I know there will be plenty of times that you just want to give up or become "sour" in the mouth, but don't. Take that energy and help your husband to keep his emotions and attitudes positive. Keep us posted, and please stay strong!
Shelby, I know, I am so excited! As you know, there will always be that little black cloud over our heads reminding of what could happen, but the relief that I am feeling right now is beyond imagining! Yes, I have diver and that is why I will remain watching what I eat. Which is just fine with me. I will do whatever it takes to not go backwards! How is your progress going, I know you were getting stronger the last time that we talked, but I forgot to ask you about work, etc. Thanks to you for your friendship and support.
Shelby Apr 21, 2011 4:30 PM
RE: Colostomy Reversal Surgery
Jodee... I'm SO HAPPY to hear things went well!! Take a nice deep breath, relax and enjoy life to it's fullest! I think you had diverticulitis??? Do you still have to watch your diet because of it possibly returning???

Darlene.... Your questions aren't silly at all. I wish I would've been more knowledgable and informed when having my reversal. As Sue said, hernias (I'm finding out) are very common from all the muscles being cut and/or weakened. After reversal, my dr. "PARTIALLY" staple my stoma site together. Dr. wanted it "partially" open for drainage, since there is a chance of remnants of fecal matter, thus causing infection. I don't have to tell you to ask dr. all questions... educate yourself from this site and ask your surgeon. They did my reversal through abdomen. Jodee had hers done through stoma site.

Sue... I understand about the scar tissue. I'm told scar tissue sretches (tears) causing sharp, but bearable pain. Thanks for your hernia input, things are well for me but BIG fear of hernia and another surgery. I too, understand what your belly looks like. I somehow lost my belly button with all that has gone on... I can laugh, but get pissed too.

Cindy... GREAT that your hubby is doing good!! Watch his lifting, but try to get some walking in. Terrible about the soup! Mistakes happen, but an individual should be able to trust their hospital staff and recieve great care. Hopefully his staples hold. I try to stay positive, but feel its necessary to tell of negatives too. I had 26 staples and all of them pulled lose bc I had my reversal too soon. It left a gaping 9x6 inch hole in me belly. Sucked big time!!! I fondly believe it was nursing staff's fault. They weren't changing dressing often, so the "drainage" just sat on the incision causing staples to pull lose.

Take care all,
Sue Apr 21, 2011 12:00 PM
Darlene & Cindy
Hello Darlene: I had the hernia for years and they never dx'd it. After the reversal surgery, the pain was so severe that I could not stand longer than 5 minutes. Finally, after much complaining, I got in to see the surgeon and he discovered it. It is common to develop hernias after abdominal surgery due to the weakening of the muscles in the area. The stoma site is gone - they closed that up when they did the reversal. The scar that I still see is from the bag and a huge vertical scar that splits my abdomen unequally into halves, one side being bigger and fatter than the other. It is very ugly and I hate the way it looks. I'd be mighty upset if I was a younger woman. :(
Cindy: I was in the hospital for 9 days after the reversal and the pain was worse than the initial episode (having that hernia did not help!). I had 25 staples in me too and boy did I ever hurt bad. The recovery has been been very slow; was told it would take 18 months after the last surgery for the inguinal hernia repair which was in August of 2010. I hope your husband recovers ok - it will take time, I can guarantee that much. I too lost my appendix as a result of this mess that I ended up in - it had an abscess on it which led to peritonitis setting in. I should have died but obviously did not. This has been a true hell, that is doubtless!
I'd like to address the issue of scar tissue which is aka adhesions. I had the adhesions before this whole horrible thing happened to me from a prior abdominal surgery in 2003. When they cut me open, they found a wall of solid scar tissue that had to be cut through in order to see and operate on my colon. My insides are filled with scar tissue/adhesions (which can be very painful for life) after 4 major abdominal surgeries - this is quite common and would be odd it it weren't the case sadly. I hope this helps.
JoDee Apr 21, 2011 10:36 AM
Darlene
I think you have wonderful questions (probably because they are the same ones I had...tee hee!) Anyway, I experienced some swelling at one time around the stoma area after reversal, but I had gotten a bad head cold and was coughing and sneezing and it was irritating that area. My surgeon told me that it is NOT uncommon to get a hernia around that area, he really stressed not lifting more than 10 lbs for a long time and just taking physical activity slowly. I was lucky and never actually got one. It is strange to me though that even if I cough or sneeze now, one year later, I still feel it in that area. Perhaps it will always be there, I don't know. It doesn't hurt, just feels weird. As far as the reversal surgery, my surgeon went thru the stoma area with his hands and did the actual reconnection that way. Some have it done laproscopically, so you'll need to find out how yours will be done. I had stitches after the surgery. It was about 5" long and healed well. As I said earlier, I was lucky. My stomach has scars now that it never had before, but every morning when I see them, I thank God I am alive. It keeps me grounded...probably sounds silly, but it really does. I hope that we can help you with your fears, I know this site really helped me. No question is silly, it is your body and you deserve to know what it will be going through and what to expect. Please keep us posted. Are you feeling stronger each day? If you are getting stronger, you will do just fine, my friend. Trust me. You have a couple of months to get prepared for getting your life back as you once knew it. Will be thinking of you.
Cindy Apr 21, 2011 1:20 AM
We are Finally out of the Woods
Hi everyone, It's been a really longggggggg 5 days. Rob's reversal went VERY GOOD. Doctor was able to put everything back together and took his appendix. He has 25 huge staples down his stomach and 5 staples to close the colostomy site. Now for the not so good news. His after surgery pain was almost worse than when he perforated. The finally took him off that PDP every 10 minutes and gave him Dilaudid. This worked very good. Then when they put him on liquids they let him eat cream of mushroom soup. Rob didn't even think it wasn't a clear liquid so he ate it (OPPS - THE HOSPITAL SCREWED UP). He had the worse pain last night with no relief. He was suppose to come home today but they will keep him one more day. He has been passing gas but no bowel movement yet.. We will see how tomorrow goes. Thanks again for everyone's in put.
Darlene Apr 20, 2011 10:34 PM
Hernia Question
I've seen some of the comments about hernias and bulges at the stoma sites. Is this something that everyone winds up with? I've been wondering what happens to the area since so much of the skin & muscle has been removed. How do they close the hole up? And once it's closed, do you have trouble with it for the rest of your life? I know, silly questions when preparing for a reversal, but I just can't help but think of these things.

JoDee -- so how did the colonoscopy go? I trust it went well.

Happy Easter to all!!!
JoDee Apr 19, 2011 9:22 PM
Colonoscopy Results
Had my follow-up colonoscopy this a.m. It went very well. No polyps or problems with the reconnection. I don't have to go back for 5 years!!!! Have to remain very cautious on eating habits and continue to live my life as I have been for the past year. I am sooo excited to get this all behind me. I can't tell you how many times that I just wanted to give up. There is so much emotional and physical trauma with this whole ordeal, that I am convinced positivity is the ONLY way to go.
Shelby Apr 19, 2011 9:34 AM
Dear Sue:
Thank you very much for your input. I often wonder of people's positives and negatives months after a reversal. My surgeon never once brought up the idea of a colonoscopy as a follow up.

I now have a bulge under my stoma area. It is progressively getting bigger and working it's way lower toward my belt line. I'm being concious of my lifting habits. The dr. tells me it's hard to prevent it from getting worse and not to worry about it. Easy for him to say.

Thanks once again. I hope you're doing well.
JoDee Apr 17, 2011 6:52 PM
Shelby
Thank you, my friend, for thinking of me and always being there for me. I am so glad that we have become friends. I go in on Tuesday and keep the prayers coming. To Sue, thanks for nothing! lol Now I am getting worried. Your problems sound a whole lot worse though. I really don't see how you can be all scar tissue and still function, but who am I. Sorry you've had to go thru so much. Again, thank you Shelby!
Sue Apr 14, 2011 5:46 AM
punctured colon after colonoscopy
Hello Shelby & others,
It has been about 1 year and 3 mos. since my reversal. I was advised by my internist that I am likely solid scar tissue inside due to all of the surgeries. He told me not to ever consider getting a colonoscopy as I am at very high risk for preforation of my colon. He then told me he'd continue to check me for colon cancer via a hematocult every year which is just fine with me. I had to drink that awful stuff as a prep for the reversal surgery (called GoLite) and I swore then I'd never drink that stuff again anyway! Ugh!
I am just now beginning to feel a lot better. The last surgery was for an inguinal hernia repair discovered after the other 2 prior surgeries. The surgeon said he could have "missed it" perhaps. Whatever happened I don't know but it was no fun having a 3rd surgery.
Take care everyone and I hope every one is healing up ok.
Shelby Apr 13, 2011 9:42 AM
Dear All recent posts:
Cindy Munch: It's good to know they are doing the appendix too! My initial surgery was "exploratory surgery," which resulted in removal of my colon. During exploratory, the surgeon is supposed to inspect all organs. He didn't... 1 week after being discharged, they had to go back in to remove my gall baldder.

When I read your post about a polyp being removed, and Rachel's bowel being punctured from another surgery, both of you resulting in a colostomy... it's just terrible to hear and I wonder if some dr.'s are truly incompetant. BTW... I'm from small town outside of Pittsburgh, PA.

Beachy: I'm so glad things went well for you! I feel terrible posting negatively and talking of setbacks, when there are positive stories, such as yours. I'm sure it wasn't smooth sailing, since your appendix burst, too. It's some interesting news to hear of how people end up on this site.

Mary Ann Arundale: Great to hear you rebounded at your age & walk that much!

Rachel: It's terrible that you have went through all of this. I remember your previous posts, and it sounds as if you went through the colostomy crap, because a dr.s' hands "slipped."

Darlene: It'll be here before you know it! Start exercising and getting in shape, if you aren't already. During your colon flush, the bag will give your "bottom" a break. You'll be going the old fashioned way soon. Stay positve and Good luck to you!

To all: Please keep JoDee in your prayers. She's a great supporter of this site. She goes in for a follow up colonoscopy. Nobody wants another ordeal like this. And after comments on this site... colon's can be punctured from a simple colonoscopy. It's been 6 months since my reversal, and my dr. never brought up a folow up colonoscopy... makes me wonder.
Darlene Apr 12, 2011 3:02 PM
Surgery Scheduled
Well, I saw the surgeon today. I am scheduled to have the reversal done on June 23rd. I have to prep the 2 days before (ugh!), but then I go in. He said to expect 5 days in the hospital unless things go bad. I'm staying real, but I'm going to be as positive as possible!!! I'm excited and nervous all at the same time! Thanks for all the well wishes!!! I'll keep you posted!
Beachy Apr 12, 2011 11:46 AM
Cindy Munch
My appendix burst, which did damage to my large intestine which resulted in the colostomy bag. Perhaps the Dr wants to remove his to prevent that from ever happening?

I'm in FL by the way. Good luck to your husband.
JoDee Apr 12, 2011 8:37 AM
Cindy
The postings are rarely put up as quickly as we type the comments. So, don't worry about that. Sounds like Rob AND you are ready for this next step. Good luck on the surgery and keep your new friends posted. BTW I am in Alabama.
Cindy Munch Apr 8, 2011 9:27 PM
What's Up
I sent a big reply to everyone,,, Again thanks and I don't see it ever got posted...
rachel Apr 8, 2011 12:10 PM
COLOSTOMY REVERSAL
CINDY, so sorry to hear about your husband but know how he feels, i had to have a colostomy fitted due to an op that went wrong and they punctured my bowel, i had a bag for a year and had my reversal on 8th March 2011 it has now been a month and i am back to work feeling great, the reversal is nowhere near as bad as the actual fitting of the colostomy, they get you up quite quickly after surgery, i did have diarhia for a couple weeks but that soon settled and now it is normal, i wish your husband all the luck for his op and hope he has a quick and full recovery keep us posted Rachel x
Cindy Munch Apr 7, 2011 11:46 PM
A HUGE THANK YOU EVERYONE
Oh my goodness,,, ALL of you are so amazing, "Shelby, JoDee, Beachy and Mary Ann THANK YOU. What a WONDERFUL support group you all are and what a wonderful site this is. This is all so very new to me so I think I have confused you all,,,,,, and me... Rob is having the reversal. I just looked at the doctors notes and he wrote "Closure of divided Colostomy". After this procedure he will have no more bag (we hope). Doctor said they will be removing an additional couple of feet of colon. He was diagnosed with diverticulitis. I think personally, it was the stapling when they did the colonoscopy. They are also going to remove his appendix. Did any of you have yours removed too? I will be checking in with all of you every evening until this nightmare is all over.. Thanks again and thanks for everyone's advise. I will read all these posts to Rob and we will definitely take all your advise. P.S. Rob went to his general doctor today for his pre-opp appt and he is very healthy. I got a good guy here, and I know he is mentally ready. They wanted to do the surgery 3 weeks ago, but Rob told the doctor he needed just a bit more time. Until tomorrow,,, thanks and good night everyone.. If you don't mind me asking, where is everyone from? Rob and I live in Redondo Beach, Ca
Mary Ann Arundale Apr 7, 2011 7:44 PM
Cindy Munch
Good luck to all having reversal I waited almost a yr to have mine, due to be being so sick before my perforation and colostmy.
I didn't mind the bag. Reversal surgery went very good heeled fast. I started walking treadmill 2 weeks after and I'm walking 15 miles a week 3 months later. I have started training for 1/2 Marathon next yr my 64 birthday. Watch diet eat very low fat, limit sugar and especially chocolate. it is nice not to have bag but must be much more aware of your digestive system bowel movements about 8-10 but it is getting lot better. If going long trip I wear depends just for my own peace of mind. Good luck to all.
Beachy Apr 7, 2011 11:47 AM
Cindy
I was in a very similar situation. My reversal was a much better experience than my original emergency surgery. I was in the hospital less than 48 hours for my reversal and was up and walking without too much pain the day after surgery.

My bowel movements went back to normal within days. I know everyone is different, so I guess he'll just have to wait and see. I was very happy to get rid of that bag!
Shelby Apr 7, 2011 10:34 AM
To: Cindy Munch
You're welcome.. I try to provide some feedback, after the past hell I went through.

First off, keep supporting your husband... he needs it. It's great your changing his dressing, because the last thing you want/ need is an infection on top of everything else.

I, too, had a gaping hole in my belly. The hole has finally healed after 6 months. Be patient, it takes time to heal. Rob's body is in "overdrive" trying to heal. Pump his body full of Ensure, protein and vitamins, for the healing process.

On April 15th, is he having a reversal or resection??? Will they perform another surgery, if he still has a gaping wound??? I thought his resection would've been done when they did the colostomy, but I'm not a dr... haha!

It's been 6 months since my reversal. I still have some uncontrolable movements, and it's a TERRIBLE feeling, when going on a long car ride. I take fiber suplements, and it's helped by giving the stool some "body." After the reversal, I think many of us take some sort of supplement to aid in bowel movements. The colon's function is to draw fluid from the stool. Since we've all had some colon remove, it affects our movements. Everyone's body is different and reacts different.

I understand his situation, being on the road. If he has a bag I'm hoping it helps some, since he doesn't have to sit to "go," but still having to empty the bag, is another point. That's why I asked if he's having a resection or reversal. I was a bit confused.

My heart goes out him and you. I will be with him in spirit. Keep us posted.
JoDee Apr 7, 2011 10:16 AM
Cindy
Your story sounds so much like alot of us here on the sight. In good shape, never having any problems and then suddenly we are blind sided with this "huge" life changing ordeal. If, by "resection" you mean they will be doing the reversal surgery, good for your hubby. The surgery itself is nothing in comparison to what his exploratory surgery and recuperation was like (believe me I know). It is the "after" surgery that gets a little tricky. Some people, as did I, have no problems with going to the bathroom. Others have diarhea, constip and so on. My surgeon put me on a stool softner pill to take with meals to keep me from being constipated. I really watched my diet and ate foods that were easy to digest and stayed away from too much fiber. I can't speak for others, but that helped me out immensely. My words to your husband and you are to ask his doctor for his thoughts on this whole process. It's his body and there are never too many questions to ask. He needs to get strong physical and emotionally for the surgery and his rebound will be quick. Shelby and I are great supporters of that last tidbit of info. Good luck and please keep us informed and ask us anything! We've all been there in one way or another. God speed! BTW the incision for me was through the opening where the bag was.
Cindy Munch Apr 7, 2011 1:52 AM
Shelby
WOW... thanks Shelby. I really didn't think "for some weird reason" I would get a response back.. So my husband "Rob' currently has a colostomy bag. It really all started early on in November of 2010. He is a HEALTHY 54 year old guy. He went in for his FIRST colonscopy. They removed a very large polyp. They had to put staples in the area where they removed it. On Christmas morning 2010 he woke with a terrible pain in his stomach. 911 was called and he was rushed to the ER. After exploratory surgery they found his colon had perforated. He was in the hospital for a week. Released with a GAPING open wound and a colostomy. It has really been a eye opener. I came home every day at noon to change and clean the wound. Now they are going to do the resection a week from Friday.. Surgery is scheduled on April 15th. I know he is really concerned about the whole procedure "as am I". His job is in sales, in the car a bunch and I feel is real concern is controlling his bowels after this is all said and done. It's not like he sits in a cubical and has can go to the bathroom as he wants... Thanks for hearing me out..
Shelby Apr 6, 2011 4:39 PM
To Darlene & Cindy Munch
Darlene: Things are progressing good for you. Your reversal will be here before you know it. As JoDee said, start prepping yourself mentally & physically. Get some good exercise in and strengthen your body. You will rebound quick.. it helped me. When the time comes, consider vitamins, protein and Ensure for recovery. My thoughts are with you.

Cindy Munch: This is a great site, so stick around while your husband recovers from his procedure. Your concern is understandable. Please ask any questions you may have... colostomy bag, reversal or resection. I'm wondering if they will or won't put a colostomy bag on him? I hope everthing goes well.
cindy Munch Apr 5, 2011 8:01 PM
Great Site
This is a new site for me. I'm really glad I stumbled on to it. My husband is going in for a resection next Friday April 15th and we are very concerned.
JoDee Mar 25, 2011 3:57 PM
Darlene
Woo Hoo!!! That is such great news that everything went well. It has been a year since my reversal and so I have to have the colonoscopy April 19th just to make sure everything is okay. Please keep us posted on your itinerary. Start working on getting yourself strong emotionally and physically for the reversal and it will be a breeze. I am so excited for you. God speed, my friend!
Darlene Mar 25, 2011 9:33 AM
Rachel & JoDee
Well, my colonoscopy went well yesterday! Thank goodness all is clear...next step is to see the doctor in April. They changed my appt to a week later than originally intended, but it'll be here soon. I hope to be able to schedule surgery at that appt for some time in June after my son is out of school.

Yes, JoDee, you are right...the bag was very nice to have!! It did keep the bottom from being sore!! Unfortunately, I did still have to run to empty, but it was so much better with the bag!! LOL!

Glad to hear all is going well with your reversal, Rachel!! I'll keep you in my prayers. Hopefully, your bathroom trips will slow down soon for you!!

Thanks for your well wishes!! It's so appreciated!!!!
Shelby Mar 22, 2011 9:28 AM
Dear Rachel:
Hi.. I'm so glad to hear that things went well! Keep on walking, so you don't lose your strength. My bowel movements were very often, sometimes 7 - 10 times a day. They were also on the diarrhea side, but have returned to normal.

Keep your spirits and chin held high. I'm wishing you a fast and full recovery.
JoDee Mar 21, 2011 6:35 PM
Darlene
There is one HUGE positive about the colonscope, it means you are that much closer to having your reversal surgery and regaining a normal lifestyle. Also, the prep the day before isn't too bad...it was the ONLY time I was glad I had a bag because I didn't have to sit on the toilet all day long and my bottom never got sore!! lol Good luck on the 24th and please keep us posted.
rachel Mar 20, 2011 5:34 AM
colostomy reversal
I had my colostomy reversal done on the 8th march, i was very nervous due to previous nightmare surgery, the operation went well and i was up and walking the next day, spent 10 days in hospital and am now at home, going to the tiolet alot but they say that will settle in time , good luck darlene for 24th x x
Darlene Mar 8, 2011 12:46 PM
Beachy & Rachel
Beachy - Wow!! I hope my reversal goes as smoothly as yours seems to have!! I still haven't been able to schedule it.

So far, though, everything looks good to have the reversal. I have a colonoscopy scheduled for the 24th. (I'm not really looking forward to that, but it does get me closer to being put back to normal.) If all goes well, it still looks like it will be late June - maybe early July.

Rachel - I hope all went well with your surgery!! I'm nervous, yet excited, about having mine. It's great to hear about all the success stories on here!! I know they haven't all been simple surgeries, but it's nice to know that others who have had troubles still come thru ok to talk about it. It really is comforting. Thanks to everyone!!
Shelby Mar 8, 2011 10:04 AM
Dear: Kristy
Kristy... I'm glad to hear you survived the whole ordeal!

I had my reversal 3 1/2 months after my colostomy was put on. I was very eager to have reversal and "go" the normal way. I wish I would have waited a lil bit longer, to give my body time to heal and recover from 2 prior surgeries.

My reversal went well on the inside. The colon was successfully reconnected, and I was using the toilet within 5 days. After reversal, it was a couple of days, until I returned to solid food.

However, from 3 abdominal surgeries in 5 months, my body and abdominal skin could not bear the trauma of so many procedures. After my reversal, 26 staples pulled lose and I had a hole in my belly that was 9x6x2 inches huge. I was horrified!!

It's now going on 5 months, since my reversal, and I'm doing great!! I was on a wound vaccum for 9 weeks, to speed healing.

Please don't let my comments hinder your reversal decision. Some people have setbacks, some don't. It's the way The Lord works. Even though I had a setback, I'm happy I had the reversal.

Some people encounter: internal infection from faulty reconnection, incisions that pull open and/or become infected or develop a hernia from lifting.

I personally walked and lifted light before my reversal, so I could rebound fast and it worked well. I was up and walking the next day. I felt strong on my feet.

There was obviously pain, but I personally don't think the pain and recovery was near as bad, or long, as having the colostomy put on.

My bowel movements are still rusty, but returning to normal.

You may be able to return to work quick, depending on the type of work you practice. My line of work is physically active, so I opted not to return yet.

Just trust your doctor, write down and ask questions, and if your gut tells you something is wrong... go with your your gut.

That was my story. We all have our own, but releated in some fashion. I hope I could provide some input. You will be in my thoughts.. Shelby
JoDee Mar 7, 2011 5:29 PM
Kristy
I wasn't unfortunate to have been shot, but I too had a horrible experience with the initial surgery. As long as you feel strong enought (mentally and physically) the surgery is a breeze. You'll probably be hospitalized for 3 to 5 days, but most of us have been home within the 3 days and walking around. The incision on the reversal, at least for me, was thru where the bag was and so it wasn't a completely new cut. Good luck to you and please keep us posted. You will find that this is a wonderful site to help you thru just about every thing. ps: I was really worried too, I think it is safe to say that we all were. Hang in there and good luck
Kristy Mar 6, 2011 3:00 PM
Nervous over surgery
I got hit by a stray bullet and so nervous about having this reversal. The first surgery was so tramatic and took me forever to recover and I'm scared this is going to be the same way. Some one help!!!!!! LOL What exactly should I expect?
rachel Mar 6, 2011 8:50 AM
colstomy reversal
Thankyou Shelby and Beachy for your comments, well i go in tomorrow for the reversal so will let you know how it goes thanks for your support x
Shelby Mar 2, 2011 5:08 PM
Dear: Rachel
First off, that's terrible that you even had to have to colostomy, due to the punctured colon. It sounds like an incompetant dr.

I'm hoping your body has healed completely from your previous encounter. I dreaded having another surgery, but was eager to have the reversal. I'm now liking the fact that I can go to the bathroom again, normally.

Things will go well for you. They'll probably want you up and walking, after your surgery, to build your strength. Consider vitamins and protein for your diet, after surgery, to aid in healing (when your able to eat solid food).

My thoughts will be with you, and I wish you the best. Keep your spirits and chin held high and keep us posted.

Sincerely,
Beachy Mar 2, 2011 7:49 AM
Rachel
My reversal was much easier than my original surgery. I had it done one month ago today, I spent less than 48 hours in the hospital and within a week I felt like myself again.

I know others have had complications, but I did not. Good luck and keep us posted.
RACHEL Feb 27, 2011 5:09 AM
COLOSTOMY REVERSAL
Hi all
I Had a cyst removed a year ago which resulted in having my bowel punctured, i was rushed back to theatre and had a colostomy fitted, im due for a reversal on 8th March and am dreading it, but some of your comments are very comforting.hopefully it wont be such a nightmare as the last op.
Lukia Nanunga Feb 9, 2011 4:53 AM
RE: Colostomy Reversal Surgery
Two years back my dad was diagnosed with colony cancel, after sometime the pain increased so he had to go for an operation to over come the too much pain he had. The doctors said that he will be using colostomy bags for all the time now. So, I need some help from any one who can help because we has run out of them and we cant find them here in our country. He really needs them; I will be really very great full for all your help.
Many thanks. Lucy.
Lukia Nanunga Feb 9, 2011 4:52 AM
HELP PLEASE
Two years back my dad was diagnosed with colony cancel, after sometime the pain increased so he had to go for an operation to over come the too much pain he had. The doctors said that he will be using colostomy bags for all the time now. So, I need some help from any one who can help because we has run out of them and we cant find them here in our country. He really needs them; I will be really very great full for all your help.
Many thanks. Lucy.
Shelby Feb 7, 2011 10:23 AM
Dear: Mary Ann & Beachy
Mary Ann.. I'm so glad to hear things went well. Your bowel movements will eventually return to normal. It can be frustrating having that many a day.

You seem to have a very positive attitude. Keep on walking and building your strength.

I'm sure you lost some weight. You will soon be back to your normal weight. Stick to this sight, if you have any questions. Take care of yourself and keep on being strong.

Beachy... I am glad things went well for you too!! Your appetite will improve and things will slowly return to normal. I'm glad we all could help and reduce the anxiety. You to will be doing the same for people in the future. Stay strong my friend.
Beachy Feb 5, 2011 7:30 PM
3 Days after reversal
I had my reversal done Wed Feb 2nd. All went well, I was home Fri afternoon.

I still do not have much of an appetite, but it is improving already. I have some abdominal pain, but nothing like after my colostomy surgery.

Thanks to all the previous posters who helped reduce my anxiety prior to surgery. I feel relieved, no pun intended.
Darlene Feb 4, 2011 12:20 PM
Mary Ann
WOW is right!! I'm glad to hear things are going so well for you! I am looking forward to getting back to normal, but I don't think I want to wait any more than I already have to. It will end up being close to a year by the time I can have my surgery.
Thanks for sharing your story!!
JoDee Feb 4, 2011 7:55 AM
Mary Ann
WOW. You and your story are such an inspiration. I hope you continue to tell it! Sounds like you have bounced back so well. I know some of what you went through and I have to say, you really must have had a great attitude and determination to get back to "normal". congratulations to you!!
Mary Ann Feb 3, 2011 5:51 PM
Reversal Colostomy
I Had a perforated colon after suffering from diverticulities & ulcerative colitis. Oct 2009 I had emergencey colostomy almost died in coma four days, I had an excellent surgeon. had a post oper infection ended up back in hospital another 5 after being discharged. My incision was left open to heal from inside out due too all the infection. I went to local support group which helped. I had read so many horror stories about reversal surgery & complication I almost decided not to have reversal. For the reversal my surgeon & GI doctor recommended Dr. Becker at Boston
Medical (he and his staff are great). The reversal was done surgically in two stages. It has been 4 week since my final surgery and I think I'm doing very good started with low fiber diet switched to high fiber today I take 8 cap a day & started Citrucel today. I eat three sm meals a day 1 snack no eating after 7:00 pm. I have about 8-10 bowel movements a day with control. Try to limit high sugar & high fat foods. I didn't mind my colostomy because having it saved my life but I'm glad I decided to have reversal. I did wait about a year for my body to recover fully. Two weeks after my final procedure I'm walking two miles a day on treadmill.
Shelby Jan 31, 2011 6:33 PM
Dear Karen:
Karen... I'm sorry to hear of your boyfriend's situtation. It can be a depressing time, having to wear the bag and not lead a normal life. I know first hand that it affected my family, as well. They just wanted me to get better and get back to life.

You should research a nearby reputable hospital, for a colorectal surgeon, or talk to the surgeon who performed the colostomy surgeon, when he was shot.

I hope that you may find the care you need for your boyfriend. A colostomy reversal is a fairly common procedure these days, and I'm hoping you have no problems finding a surgeon to perform this.

When I had my "bag", I attended a support system at my hospital. Maybe you could find some help there.

I wish you luck and hope you find a surgeon. My thoughts are with you.
Shelby Jan 26, 2011 4:44 PM
Dear Darlene:
Darlene... Your situation, leading to the bag, is terrible. I'm happy to hear that you survived this ordeal, and that I could provide some useful information. Hopefully you get your insurance hadaches worked out.

I, too, wore the wound vacum for 8 weeks and know about healing from the inside out. The vacum worked wonders for the healing process!! My incision split open from being too skinny/rebounding from weight loss, due to multiple surgeries.

I'm not sure when your reversal will be, but consider building your strength up prior to the reversal. Being in some kind of shape helped me rebound fast, after my reversal.

Even though I don't know you, you will be in my thoughts.
Darlene Jan 25, 2011 9:44 PM
Sue
Thanks for sharing. This site has been more of a comfort since reading more of others stories.

My situation turns out to be like a few others on here. I didn't know I had any diverticulitis. I'd never had any symptoms that I know of. I do have a high tolerance for pain so I don't know if I had signs that I just ignored. Anyway, I worked thru the pain for 8 hrs at work before I asked my boss to leave to go to the clinic. I had to see my regular dr the next day; was sent to another clinic for a CT scan which showed 2 diverticuli and 1 was perforated. I was transported by ambulance to the hospital. The drs thought they could help me without surgery. The next morning I was in so much pain. They rushed me to OR. Surgery lasted 4 1/2 hrs. My colon had ruptured that morning. I had come so close to dying. I had leakage in my system by the time they got me in the OR. They removed almost 2 ft of colon. The cut was made low in the pelvis area. All of the diseased areas were removed. My incision was left open to heal from the inside out. I wore a wound vac starting from about the 3rd day after the surgery. I wore it for 4 - 5 wks. What a wonderful device! I hated it, but it worked wonders! My incision was about 7 in long and very deep (I'm overweight but working on that before the next surgery.) The dr has told me the next one will last longer than the first. I'm nervous, but I do want a better quality of life, as you so eliquently put it. I have not checked with my ins co yet as I didn't want to raise any flags. I have decided I am just going to let go and let God. I can't stress about it anymore.

Thanks, again, for your help.
Darlene Jan 25, 2011 9:07 PM
JoDee & Shelby
Thanks so much for the input. I am trying to relax more. I have decided to believe that they will see that the quality of life would be better with the reconstructive surgery than without it.

I am very grateful to everyone for the sharing their stories on here...it is very helpful. Thanks!!
Shelby Jan 25, 2011 6:56 PM
Dear Julia:
You're welcome Julia... It makes me feel a little better that I could help. I, often, wonder if I'm able to give some useful input, or if I'm just talking a bunch of jibber jabber.

Jodee was a great support system for me, from start to finish. I thank her and everybody else on this site, for their help and input. May God heal us all.
KAREN Jan 23, 2011 9:32 PM
HELP PLEASE
LAST YEAR MY MY BOYFRIEND GOT SHOT HE WEAR'S A BAG ALSO WE LIVE IN THE SAN DIEGO AREA IS THERE ANYONE OUT THERE THAT KNOW'S A GOOD DOCTOR THAT CAN HELP US WE DON'T KNOW WHAT TO DO HE IS STARTING TO GET DEPRESSED I LOVE HIM CAN SOMEONE HELP US PLEASE SOMEONE HELP US WE ARE WILLING TO TRAVEL IF WE HAVE TOO!!!
Shelby Jan 23, 2011 12:23 PM
Dear Rachel, Darlene & Julia:
Rachel: I too had diarhea and many bowel movements a day. I eat a high fiber cereal, and it has definitely helped alot. I would recommmend fiber in any form (food, pill or drink form). My surgeon said 25 grams is recommended. Just don't take too much, that it hard to pass a bowel movement.

Darlene: It is your choice to live with or without the bag. The expense is something no one wants, but weigh the odds: bag or no bag. I"m sorry, I cannot give you any input on the insurance or cancer standpoint. I wish you best and that someone can give you some input.

Julia: I'm so happy to hear that things went well. Sheet Metal work sounds physically demanding. Make sure the Dr. doesn't rush him back to work. Some Dr.s' seem to rush things, and the last thing you want is for him to have a set back from returning early.
It's been 3 months, since my reversal, and I'm still not at work. My dr. gave me clearance to work, but I still have a superficial wound from incision pulling open, and am not comfy going back yet.

For his healing, consider vitamins and a protein supplement. They aid in muscle and tissue growth.
Sue Jan 23, 2011 11:30 AM
Darlene re: Colostomy Reversal
Hello Darlene:
I was worried about the same thing. Anyway, to make a long story short, it was stated that I elected to have the reversal done and the surgery was paid for.
However, I will add that when they do this, they also resegmented my colon to get remove the sections of the diverticulitis (diseased sections) which resulted in them removing 18 inches of my colon. Is this what led to you ending up with a bag - diverticulitis?
Although the surgery was considered "elective" it was also necessary to remove the bad sections of my colon.
It also becomes a quality of life issue (NOTE: look into this!). Has your insurance company told you they will not pay for this or have you already ran it by your insurance first to get a pre-authorization?
I don't think anyone in their right mind would want a bag on them for the rest of their life if it is possible to get rid of it!
Re: Colostomy - none here ever never. I was advised that risk of a preforated colon is very high in my case because I have severe adhesions/scar tissue from all of these abdominal surgeries.
You might seek the counsel/support of another doctor in my opinion if the one you are going to won't fight the insurance company for/with you and insists on a colonoscopy at this stage of the game. They do a lot of checks during and after the surgery. A hemoccult is what my doctor has done since time. No cancer is the result for me luckily.
Best of luck to you - ask questions and don't accept NO for an answer and don't forget these words "QUALITY OF LIFE".
Beachy Jan 23, 2011 10:04 AM
RE: Colostomy Reversal Surgery
Julia,

I hope your Dad makes it home today, he'll be in my thoughts.

My reversal is scheduled for Feb 2nd, 10 days from now. I'll keep you all posted on my progress.
JoDee Jan 23, 2011 9:53 AM
Julia
I'm glad that Shelby and I could help. He and I have befriended one another all because of this site. It is a great place to relate to others going thru the same or at least many of the same things. Wishing your father well. Tell him to take it slow, but things will literally work themselves out! God speed my friend.
JoDee Jan 23, 2011 9:50 AM
Darlene
I guess it could be considered an elective surgery. I had everything paid for on the reversal. I did have a visit from the insurance co. who happened to be a nurse. After she listened to what I had been through and how I wanted to get back to normal, she reported it to them. I don't know how your insurance works, but mine is usually not that good when it comes to paying for things. However, the came through with flying colors on the emergency surgery and on the reversal. I have VIVA insurance BTW. Perhaps you will need to make a few phone calls to get your charges taken care of, but, believe me it will be worth it to get rid of the bag. I couldn't wait and I'm sure you REALLY can't after having it for so long. Good luck. If you have any more questions, just ask. This is a wonderful site for all of us.
JoDee Jan 23, 2011 9:44 AM
Rachel
I really watch what I eat but the one thing my doctor recommended was to take one stool softner with each meal. I have done this from the 1st day after the reversal and everything works great. They are very inexpensive and I get a big bottle from Sams Club for very cheap, but others like Walmart and Target have them too. I have to admit when he first told me to take a stool softner, I thought he meant the kind you put into your butt, but thankfully these are taken like a vitamin! Good luck. In time, your body will get back to normal, this whole ordeal is about just taking time!
julia Jan 22, 2011 7:24 AM
thank you shelby and jodee
thanks for your help ! my dad got his reversal on 1/19/11 hes doing good the only problem hes having is that hes in pain the morphine isnt working and they gave him something else for the pain and that isnt working either. Theyre going to start him on semi solid foods today and they perdict that he should be home tomorrow (1/23)...he was just very nervous to get his surgery and didnt really know what to expect hes never been sick a day in his life until he developed diverticulitis back in june and just had some lingering questions hes a 57 yr old sheet metal worker and wasent sure how long it would take him to heal ! thank you very much again you guys were very helpful
Darlene Jan 20, 2011 6:35 PM
Colostomy Reversal
I had an emergency temporary colostomy on September 9, 2010. I am looking to have a reversal some time this summer. However, I am now being told that it is an elective surgery. Is this true? I know most insurance companies do not cover elective surgeries. Did those of you who have had the reversal have to pay for the entire operation or does the insurance cover it?

I'm so frustrated and disappointed right now. I cannot afford to pay for it myself, but I do not want to spend the next 45 - 50 years with a bag on my abdomen either!

I just had a test run this week, and it would appear that I am clear for surgery. Although my doctor would also like to have me see a specialist to be sure there is no fear of colon cancer prior to the reversal. I don't see her until March. I was hoping to have the reversal in June after my son gets out of school for the summer. Now I am not so sure.

Any input that you may have would be greatly appreciated!!
Shelby Neidig Jan 20, 2011 12:25 PM
Dear Steve Steve & Andreas Kyriacou
I just wanted to start of by saying many of us have had positive results, many with neagative results, many with major or minor setbacks. All in our personalized way. I just know the whole scenario, from surgery to finally being healed was a traumatic incident for me, and I'm dedicated to helping anybody, as much as possible.

Steve Steve:

First off, I am so sorry to hear of all your troubles. It is good that you shared your story, because it does happen.

My pipework/connection pulled lose after 1 month. They found a huge infection, in my back, because of it. Then they had to go back inside of me, which resulted in the colostomy bag. After 2 surgeries (3 with reversal), my abdomen incision pulled lose after my reversal. 26 staples pulled lose resulting in a HUGE hole on my belly. I was on a wound vacum for 9 weeks and am now at a wound clinic. My family too has been mentally stressed over the situation. I wish you the best, Steve. Your situation is terrrible.

Andreas Kyriacou:

Please don't rush your reversal. Do it when you feel comfortable. I had my reversal after 3 months and had a little setback. From 2 prior surgeries, my incision pulled open, after my reversal. The skin on my abdomen was thin and could not support the staples, post reversal surgery.

Inside of me, my 2nd connection went well, which I am very thankful for.

I would be glad to help and support you. Can you be more specific with your questions? Make sure you write down your questions and ask your dr. to explain things.
Gary Jan 19, 2011 7:12 PM
Steve
Wow! Hang in there, buddy! Sorry to hear about all the complications! I'm glad you are still with us! Please keep us informed as to how you are doing. We all care!
Gary Jan 19, 2011 7:06 PM
Andreas
You found the right site! Your situation sounds pretty scary but read some of the posts within this site and you will see so many scared people with similar questions.

This site is a wonderful support site and you will receive many responses. I have seen a couple of stabbings on here and both are doing nicely! You HAVE to believe you will get better. Most of us found that we needed to be very patient--some of these operations take a long time to heal, but we did heal.

Listen to your body--you be the boss. Some doctors are less empathetic than others. If you hurt, let them know and don't take no for an answer.

Your body is amazing. It will heal. You have to be patient. This site is so good. Everyone on here is just wonderful. Please keep us posted--we all understand the bag and the "stuff" that goes along with it!!!!
andreas kyriacou Jan 18, 2011 9:15 PM
hi
hey all im from london

my story is on christmass i was stabed down the left side puctured my lung and split my colon i had a complete repair of the diaphram and was operated on opon arival to A+E at the QE2 welling garden city
i spent 4 weeks in the hostpital with infections i remember waking up with two bags on either side of me i have two stomas im due for a reversal withing 4 months and im scared i have no info online knobody to talk to and i dont understand whats going on, i hope everyone well here, and is there somebody out there that can explain his or her surgery to me in more detail, god be with us all and even though i dont know you i love you and best of luck
Rachel Jan 18, 2011 1:55 AM
Diet
7 years ago I was 32 and diagnosed with colorectal cancer, ended up with a pouch 3 years ago my surgeon recommended another surgeon to do my complicated reversal. It's now been 2 years since my final connection, and since then I have had many challenges. I have many bowel movements a day 10-15 some days. Does anyone know a good diet /routine to help get bowel movement more regular?
Kellee Jan 17, 2011 12:06 PM
Thanks Shelby
Thank you shelby for your advice. It has been so long since it happened I didnt even think about going back to the doctor that did the surgery in the first place. Duh....lol
steve steve Jan 17, 2011 10:33 AM
stoma refersal
hello all i had diverticulitis in 2009 i was given a stoma bag & put on morphine,this made me hallucinate terribly i tried to smash windows in the hospital & escape. eventually i went home .in early 2010 i went back into hospital for a refersal, i awoke to find i still had a stoma bag,now on my small intestines !! apparently the surgeons had prolems with re_connecting my pipework, i was informed that i would later be given further surgery for a full refersal once my internals had had chance to repair.i was home for 2 days when i was taken back into a &e &needed 4 pints of blood because i had internal bleeding. early november 2010 i retuned to hospital for my hopeful refersal. unfortunately this also hit complications ! i was put into intensive care for 15 days with the possibllity of not living!! i apperantly my bowel failed to restart working, after a further 5 weeks in a high dependancy ward my legs would not support me i was then sent for 2 weeks at a rehabilitation hospital for extensive physio to get me walking again. i now have a permanent stoma bag & also a smaller one where my original stoma was to drain a fistulara i have also got to wait for my open wound to heal with daily re dressing from my district nurses which tell me because of its size 190mm x 70mm it will be summer before it has healed. i just want people to realise thatproblems do occur & to give serious thought before!! also give a think about your family & the heartache they can go trough when things go wrong. i hope that people will read this & give it a lot of thought in hindsight i would never have retuned for further surgery. my surgeon has also informed me that he would not be happy to opperate on me any more.he is a very successful surgeon but not for me.
Sue Jan 15, 2011 10:19 AM
reversal surgery
I had the reversal surgery as well at the end of Jan. 2010. It was not a breeze for me. I experienced severe pain which was worse than the initial event itself. This was partially due to the fact the the pain was not managed properly and also due to the other fact that I have a pre-existing illness which effects the spinal cord. The pain I had was in my spine and upon getting out of the hospital I was placed on morphine tablets. I found out in Aug. of last year that I had an inguinal hernia that I had to have repaired as well as that was adding to the pain problems. I realize that my story is not common but it does happen. I wish everyone out there that opts for reversal to do it because at least you get rid of the bag (hopefully). Have been eating more high fiber foods since times. It seems the inguinal hernia was causing a lot of the problems as well. Best of luck to everyone.
Shelby Jan 15, 2011 10:08 AM
Dear Kellee
Kellee:

I'm happy to hear your fiance survived that terrible incident. For me, I just wanted to rid myself of "the bag."

I'm from Pittsburgh, PA region, so I can't really give you any recommendations for the MD area.

Hopefully reading some of the posts on this site haven given you some useful input.

Could you refer to your fiance's surgeon who performed the colostomy surgery in the first place? John's Hopkins is a huge hospital. Maybe site down and talk with a colorectal surgeon, from that hospital.
kellee Jan 14, 2011 9:52 PM
my fiance
my fiance was shot, robbed, and nearly died almost 8 years before i met him. he had a colostomy and has been scared to get the reversal all these years. since we have been together and he has finally gotten insurance i have been talking him into the reversal. after some researched i couldnt find much info about doing a reversal after wearing the bag for so long. any advice or suggestions for doctors in the maryland area or websites to go to. i live in maryland and johns hopkins is the best for everything
Shelby Jan 14, 2011 12:48 PM
Dear Beachy, Julia & Billy 1966
Beachy & Billy 1966:

I personally walked, jogged lightly and lifted lightly, so that I would be in decent shape pre & post surgery.

The day after surgery, there was obvious pain, but I was walking and felt strong on my feet. I had many staples pull lose, and the incision opened up some, but the reversal is nothing compared to the prior surgery.

I hope everything goes well. My thoughts are with you.

Julia:

The thoughts above pertain to you as well.

I am 33 years, so my age helped tremendously with healing.

I had my reversal on 10/21/10, and I haven't returned to work yet. I did have some minor setbacks and my job is physically demanding, so my surgeon doesn't want me to return to work yet.

While I had "The Bag", I did not eat nuts, corn, and many others. Since the reversal, I'm now eating my chicken wings, tiny nuts in cookies and corn again. However, I do not eat alot of them because I choose to be proactive, rather that reactive. For the most part, I can eat whatever I please.

Directly after my reversal, I dealt with diarrhea regularly. I now eat high fiber cereal to firm up my "movements," and it has helped tremendously.

I hope I can be of some help. Good luck to your dad as well.

This site also helped me too. Some reversals go smooth, some don't. I had some setbacks, but not nearly as bad as some have. I'm just happy to be on the road to a normal life.
JoDee Jan 13, 2011 6:59 PM
Julia
He will find that the reversal is a breeze compared to what he has been thru. I got out of hosp after 3 days, some take a little longer it just depends on the individual. As far as diet for the rest of his life...well, that depends. I have chosen to stick to the foods that I am supposed to eat and not the forbidden ones. I just don't want to go thru the same horrible ordeal I had to go thru late last year. Good luck to you and your Dad and keep us posted.
julia Jan 11, 2011 2:08 AM
hey
my dad is going for his reversal in a week and doesnt know what to expect for the recovery. how long after the surgery can he return back to work ? and will he always have to be on a special diet ?
Beachy Jan 8, 2011 7:08 PM
Thanks for all the input.
I feel more comforted to hear so many people went through the reversal without much problem. I also woke up from surgery with a bag (my appendix ruptured), but it was a surprise to wake up with IT.

I have a Dr's appointment in a few days Jan 12th, and if all is well they will schedule the surgery in the next few weeks.

I'm happy to be alive and I am grateful for my Dr and the nurses and my family who helped me through all of this.

I've been pretty nervous about going under the knife again, but after reading all your posts, I see that I'm not alone and everything will be fine.

Thanks again for everyone's story and God Bless.
Billy1966 Jan 7, 2011 3:39 AM
Status
Hello. Had diverticulitis that resulted in 2 years of on again/off again sickness. This lead me to eventual hospital stay for removal of 7 inches of my large colon. Have had 'the bag' for 5 months. Scheduled for repair early February. Dr. said I have Crohns disease and will need life long care to treat. But, and I mean butt in a good way, i should be bag less by early next month. What an experience, that's all i can say. I'm 44 and never expected all this. Thankfully I work for an excellent company, and aside from the occasional bag burp in meetings, i think i adjusted pretty well for all the BS I've been through. I'd like to offer help and answer any questions from people who are nervous or scared from all of this. Because i had that wake up in the morning, wtf is this bag doing here feeling and could possibly help. And thanks for this site, it very helpful.
Shelby Dec 23, 2010 10:35 AM
Rainer
Any decision yet, on your reversal???
Shelby Dec 23, 2010 10:32 AM
RE: Jon
This site is a very good support system. It helped me just as well. Only us Ostomates can relate and support one another. We all have our own and different story, but related in a similar way.

I too am young and in good physical condition. I'm 32 and my age played a big role in my healing process.

Hopefully you are going into this surgery healthy and strong. If so you will rebound quick. I'm wishing you a quick and healthy recovery. Keep us posted.

Sincerely,

Shelby
Allen Dec 23, 2010 9:25 AM
Jon
Same story as mine. The reversal is much easier! Good Luck!
JoDee Dec 23, 2010 8:32 AM
Jon
Good luck to you on your Reversal. My situation was almost identical to yours and I too, was very frightened about the reversal, but knew that I did not want to live with the bag. My "reversal" experience was sooo much easier and I was so glad to rid the bag. My prayers are with you and I know that you have a great way of bringing in the New Year. Keep us posted.
Jon Dec 21, 2010 6:53 AM
A Fine Way to bring in the New Year I'll tell ya !
The day before Thanks Giving & not knowing what was going on I went to the hospital with a rupture to the colon. They did emergent surgery as I waited to go in. I awoke to find a colostomy bag, the realization of an altered life, and a cold, pressed turkey TG dinner. Took two bites pushed it a way, and fell back out. I was very thankful to be alive after finding out the severity of it all which helped me easily accept ( I am still young and very physically active )adapt to my new way of doing "business" and stayed active after I returned home from post op. Took like 10 days in the hospital & 6 weeks before I was completely over the physical and mental sting of it all. FF up until now. I am sitting 10 days away from the reversal (Dec. 31st) and time is flying by. Tho. I am getting a little anxious I am SO relived I came across this site and read through some comments because I was under the assumption up until now that the reversal operation would be just that. . basically the reverse of the first. I go in on New Year Eve in the AM so hopefully I will bring in the NY a success, bounce back fast, and live a normal life again. Thanks All for your input as it was very helpful !
Shelby Dec 8, 2010 12:44 PM
Re: Rainer
After 2 years of having the colostomy, I'm hoping that your body is healed and healthy. If so, the procedure shouldn't be bad at all. If you go into the procedure healthy and strong, you will rebound fast.

I hated the thoughts of having another surgery, but I too wanted my life back to normal. I just had my reversal on 10-21-10 and am happy I made that choice.The colon is a little rusty, but getting back to normal. I had a little setback with my incision opening, but inside of me is doing fine.

Many have said it's much easier than what you have been through to put the bag on. I hope everything goes well, if you make the choice.
Allen Dec 7, 2010 9:11 PM
Rainer
I would never sway anyone either way because it is a major surgery, but I can tell you my short story.

Went in for a colonoscopy June 1, 2010 and the next day I woke up in extreme pain. The DR. perforated my colon, so I went to the emergency room and was quickly taken into surery. I had gone septic and was close to death, but my amazing surgeon took great care of me. Spent 5 days in ICU, then another 10 in Med Surg. Came home with my new bag and was terrified. Took me a while to get use to changing it, but I got use to it over time.

Went in for the reversal October 16, 2010 and am all good now. I did get use to the bag, but I now feel like it is all behind me now.

The reversal put me back in the hospital for 5 days and was tough for a couple of weeks, but I have been back to working out (lightly) after 4 weeks and really have no limitations now. I also had my Galbladder removed and a hernia repaired during the reversal prodedure.

I can certainly relate to your fears of going back under the knife, but if you have confidence in your surgeon and are at a good hospital, you are all good.

I have found a lot of support from this group and I am so appreciative.

I am willing to chat to anyone about this. It helped me a lot.
JoDee Dec 6, 2010 2:47 PM
Ranier
I had the same thing. Diverticulits and didn't know it. My colon burst last year on Dec 8. It was awful as you know, but I had the reversal on March 16 and have never looked back. The reversal surgery is sooo much easier. I couldn't wait to get rid of my bag but the Dr. wanted me to get my strenght back before I did it. I suppose if you are comfortable and don't mind the bag you don't need to even consider the reversal. I wanted my life back to normalcy and I now have it. Good luck on your decision and if you have any specific questions on the reversal, let me know!
JoDee Nov 30, 2010 4:31 PM
Rebecca
I'm sorry, I don't have an answer for you. Hopefully, one of the others on this site will. Good luck. I am so very sorry to hear about this condition, it sounds painful.
RAINER Nov 28, 2010 9:04 PM
COLOSTOMY REVERSAL
I HAD DIVERTICULITIS AND DID KNOW THAT I DID. MY INTESTINES RUPTURED AND I HAVE A COLOSTOMY BAG. IT HAS BEEN TWO YEARS AND EVERYONE INCLUDING MY DOCTORS ARE PUSHING ME TO HAVE THE REVERSAL SURGERY. I AM SO NERVOUS. CAN ANYONE HELP ME ?
Rebecca Day Nov 26, 2010 3:12 PM
illeostomy
My husband has had an illiostomy for 40 years and it works fine. All of a sudden in the last few years he has developed open sores around the stoma which are painful and ozing. He has been to several docs and ostomy nurses to no avail. Hydrafera has stopped working. Which one of the manuka products would be best for him? Thanks
JoDee Nov 23, 2010 6:52 PM
To All
Wishing everyone a blessed Thanksgiving. Each of as can be so very thankful for being able to see this Thanksgiving Day. Even though we have gone thru and are going thru painful experiences, we are here on earth. God Bless all.
Pam Nov 7, 2010 1:18 AM
Tina
Hi Tina I had 2 thirds open surgery & 1 third laparoscopy. I promise you it is NOTHING AS BAD as the original op !!!!! You will have to be well to have the reversal done & that makes a BIG difference. Six months later I feel back to normal,although the 1st few months were sometimes difficult. But it was worth it !!! I coped very well with my bag & if I had no choice I would have happily lived with it. I hope you make the right choice for you!!! Wishing you good health xxx Ps I live in Wales UK
Pam Nov 7, 2010 12:09 AM
reversal update for Shelby
Hi Shelby.Sorry I have taken so long to reply. I have been away. The Manuka honey was applied with a shringe directly into the open wounds. Obviously it was medical & sterile but you can also buy to eat in Britain. I am not a big fan of alternative medicine but I have never known anything to heal as quickly as that did. I hope you are getting better day by day ! I am feeling great, my bowels seem to have settled down after 6 months. The 1st few months are difficult but it gets better & better !! Life is great ! Wishing you good health &good luck. Pam x
Carol Oct 23, 2010 5:10 PM
back in the hospital
Well I was home for around 2 weeks and now my I have a blockage somewhere near my stoma. I have been in the hospital for now 2 weeks. It started about 2 and 1/2 weeks ago. My bowels stopped moving and then on the following Sunday I started to throw up. So I went to the hospital and of course the admitted me. They will be doing surgery on Monday or Tuesday, to get rid of some of the scare tissues. I'm so fed up with this. Still loosing weight. It is very had to gain weigh when Im like this. Take care
Alisa Oct 21, 2010 3:25 PM
help
I am new to this so bear with me. My husband was given an ileostomy following colon cancer surgery the end of March. He had rectal mucus drainage that followed, which I understand is normal. The drainage is every day, several times a day. On bad days, it's every 45 minutes or so. He had his reversal 3 1/2 months ago, and we were hoping that this would be the end of the drainage. Unfortunately, it is still with him and he is still having pain. Anyone experience this? The doctor is vague and says to just give it time. It's been 7 months....
Tom Bewley Oct 21, 2010 7:34 AM
Pain Medications
I want to thank each of you so much for your encouragement and input....you have helped me much.....I also want to let each of you know that since I never had a family dr. I went and got one....He explained how most surgeons are not interested in following up after surgery with pain issues....Still I know my surgeon has been totally wrong and insensitive after this major surgery....My new family dr...which I would have gotten quicker but been so sick for 8 months I didn't....Did help me with the pain and He was great....knew where I was living and agreed I just need to recover and get rest which I wasnt with pain day and night.....He did encourage me to go back for follow up appt. with surgeon...thinking about that....It is Nov.11....Thanks everybody..I thank God for leading me the right way.....
Shelby Oct 20, 2010 10:43 AM
RE: Debby
Did you have a reversal yet, or still have the bag?

I still have my bag and have been rehabing for reversal.

I can tell you that I layed back/down on a gym bench to do a very light bench press. When I layed back I felt the weirdest twisting sensation inside me and around belly button.

There was not much pain, but a very weird and uncomforting feeling. The sensation came again when I woke and twisted to get out of bed.

I still feel the sensation, but it has diminished after a couple of weeks.

I know my thoughts dont go along with how you had a cold.

Keep an eye on your stoma... Make sure it's a "beefy red" in appearance. If its not, it may have strangled itself.
Shelby Oct 20, 2010 10:34 AM
RE: Allen
I think you should be good. My reversal is tomorrow the21st and dr. says I will be in 3-5 days or til I go poop or fart. If things are moving properly, I see no reason to worry.

Keep a close eye out for a fever. If you see any signs of fever, call your dr. immediately!

Shelby
JoDee Oct 20, 2010 7:44 AM
Allen
Good for you! Yes, go home, but only if you feel strong enough to walk around your home. Good luck to you! You are on your way to getting your life back....step by step.
Allen Oct 19, 2010 10:35 PM
Heading home tomorrow after reversal
Had reversal complete Thursday. Removed Nose tube today and on a clear liquid diet. Everything seems to be moving properly, so Surgeon just asked me if i'd like to go home tomorrow and I don't see why not?
Any reservations from anyone that has been through?

Thank You
JoDee Oct 19, 2010 9:18 PM
Debby
OMG, your post wasn't there when I responded to others. don't leave the site and I am sorry if you feel "left out" because you are not. Did you have a colostomy and reversal? You didn't say. I have had both, my reversal was in March. I had a horrible cold last week and the coughing left my stomach very sore, I am hoping I didn't get a hernia because of it. Please tell us a little more, perhaps that is why noone responded. If you have alot of pain, that would concern me as well. But don't wait to long to see a doc.
Debby Oct 19, 2010 8:14 PM
done
I will not be posting any more, I am sorry if I did something wrong. I just wanted some advice as I am very concerned as to why nothing is going the way it should. I wish everyone the best of luck and may God be with you all. Get well soon! Debby
JoDee Oct 17, 2010 9:24 AM
Tom
It is obvious that each of us will have different levels of pain and different experiences post surgery. However, I have been just amazed at the number of surgeons who just don't seem to care. It is VITAL to have someone that you trust completely and feel comfortable with. You will find this a great sight to visit because even tho we all go through different experiences ... we all have the colosotomy and reversal. Good luck to you. But, seriously, don't wait too long, there can be too many other things that can go wrong and put you back into the hospital.
debby Oct 16, 2010 9:55 AM
PAIN
Hi, was wondering if this has happened to anyone. I am just getting over a bad bug, (I am a teacher and catch everything that comes in the classroom), i had a bad coughing spell a few days ago and it felt like my colon twisted up, the PAIN was horrible. It still hurts occassionally for no apparent reason.. i.e. sitting walking, or someimes after eating. is this normal? and if so, how long does this continue?
Tom Bewley Oct 15, 2010 10:55 PM
Pain Medication
Thanks Susan...JoDee...Gary....Denise...all of your comments really help me....I figured for 4 weeks or so I could be uncomfortable...but my whole experience has put a lot of extra tension on me because I knew how the Dr. was treating me in this area...never knowing what He would do even coming right out of surgery....its kept me tense and stressed....He evidently thinks after a week or 2 at the most I shouldnt have any pain...I had said myself if He had to walk around with this it may be different..ive been nice about it....but too much now
Tom Bewley Oct 15, 2010 10:47 PM
Pain meds
Thanks Gary for helping me realized im not wrong.....they made me feel that way...i just havent understood it..ive never been in medical system unil this year with a heart attack and 2 months later the colon rupture.....never needed medicine....i just dont get how they wouldnt want to help in this..............
Susan Oct 15, 2010 7:49 PM
Pain
Tom, Pain is very common after those procedures, and I required prescription pain medication for 4 weeks post surgery. If your surgeon is not meeting your needs, contact your primary doctor or go to the emergency dept. of your hospital and have them exam you, and prescribe you some relief. There is no reason for anyone to be in pain.
JoDee Oct 15, 2010 3:08 PM
Tom
Get another doctor as soon as you can. you shouldn't be having that much pain. Don't wait too long. Keep us posted.
denise Oct 15, 2010 4:04 AM
pain after reversal
i had reversal and hernia repair 29 July 10. The drainage hole wound in my stomach took about 3.5 weeks to completely heal. I did experience some pain and swelling around the wound, even after it had healed. It was a prickly pain, particularly after eating. this has subsided now and the area is feeling relatively normal. i think sometimes these things just take time. unless you think the area is infected, i think you just have to plod on and hope things will improve. my bowels are working well now. the only problem i have is that sometimes i don't have much warning when they are going to burst into action, so have to be quite near a loo at all times!
Good luck and hope things get better.
Gary Oct 14, 2010 6:27 PM
Tom
You demand some kind of pain meds!!! Makes me mad--the doctors are not having any empathy because they have not gone through with what you had! I feel for you! I TOLD my dr to please give me something! I am hurting! Hang in there!!!
tom Oct 14, 2010 5:40 PM
Pain medication
My Dr. did reversal and hernia..im having swelling where they both were and still have a hole healing...2 1/2 weeks out of surgery i called let them know of swelling increasing and pain and there response was "i dont know what we can do about that" referring to the pain....is that appropriate at this time after surgery for them to handle it this way.....they didnt see me for 3 months beofre 9/24 when had surgery and refused to give pain med for hernia then...i feel like not going back and finding another dr....i guess im not supposed to have the pain ir something???confused and hurt a little..
Susan Oct 14, 2010 5:31 PM
RE: Cindy P. and Carol
Had reversal on Sept. 2nd, 4 weeks post op doing well, then it happened unexplained left lower abdomen pain, stomach distended, Nausa, and just very sick. Ct scan showed diverticulits of the sigmoid colon, back on a cocktail of antibiotics, pain med, and anti-nausa meds. Week 2 feeling better only able to tolerate yogurt, liquids, and some mashed potatoes, and pureed fruit. Told to take stool softeners daily. Unsure of my faith, I had 18 inches removed, if they have to go back they will remove all of the large colon and try to connent my small bowel to the rectum!!!! Carol I feel your pain, good Luck! Cindy I have been on zofrain for the nausa and it helps....
cindi p Oct 14, 2010 10:41 AM
nasua after reconnection
has anybody been very nasua after reconnection,done on 9/30/10
Allen Oct 10, 2010 11:42 AM
Reversal
Getting ready for reversal and removal of galbladder Thursday. Getting nervous!
Anita Steele Oct 9, 2010 11:56 AM
Sean
I have not has a similiar but did have a bad situation. I was in the hospital for 2 1/2 mos. due to a fatal infection and had to recieve a colostomy. I was released 2 mos. ago and now getting ready for the reversal. I hope it goes well cause I am very skeptical about infections. I wish I could give you some good avice or be able to tell you about my experience but I wish you good luck. It is October now abd I am going for my reversal this month as well so I hope to hear how yours went. Good Luck and to everobe here who has had the same thing.
Anita
Shelby Sep 28, 2010 12:54 PM
A question for Pam
I read your post about "Manuka Honey". Can you expand and tell me about it? How it's ingested, applied, or in your case, injected.

I'm now into almost my 3rd month of having the colostomy, and my abdominal incision still hasn't healed. Many say it's because of malnourishment. The surgeon will not reverse me until wound has healed.

I've never heard of ths Manuka Honey and it sparked a interest.

Thanks, Shelby
pam Sep 25, 2010 6:46 PM
reversal
Hi Tina sorry I forgot to tell you I was only cut 3 quarters of the original opening & I had 3 laparoscopic entries. As I said I felt so well leaving hospital I insisted my husband took me to Tesco`s to do a bit of basic food shopping. NOT RECOMMENDED !!!!! I ended up opening one of my stitches !! That took a while to heal untill my district nurse injected Manuka honey into it every day for a week. It ended up healing up in front of our eyes ! Think positive whatever way you choose to go. x
pam Sep 25, 2010 4:56 PM
re JoDee
Thanks for your reply. I hope you are feeling good. It is amazing how things work out. My cat was sick for 10 days - I had to have her put to sleep. I was devastated. After a few days I realised my bowel movements were normal ! I had something more to think about apart from myself. It is so easy to become obsessed with bowels especially when we have had such dire problems of own. Good Luck for the future Pam PS Still keeping the stool softeners handy!
pam Sep 25, 2010 4:13 PM
reversal
Hi Tina.I live in the UK in Wales. I had my reversal because I had the option. I coped very well with my bag but I wanted to function normally if I could. There were times when I was`nt sure but I knew I would be sorry if I did`nt take the opportunity. You have to be well to have a reversal as we were not when we had our 1st op. I had a 6hr op on wednesday afternoon & took myself to the toilet on friday morning !!!!! Amazing!! OK it was painful but nothing like the 1st time. I have had a few problems with constipation but it is getting better all the time. I wish you luck whatever your decision.Very best wishes Pam x
Carol Sep 23, 2010 6:49 AM
back with the bag
Well I had my reversal on July 29 and went for 3 weeks find, Then my bowels stopped working reg. Was put back in the hospital and a week later had surgery to put back on the bag and they found out that I had a blockage where they had my new connection. So they are going to keep me with the bag for a few months. in about 6 week are going to see if they can find out where the blockage is and what it is. I hope to get out of the hospital today Ive been here for over 2 weeks and so hate it. Everyone keeps up your good sprits
Susan Sep 22, 2010 6:21 PM
Infectiion following surgery
RE: Kathy

Your husband should be on an antibiotic to treat the UTI and ecoli in the stoma area. Does he have a fever? Greek yougurt and Metamucil will help the digestive system ( ask MD first). Good Luck
kathy Sep 21, 2010 3:02 PM
colostomy bag
My husband has had a bag for 7 months. Takedown was last Thursday. He had an epidural so first day post-surgery was great. Then downhill. Continual hiccups, acid reflux, diarrhea started on day 3 but we were happy. Now they have stopped solid food as aren't sure intestines are cleaning out. E. coli in stoma and urinary tract infection. Kind of sounds like all of this is pretty normal though.
Susan Sep 19, 2010 8:29 PM
Reversal Update
To all my fellow mates.. Dont be afraid all is well...Just wanted to update everyone it has been 18 days since's my reversal and colostomy take down. Stiches removed, regular BM's and appetite is back. Still requiring oxycodone for pain, but I am tampering down on the dose. After 5 months of living with that colostomy it is a blessing and joy to be able to sit on the toilet again :). I feel so much better with my body, I dont even care about the scar on my abdomen. My advice to all if you are 3 months post op and still not healing get another opinion, apparently there is a reason you are not healing. All reversals should be able to be done 3 months post-op... Best of Luck...
Min Sep 19, 2010 3:32 PM
colonoscopy take down
Take heart everyone!

I had a take down six years ago and all is well.

I takes awhile to regain both your appetite and weight. I found that sweet and salty things made eating more interesting.

I pray that all is well with all of you.
sean Sep 17, 2010 9:58 PM
reversal next month
i was shot twice in the large and small intestines in dec.the doctors are going to do my reversal in oct and i was wondering if anybody has had a similar expierence.what are some of the complications that i might have and how long does it usually take to recover from his
Shelby` Sep 17, 2010 4:11 PM
To: Shahzad Ahmad
I have had my "dreaded bag" for only a short/long 3 months now.

After 3 months now, my abdominal incision is still healing. I have had 2 holes (about size of Peanut M&M) in the incision. They say it's because I was malnourished from surgery.

My surgeon is fortunately talking about reversal at beginning of October, which would be 31/2 months since colostomy bag was put on. My surgeon wants my to put on more weight, so I'm around my average weight, prior to colostomy bag. He also wants my strength level to be at least 85%.

I think the reversal depends on many factors, like your current health and pre-existing health prior to colostomy. Some are reversed after 3, 6, 12 or more months. I hope I could be of some help.

Many posts on this site are helpful. They have had much greater of health problems and have worn the bag for a lot longer than I.

Keep us posted and be strong!

Shelby
Sue Sep 15, 2010 11:34 AM
slow healing
to: shahzad ahmad
I too was a slow healer while waiting to get rid of the awful bag. I was told it was because I had been so sick after the peritonitis and removal of 1-1/2 ft. of my large intestine plus another serious pre-existing medical condition that I have.
Because of these problems, I had a wound that was slow to heal. As soon as it healed (it added an extra month to my tentative date for the surgery), I was able to have the bag removed luckily.
I hope you get well soon and heal up so you can get rid of the bag. You are not alone, it seems few people enjoy having a colostomy bag. Take care of yourself so you'll heal up soon!
carol Sep 15, 2010 5:25 AM
having surgery again
well Im having surgery again today. They could not find any blockage by looking at xrays CT scans and all the other test. Will keep you posted. Take care
debby Sep 14, 2010 8:35 PM
susan
Thank you very much susan. I hope I have not harmed myself, I am a vegetarian and eat daily, all the things that you mentioned that were forbidden... Sigh' Well, I will have to change my diet to eat only veggies that are ok with diverticulitius. Once again, thank you very much for your information.
shahzad ahmad Sep 13, 2010 5:01 PM
colostmy surgery hartman procedure
well mates i had a hartman,s surgery colostmy that was done on 14/04/10 .
What i want to know that right now its 13 september 2010 its almost 5 months time gone by i want to know how much time will the doctors take to reverse it coz i m really not feel comfartable with my colostmy bag and also a main thing that i have still one of my wound still yet to heald up and i have been alot worried about that if anyone knows about that plz share with me i m really really thankful to u .
Susan Sep 13, 2010 4:55 PM
Diet after surgery
RE: Debbie

Hey Debbie, Unfortunately surgeions don't always tell you everything. I worked with a dietiician, and also listened to my body. Corn, seeds, and nuts are forbidden with diverticulitis. Other things like red meats can agravate it, and green leafy veggies. I tend to eat iceburg lettece and chew well, You just need to be conscuous to things that aggravate your condition. But I would stay away from seeds ex. (strawberries, cukes, squaxsh, rye bread, pumkin seeds) and nuts.. HOpe this helps..
debbby Sep 11, 2010 12:20 PM
reversal
I am happy you all are doing so well, hoping it continues. I was wondering however, my doctor never told me to stop eating nuts or others like corn and lettuce, all of which I eat on a daily basis. I was told that if all went well I could return to work in 2-3 weeks, HOWEVER, I had complication after complication, and so many infections... I was never really given any restrictions except not to lift over 10 pounds for at least 6 weeks. Now after I had my hernia surgery August 10, 2010 he released me to go back to work on the 20 of august. Maybe I need a new surgeon.. and btw I am sure I am not alone in this, I am STILL paying hostpital bills, doctor bills and just received the newest one, over 8,000.00 SIGH
Susan Sep 10, 2010 9:22 PM
8 days post op
8 days since the reversal was done.. For the most part everything is going well... Regular BM with the use of Metamucil, lots of fluids. Appetite not quite there yet. Pasta, soup, potatoes, yogurt, toast is somethings that I have been eating. No nuts, or seeds ever!!!! Lots of pain, I am requiring 10mg of oxycodone every 3-4 hours faithfully... very limited activities, no lifting or driving for 8 weeks. Hope everyone else is doing well. ...
Anonymous Sep 9, 2010 6:12 PM
Anita
Also, beans will affect you the same way! Can't tell you the times I have made noises in public places!!! Have to laugh!
Shelby Sep 9, 2010 2:53 PM
RE: Susan & Anita
Susan... It seems things are going well for the most part.... I'm glad to hear that. Keep an eye on that infection. I have found out that my stools move easier, when I drink something, while eating any meal. I bet it feels good to go to bathroom in a normal fashion... through your butt. I wish you a speedy and healthy recovery. I hope fistula is taken care of and fixed.

Anita... I have only had my colostomy for 1 1/2 months now. I have 2 larger and thicker (consitency of Brownie Mix) movements, in the morning, and a brown watery one after my coffee. I eat my normal every day diet, and i'm no health nut. I eat Lasagna, spaghetti, Hamburger Helper, hamburger (no tomato and lettuce) to name a few.

II do try to incorporate more protein and have tried to eat a bit more healthy. Protein is good for muscle tissue and putting on weight, which I need to put on since surger;y. Protein shakes are delicious. I got protein powder from GNC.

I've been told to keep away from popcorn, nuts of any type, corn, strawberry/raspberry/sesame seeds, cabbage to name a few. I've been told not to worry bout them, but opt to not eat them be proactive. Everyone on this site is very helpful and informative.... they've helped me.

My thoughts and prayers go to Debbie & Carol.... please no large setbacks...., infection, wight loss, blockages.

God.... help all my friends and heal them....

I hope I could be of some help... Best wishes to you and recovery.

I didn't have cancer, so my diet input may differ from someone who has had it.
Susan Sep 9, 2010 12:57 PM
Diet after surgery
Re: Carol and Anitia
Carol, sorry your back in the hospital but it is the best place to be to get rid of your infrection by using IV antibiotics and NPO status. Diet for me has been a low resudue diet which consist of no high fiber products, and then I take 1 tablespoon of Metamucil daily to help keep things moving. Lots of water, and as much activity as possible will help move things along. I am also having loose stools but they are better then being constipated. The MD tells me this is normal after this type of surgery, it takes awhile for our digestive system to start working normal again. My digestive system never worked normal even before all of this. If you are loosing weight, maybe you should us a supplement like Ensure Plus 1-2 cans daily.
Anita Sep 9, 2010 8:49 AM
New Colostomy
Hello, After surgery for cancer I am now living with a colostomy bag, I have been told I have to wait for 5/6 weeks until the reversal due to the healing process internally. I am managing quite well with changing the bag etc but I am only producing warm brown liquid and my nurse says I should be starting to produce harder stools, can anyone recommend any diet or foods I should have or avoid whilst I have the colostomy as I have had no instruction from my surgen or doctor.
It has been really helpful reading all your positive points on hear and I feel so much better, thank you.
Carol Sep 9, 2010 8:08 AM
RE: Colostomy Reversal Surgery
Well Im back in the hospital again, hope for just a short stay. They seem to think that I have a blockage and are trying to release it So they are keeping me on IV and nothing by mouth. Which means loosing more weight. Hope everyone is doing well I will keep you updated
debby Sep 8, 2010 8:59 PM
hernia
infection and severe pain, have to have another CT scan, surgeon can not figure out why I am having so much bad luck.. sigh..
Susan Sep 8, 2010 6:54 PM
surgery successful
RE:Shelby and Carol

Had my reversal done last week, everything went well. I developed a local infection but was started on antibiotics and now I am ok. 5 days in the hospital. I take 1 tablespoon of metamucil daily along with a low residue diet and 6 small meals daily, and make sure I drink while eating. This has allowed my digestive system to work well, already having BM's. Using Gas X it works wonderfully on eliminating gas. pepcid for heartburn. I was told only to use colace if I had hard stools or became constipated, because colace can also cause you to have diahrea. I had open surgery so the pain is intense. I am taking oxycodone 10-15mg every 3-4 hours, along with tylenol. They tell me 8 weeks recovery. Try to Gas X and Metamucil...
Carol Sep 6, 2010 8:51 PM
RE: Colostomy Reversal Surgery
I need some suggestion. I have really bad gas and I can't move it out. Also I haven't been able to really move my bowels in a week. Just a little bit of diarrhea, but not enough. Has any one else had this same problem after their reversal?
JoDee Sep 6, 2010 12:15 PM
Pam
Glad the stool softeners help, they do for me. As you will find out quickly, we are a unique group on this site and all of us have something in common. It is a great site and I hope that it soon becomes much like the "pay it forward" rage. No one experiences EXACTLY the same thing, but each of us can relate to one another no matter what the small differences. I am glad you are back to work and hope you get stronger each day!!
tina Sep 5, 2010 5:15 PM
hi pam
hi pam glad to know you are well again did you open surgery or laparospy . im really not sure if i will have it reversed, like yourself had a bad time and nearlly died so im very scared what country are you living in ? i was bringing feses up through my mouth, what made you go for the revesal ? tina
Shelby Sep 5, 2010 5:01 PM
RE: EM
I was in a car accident and the seatbelt lacerated my Colon. I had a portion of my Colon removed from surgery and woke to find that I had a colostomy procedure done.

To answer your question, my surgeon actually told me that I would behaving the reversal done in the near future, once I heal internally.

I have only had my colostomy for 2 months. There are many others on this site with far greater health issues than I. I'm sure they can be of much more help. Have you ever asked your doctor about reversing your colostomy? Maybe it depends on your current health status or age. I just wanted to answer your question.

My thoughts go out to all on this site!
Shelby Sep 5, 2010 4:44 PM
RE: Susan
Hi Susan.... I hope you are recovering well. I'm doiing good. I'm gaining my strength day by day. I did see the surgeon and did not get a reversal date yet. He says I'm not ready for the reversal yet, and I will see him again at the end of the month. He wants me to gain at least 10 more pounds and get my strength level to at least 85%, Right now I'm at about 60% I was told to cut back on my activities because my abdominal wound is healing very slow, and I shoudn't aggrivate it. Best wishes to your recovery and to all others.

Shelby,
Pam Sep 4, 2010 5:58 PM
reversal
Hi Tina. I also had a colostomy in January last year, due to Peritonitis. I almost died. I came home after 12 days,three days later my stoma nurse visited, my stoma had retracted rapidly. I was admitted as an emergency again, another 6 hour operation. I was very ill for a while, but I got stronger day by day & I was back in work in 6months. I had my reversal in May. I thought I was in for a rough time again but I was surprised . I had my op Wednesday afternoon & I walked to the toilet myself on Friday morning to have my 1st proper poo in 16 months!!! I have had a few upsets due to constipation but that is minor. I am back in work again part time.(54yr old hairdresser) . Everyone has different problems, some have none at all !! BUT I must say we are all very lucky to be ALIVE thanks to our surgeons. Good Luck
pam Sep 4, 2010 4:03 PM
colostomy reversal
Hi JoDee. Thank you for your reply. I have taken stool softeners & they have helped greatley. I have also gone back to work part time. That has helped because you have something to think about apart from your bowels!! It was so easy to be all consumed. But we are all lucky to be alive & we must make the most of it. Best wishes to all.
EM Sep 3, 2010 3:25 PM
reversal
I have had a colostomy for 14 years how did any of you know that you were a candidate to have a reversal?
Denise Barker Sep 2, 2010 2:55 PM
reversal
After having my reversal on 30th July I am feeling very well and the drainage hole left where my stoma was has healed. I also had hernia repair surgery at the same time as the reversal. this is still achy and sore at times. I have to be very careful about lifting things or straining my stomach muscles. My bowels seem to be working well. I have had a couple of accidents as i don't have much of a warning and have to get to the loo quite quickly but this is improving. I was very wary of having the reversal as my sphincter muscles were very badly damaged and scarred by radiotherapy but i am glad i took the chance. As a last resort i can always have a permanent stoma if this doesn't continue to work well. After a year of having a bag it feels strange to be using my rear end again. For anyone considering whether to go ahead with a reversal, I would say go for it. It was not as scary as i thought it would be.
Good luck to you all.
Susan Sep 2, 2010 12:36 AM
RE: Shelby
My Big day tomorrow.. Im not nervous, just anxious... hoping they can put me back together without complications... they tell me possiblity i will need a temp. illeostomy for 6 wks to allow reversal to heal if the connect is low..(hoping they don't ned too). Yes, no solid food for the past 2 days.. only clear liquids, and had to drink the prep tonight to clean myself out... STARVING can't wait to be able to eat pizza.. Other then that, Im doing ok... it was so nice of you to think of me.. How are you doing? Did you get your date yet??? I will keep in touch and let you know how it goes when I return home :)
Carol Sep 1, 2010 7:05 AM
Looking for suggestion
Hoping everyone is doing well. Does anyone have any suggestion for me. I feel very blotted after I eat anything. I feel like a over inflated balloon getting ready to pop. It hurts so much. Any suggestion would be helpful. Thanks
Shelby Aug 31, 2010 10:33 AM
RE: Susan
Hi Susan... Thursday's your big day! I'm sure you're nervous. Don't be... things will be fine. I was wondering if your surgeon has had you on any "pre reversal diet" to get ready and prepped? My thoughts and prayers will be with you. Sincerely.

Shelby
tina Aug 30, 2010 6:51 PM
reversal
hi i have a colostomy bag since jan last year, really frightned of reversal my husband had one too in 2002 and had his reveresed 2006 . still has trouble with bowel trouble, i did not know sights like this were here any advice would be grateful thanks tina
susan Aug 29, 2010 12:48 PM
RE: Shelby
Thanks for the support. You are right it helps so much to know there is other people out there going through the same thing, and giving you comfort. Best luck on your surgery date... Take Care.. I'll let you know how mine goes :)
debby Aug 29, 2010 10:35 AM
RE: everyone
My prayers go out to all of you. Everyone has been through so much, and they have stayed strong.. : ) I will continiue to pray for all of us. I just found out that my incision is infected, this has happend to me with each surgery. sigh but I am beginning to thihk I may be diabetic,, I was diagnosed as borderline a couple of years ago.. that could possibly explain all the infections. anyway good healh to us all and hang in there we will overcome. = )
Shelby Aug 28, 2010 1:24 PM
RE: Debbie, Susan & Gary
Debby... Thank you so much for your input and prayers. It seems many people say the reversal is much less painful and the individual recovers quick... I've been through too much (like all of us) and hate the thoughts of laying in bed and healing. I'm sorry to hear of your troubles with hernia scar. Sometimes it seems as if nothing can go right or heal properly. My hopes and prayers are with you as well. Stay strong! :)

Susan... I wish you the best of luck with your reversal. I will find out a date for my reversal on the 1st. I'm sorry to hear of the setback with fistula. Keep your positve attitude about surgeon and things will go well. I will say a prayer for you and keep you in my thougts. Best wishes!

Gary... Thanks for your response. I try to stay strong, but sometimes it's tough. Everyone, including yourself, on this site has been such an inspiration to me, and they keep me strong. I do believe everyone cares. We've all been through so much, however, I believe all of us will rebound even stronger in life and as an individual.
Sincerely, Shelby
debby Aug 27, 2010 8:29 PM
hernia scar open
Hi everyone, it's me again.. I have my hernia surgery August 10, 2010 the doctor opened my old stoma area and enlarged it by 2 or 3 inches. I went back to work on the 23 and now my scar has opened up and is bleeding and has drainage. sigh.. is this normal?
debby Aug 27, 2010 8:28 PM
shelby
Shelby, I am sure you will do fine. the surgery you are about to have is nothing compared the what yuo have been through. I was up and about a few hours after surgery and on my way home 3 days later. Prayers with you on your surgery and recovery. = )
Susan Aug 26, 2010 11:21 PM
Reversal Surgery scheduled
Hello All, After 5 months of having a colostomy and 3 opinions I am finally going to have the reversal surgery done on Sept. 2nd. I am anxious to get it over with. Unfortunatly they cannot do laproscopic surgery they need to reopen me and repair a fistuala that I developed. Even though I will have a large scar and they tell me depending on how low the connect is I could have a ileostomy for 6 weeks to allow the colon connection time to heal. I am still being hopeful that they can fix it this one time and then I can get on with my life....I feel confident with the surgeon i have chosen, and am glad I did not settle with my first 2 picks. My advise is find a surgeon you feel confident with, then hope for the best... Wish me luck on the 2nd...
JoDee Aug 26, 2010 7:07 PM
Shelby
Your fears are understandable and ones that have all had and continue to have. My colon burst Dec 8, 2009. I had my reversal done March 16. I was told by my doc that 3 month wait is normal for what I went thru, however, I think that depends on the dr. The original surgery was horrible, it took me forever to get my strength back, but I started walking so I could go thru the reversal on time. I have not had any problems with constipation tho, my dr put me on a stool softner pill that I take with each meal. i too lost alot of weight and didn't need to lose it. But it is slowly coming back. It is hard cuz I eat alot of fish, pasta, etc. My dr. didn't want me on high fiber diet for 6 to 8 months. So, you see, the dr's have different opinions on what to do...alot of people here are on a high fiber diet. My dr. wants my poop to be like soft serve ice cream and it is. At times the area around the stoma area feels bruised, but I don't have pain. I too had "holes" in my large incision area, maybe it is because of our weight loss, not sure. I used the bags that adhere to your body and had a clip & didn't have any problems. They do have cremes/sprays for irritation, check that out. Even tho I have regular bowel movements, there are times when I worry cuz it comes a little later than usual. Your'e definitely not alone when it comes to fears such as that. I hope I have helped a little bit, please keep me posted. Oh, I'm about 20 years older than you, so your age should help you out. Try eating alot of small meals instead of 3 big ones. Talk to you soon!
Shelby Aug 26, 2010 5:46 PM
RE: JoDee
Hi Jodee.... Thank you for responding. I don't know where to start. I am a nervous wreck and have no idea when my reversal will be. It's only been over 1 month of wearing bag for me. I've learned to accept it, but I'm 32 and ready to move on with my life. They tell me not to eat certain foods to prevent blockages. I once found a potato skin about the size of a quarter in my bag and it really scared me. Alot of people say healing has alot to do with your men state ....I worry every day of blockages, hernias, infection, my stoma pulling inside my body. I also cannot get a good fit with my wafer, so the bile is burning my peristomal area. I'm eating very well. I lost 42 pounds since inital hospital stay. I'mtrying to exercise, but my abdominal wound is healing very slow and I have 2 big holes in wound. People say its from malnourishment, which may be true, after all the liquid diets I've been on. I just want to be strong for reversal. Itdoes seem after reversal there are people that use the bathroom alot. Is this true? Also I read about a lot of high fiber diets. True? I hope reversal isn't bad.... a nurse told me they won't perform procedure until I'm healthy and strong. Were you when you had yours? Thank you.
Gary Aug 26, 2010 4:35 PM
BigTim
Hey, I was just glad to be able to have one! It was weird at first, because blood came out, which is normal since all of us had surgery. There was no pain at all though. I had anal cancer and thought I would still have pain, but after wearing the bag for 8 months, it gave my butt a good rest. It was great to be able to poop normally again! No pain. Now, that was me. I hope others felt just as good.

Shelby, you sound like a very strong person. You have a good attitude and that is a big deal! Both of you hang in there and let all of us know how things are. All of us on here do care!!!!!
Shelby Aug 26, 2010 1:18 PM
RE: Shirley
Hi Shirley.... Saw your posting. I'm so glad to hear things went well for you. I have colostomy bag at this moment. I will see doctor next week to discuss reversal. I'm so scared of lifting things as well. I read so many horror stories of the "reversal" on other sites thats its depressing. I'm glad I read ;yours.... its was a positve and motivational thing to read. I can't believe you returned to work that fast. I hope you keep getting better and get your strength back. Sincerely.... Shelby
JoDee Aug 26, 2010 10:00 AM
Shelby
I don't know where to start, I am so sorry that you have had so many problems. Hang tough though, it gets better. As far as the rev surgery, just know that the surgery itself is usually not as bad. It's less invasive and therefore, recuperation faster. I think every 1 here will tell you that...afterwards seems to be the tricky part. Some of us have only a few problems while others suffer more pain. A good surgeon is probably the key. I do know that we all seem to suffer from paranoia about constipation...we just dont want another surgery. It is my opinion that your state of mind helps immensely but eating habits and excercise certainly are key as well. When I had my bag, I could eat anything that I wanted, but now, I REALLY watch what I eat. I am probably too fanatic about it, but it is just what I want to do...I do NOT want another surgery. Stay positive and stick close to this site. It has been such a wonderful tool for all of us. I guess it is because even tho each of us has had to endure different trauma's when you boil it all down ... we've all been through a whole lot of the same thing. Good luck and if you need to chat or ask more questions contact me at jodeebobh@aol.com. God speed my friend.
Shelby Aug 25, 2010 7:20 PM
Colostomy bag/removal
Hello... my first posting on site. I have been reading everyones horror stories, and I can relate. I am just looking for support. I was in a automobile accident in June of 2010. Hospital sent me home and said I was fine. The hospital never did any tests of my abdomen area, which was completely bruised from seatbelt. 3 days later I was vomiting bile and had emergency surgery. 1 foot of my colon and 4 inches of my small intestine were removed. This was due to a ruptured colon from auto accident. Just when I thought I was on road to recovery, a large infection was found. Nearly 1 month after initial surgery I had tohave my abdomen irrigated of infection and I woke with a colostmy bag. And then after 1 week of colostomy surgery, I had immediate laproscopic Gall Bladder surgery. I have felt nothing but pain now for 3 straight months. It was difficult to accept colostomy bag at first, but I realized many people have bigger problems than I. I am due to see dr. for a follow up appointment and talk about possible reversal. I'm just nervous now that I've read of other people's problems, since reversal. Others have moved on to a healthy life. My heart goes out to anyone with dealing with problems of this nature.
JoDee Aug 24, 2010 2:13 PM
Pam
I don't have pain around my stoma but there are times when it is sore...if I tap it, it feels like it is bruised. As far as constipation, my doc put me on stool softners..I take one with every meal and if you continue to drink water and exercise maybe that will help you too. Instead of the Colace brand you can get a generic OTC for quite cheap. Good luck..
bigtim Aug 23, 2010 9:00 PM
RE: Colostomy Reversal Surgery
How was everyones first bowel movement... was it painful?
Pam Aug 23, 2010 5:36 PM
After reversal surgery ??
Hi All. I had my reversal in May after 16 months. I got on very well very quickly. I now find that my bowel is working very slowly & I am getting consipated. I feel panic when I have pain where my stoma was. Can anyone give me tips on how to overcome this apart from eating fibre & drinking water & of course exercise. I would appreciate to know if anyone else has had this problem. Thanks
derbby Aug 11, 2010 7:36 PM
hernia
well, I had my hernia surgery Tuesday August 10, 2010. I stayed over night at that hospital now am home. The pain is really bad, taking darvocet now. I do hope this takes care of everying. 4 surgeries are more than enough in a years time.
Carol Aug 10, 2010 8:39 PM
RE: Colostomy Reversal Surgery
I had my staples removed today. I feel so much better. The nurse said everything looks great. I'm getting a lot of pain in my right side. Guessing it's gas build up. Will be back to work next week to start up home visits for my class. Hope to be able to start back in the classroom shortly after the school year starts.
Gary Aug 10, 2010 8:35 AM
Scared
No, that does not mean you have HIV. I had anal cancer, as a result of the HPV virus. I am also HIV positive. All of this from my wild past. I was shocked when they told me I had cancer. It was a stage 2, but they got it. No matter what---get yourself taken care of. If you party--stop. Concentrate on your healing. if you do have cancer, you have quite a journey to get better. My cancer is gone and I have never been sick from the HIV. Please take care of yourself!!!
scared Aug 8, 2010 3:23 AM
rectal cancer
does rectal cancer mean i have HIV? they made me take a HIV test why?
Shirley Aug 7, 2010 3:45 PM
home 1 week now
Hi all

I had my resersal done on the 23rd of July. Spent 1 week in the hospital, and now I have been home 1 full week. I did get into work for a few hours on the 4th and 5th, just to get the payroll done etc.. and was pretty tired once I got home. Will do a few hours this week, just the important stuff, everthing else can wait. I am doing good. Getting use to me "New System". Taking my Metamucil 3xday, which seems to help.

I also had a hernia where my stoma was, but my surgeon took care of it when I went for my reveral. I was not that careful then I had the "Bag", now I will not lift or do anything that is heavy for at least 6-8 weeks. She had to double stictch the hernia, (could not put a mess there), and told me she does not want to open me up again. So I am being very very careful.

Take care all
shirley
Denise Barker Aug 7, 2010 11:04 AM
colostomy reversal
Well, i went into hospital on friday 30th July to have my reversal which was done in the afternoon and i was out of hospital the next day. I have had some pain whilst my insides are trying to work in unison again! Iv had bad wind pains, constipation and diahorrea but now things are evening out into a more normal pattern. i take luctulose each day and am on a very bland, liquidy diet .
they have left an opening where my stoma was for any blood/liquid to drain away and i pack and dress this on a daily basis. they also patched up a peristomal hernia and took some anal canal biopsies. my tummy is a bit achey and stomach muscles hurt. But all in all, im still standing and so far happy that i went ahead with the operation. i will keep you updated as to my progress.
regards to you all and keep well.
Denise
DEBBY Aug 7, 2010 8:41 AM
Hernia
To bob: sorry to hear of all the problems you have had, and I hope this surgery comes out fine and you get back to normal. I am only worried that I will not make it to the first week of school, as last year I missed the first 6 weeks of school. I am having alot of pain, when sleeping I turn on my side./stomach and last night I woke me up so much pain, I felt my intestines moving, WEIRD! I am having my surgery next Tuesday, my doctor wants me to stay one or two nights because of the complications I had on my previous surgeries. Good luck to you! God's speed.
skeefehcc@aim.com Aug 7, 2010 6:05 AM
Inspiration-My fellow mates
You all have been an inspiration to me with your courage in dealing with your conditions. Just reading your comments has helped me to cope with my situation. I guess we could all have it worse, but ths is not a walk in the park.
PS. going away for the weekend to get my mind off everything-see the surgeion next week.....
Shirley how are you feeling???
Sue Aug 7, 2010 5:56 AM
leakage
Besides having this inguinal hernia (due to be repaired in about 1 week), I've also noticed some leakage since the take down surgery after a bowel movement no matter how carefully I wipe/clean. Has anyone else had this problem? Thanks for a reply.
Bob Aug 6, 2010 6:32 AM
hernia
Hello Debbie, That makes two. I saw my surgeon Wednesday after seeing the bulge by my scar and knew exactly what it was as confirmed by the doc---ventral hernia. I had my takedown in Nov and have had a hard recovery after living with the bag for 19 months. Actually, I had two takedowns. The first one resulted in finding massive adhesions and knotted intestines from radiation treatment and they had to remove more of the intestine and give me another bag on the opposite side. Not what I wanted do wake up too. Another surgery is surly not what I want either, but this one will be a cakewalk compared to what is already behind us. And, the normalization of life you will have ahead of you can be your motivation and strength. Good luck.
debby Aug 5, 2010 10:44 PM
hernia
I saw my surgeon today, I have a large hernia where my colostomy was, I am scheduled to have surgery next Tuesday.. I am scared, I am tired of the surgeries, this makes number 4 in less than a year. sigh
Carol Aug 5, 2010 10:00 PM
Im home
I got home today 1 week after surgery. All went well they did the reversal and removed my gall bladder. Doing well, staples are not fun get them removed next Tues. Good luck to all. The only hard part is making it to the bathroom in time.
Susan Aug 5, 2010 7:51 PM
Reversal
I also have a bag due to diverticulitis. my bowel perforated in March and I was due, and ready for the reversal. Complication incured that I have developed a fistula. Now the docs want to remove my uterus to get to the fistula, and then give me an illeostomy for 3 mos to allow the colon reversal to heal.... Sounds like too much. I am going for a 2nd opinion. :)
JoDee Aug 5, 2010 6:08 PM
Judy
Okay, your'e 71 and still working, so that must mean that you are in good health. I too had emergency due to divirticulitis and my colon burst. I had my bad for 3 mo's & couldn't wait for my reversal. The bad is nice when it comes to making trip to the pot, but I just hated all of the things that its presence stopped me from doing. Surgery is much easier on the reversal, especially if you went thru the first part okay. Just have to watch what I eat, chew alot, and I stay very active. If you have a good doc, go for it. But, the biggie is that you really have to want to rid of the bag. If I had to do it over again, I would have done exactly what I did. Good luck on your decision and keep us posted.
shirley Aug 5, 2010 3:06 PM
Carol
Best of luck Carol

Hope you are home by this weekend.
judy Aug 5, 2010 10:33 AM
reversal
Reversal scheduled for 8/31, came on here for the first time, to read pro's & con's. Now hesitant to have it done. I had emergency surg. in March to save my life, due to diverticulitis & blockage, thus the colostomy. Don't mind the pouch at all, much better than constant running to bathroom, can eat whatever I desire & feel great. I'm a young 71 & could have had reversal 2 mths ago but didnt want to be laid up for summer. After reading all that can go wrong, not sure I want the reversal now, anyone have any thoughts on this. Have an excellent dr. but he said reversal will be extensive & will be off work at least 6 wks.
Susan Aug 5, 2010 7:19 AM
Quick Recovery
RE: Carol,

Carol, I will keep my fingers crossed for you. Sounds like you have the worst behind you and now you can start to heal. I can't wait to have my surgery done:). Did you have a simple reversal?
Carol Aug 4, 2010 12:39 PM
After surgery
Still in the hospital Surgery went well took around 3 hours. They are waiting for me to pass gas and stool before I can go home Hope by the weekend
Susan Aug 2, 2010 8:23 AM
Canada
RE: Shirley,

Montreal/Quebec been there and Love it. But your right it is a little too far for me. I'm keeping my fingers crossed and researching as much as I can about my condition before I see the surgeon Wish it was simple:). You have been very helpful, Thank You, I will stay in touch, this site has been a blessing.....
shirley Aug 1, 2010 6:52 PM
Susan
Susan

In fact when I had my first surgery, my surgeon had to call in another surgeon to double stitch my bladder, it was so bad, because of the fistulas. Sorry but I live in Canada, Montreal Quebec..that will not help you at all.
take care
let me know how things go
shirley
Susan Aug 1, 2010 6:22 PM
Complications with fistula
RE: Shirley,

Shirley thank you so much for sharing with me about your ordeal, it has helped me to better understand my situation. I hope the worse is over for you. Sounds like you have had a lot to deal with, and I can totally relate. I had no idea a fistula could close with the use of predisone or what a J-pouch consisted of. Your information will help me to better advocate for myself when I go to surgeon in Boston MA. on Aug 10th. The local surgeon misguided me. I live in Springfield Massachusetts, how far is your surgeon from me?
TTYL :)
shirley Aug 1, 2010 4:45 PM
Gary
Thanks for the advice
But my problem at the moment is that I go to the bathroom much too much. So I am on Metamucil 3 x days and if I need more help I take 2-3 imodium tablets as needed. It really helps. This is what my Dr told me to do until I see her.
shirley Aug 1, 2010 8:12 AM
re: Susan
Hi Susan
I had developed fistulas that went into my bladder.
I was having lots of UTI's and the meds were not working. I even went on prednisone to help close the fistulas, which did work. And since I had Crohn's/Colitis for over 30 years with strictures, I knew it was time for the surgery. And when my Dr opened me up she said that I was a mess. :)
I was so ready , I really could not have waited any longer.
A J-Pouch is "an internal pouch formed of small intestine. This pouch provides a storage place for stool in the absence of the large intestine. Anal sphincter muscles assist in holding in the stool. Several times a day, stool is passed through the anus." We went into the the 2nd stage of the operation with the idea of just connecting me to my rectum, but there was too much scar tissue, so she had to make a J-Pouch and cut away some of the retum. I am adjusting to my new system.
Best of Luck Sue
shirley
Gary Aug 1, 2010 5:48 AM
Shirley
Glad you are home! Sounds like you had quite an operation. I had scarring from radiation and found that fiber helps just a little. If that doesn't work, you might try laxatives. If I don't take them each night, I can't poop. Good luck to you! Glad you're back!!!
Susan Aug 1, 2010 1:35 AM
Post Surgery
RE: Shirley

Glad to hear things went overall well for you. What is a J pouch? I am hoping to have my reversal done soon. I had the emergency stoma on March 25th and was scheduled for the reversal on June 30th, but due to possibly developing a fistual, my original surgeon referred me to a Colorectal Surgeon. I was not happy with her plan so I am going out to Boston on August 10th for a 2nd opinion. I'm going on 5 months now. Wish me luck. I cant wait to get this reversed and my life back... Keep us informed on how your healing...
Peace, Sue

PS- Has anyone out there every developed a fistula?
shirley Jul 31, 2010 8:42 AM
home from the hospital
Hi
I just came home from the hospital on Thursday the 29th having my stoma reversal done on the 23rd. Only 7 days in the hospital, less time then the first surgery which was 3 months ago.
I was to be reconnected straight to the rectum, but there was too much scaring in the rectum area, she had to cut off some, so my Dr. made a
J-Pouch. The operation took 4 hours, too much scar tissue once she opened me up again. She said I gave her a work-out.
Other then that things went well. Still having pain, I quess with 44 staples one would. Managing it with tylenol and once in awhile some stonge pain killers.
Taking Metamucil 3 x day which helps. I will see how things go in a week. I am keeping a food-pain-bathroom journal which should help me understand my NEW BODY'S function.
But so GLAD to be home.!!

shirley
JoDee Jul 29, 2010 5:50 PM
Good Luck
Best of luck to you Carol, Denise and Jenny. Please keep us posted. My prayers are with you!
Jenny Ford Jul 29, 2010 5:01 PM
Reversal
My Dad is 66 and is scheduled for his reversal op tomorrow morning, am keeping everything crossed for him x
Carol Jul 29, 2010 4:58 AM
Leaving for the Hospital
Getting ready to leave for the hospital for my reversal surgery. Will let everyone know how it goes as soon as Im up and feeling up to it. Take care everyone
Denise Barker Jul 28, 2010 9:11 AM
reversal
Allen
I will let you know how it goes as soon as I am up and about. Take care everyone.
Denise
James flamish Jul 27, 2010 12:02 PM
Attn: Aj
Aj I had my reversal done almost a year
Ago and I am feeling great. I did not have
Cancer but I did have an ostomy and had
The reversal exactly 3 months later and as
I said it's almost a year now that I had the
Reversal with no problems. I don't know
Where u from but I'm from Bethlehem
Pa and here is my surgeons name and phone
#. Dr Pendurthi Kumar, Berman MD
+1 (610) 882-0199. I had dr Berman as my
Surgeon and dr Pendurthi sat in. They are
They are the best on the east coast. They are
Both onocoligsts and Pendurthi specializes
In cancer. You can email at jflamish2000@yahoo..com
If u have any ???. Good luck and I hope & pray
Everything is ok for u.
James Flamish
Susan Jul 27, 2010 10:27 AM
RectalvaginalFistula
Has anyone been diagnosed with a Fistula post surgery? If so can you tell me what the procedure was? Any excellent surgeons who specialize in stoma reversal and/or fistula repairs using minimal invasive surgery that you can recommend?
JoDee Jul 27, 2010 9:36 AM
AJ
I do not have any insight as to colon cancer. I do however want to tell you that you're in my prayers. Find reputable oncologists..if there is anything that I have learned by my friends on this site it is that we really need to be very picky about our dr's and surgeons. Afterall it is OUR lives we're talking about. I'm not sure, but there be other sites on the Web that deal with the cancer issues. Good luck to us and always, always, keep us posted. Bless you.
Carol Jul 27, 2010 6:37 AM
Getting ready for the reversal
I will be having my reversal surgery on July 29th. I'm a little scared, but very ready to get it over with. I have a great surgeon and an awesome support group (my family). Yea they really don't know what I'm going through but they keep me strong. If any one has any info on what I should aspect after my surgery pleas let me know. I will also be having my gall bladder out at the same time. Feel free to look me up on Facebook, sign on is carol miiss Take care everyone. Good luck Lacy with your surgery too, looks like we will be in on the same day.
Anonymous Jul 27, 2010 5:04 AM
AJ
I had cancer and though it seemed a lifetime before I got better, I am back to normal. It was not a fun road but I made it. I went through chemo, radiation and hyperbaric chamber therapy--and pain. You just have to hang in there. Plus, on top of all this, I'm HIV+. But I'm here. I look and feel better. When I see those St Judes commercials on tv, and those little kids look so strong, it gives me hope. Hang in there!!!
Debby Jul 26, 2010 8:24 PM
cancer
AJ > sorry to hear about your cancer. Will pray for your quick recovery and hope you find the info you need,
Susan Jul 26, 2010 2:15 PM
Response to Colon cancer
My advise is do your own research and learn as much as you can about your condition, and how to treat it. Find out what stage you are in, and the type of carcinoma. You should get at least 2 opinions from qualified colon oncologist, even if this means going out of town to compare the treatments. You are your best advocate! Good Luck, Stay Strong
AJ Jul 25, 2010 2:11 PM
COLON CANCER
I JUST FOUND OUT I HAVE COLON CANCER, WHAT CAN I EXPECT NEXT? CHEMO,RADIATION, HOSPITAL STAY, HOW LONG?
Susan Jul 25, 2010 6:59 AM
colostomy with possible fistula
Hello Friends,
I am also a Colostomy friend who share your despairs and concerns. I am a 45yo woman who had a history of diverticulitis. After a colonoscopy in 12/09 and a surgical consu;t I was advised I did not need surgery. Well on March 25 2010 by sigmoid portion of my bowel perforated and I ended up with a colostomy. As you can probably all share dealing with this has been physically and psychologically challenging. I find people to be supportive, but no one really knows unless they are dealing with it themselves. Sometimes I feel very alone with this problem. I was scheduled ob June 30th for the reversal but after performing by pre-operation fleet enema I noticed possible fecal residue coming from my vaginal opening. I reported this to the surgeon, and 2 hours prior he cancelled the surgery to rule out a Fistula. I had 2 pelvic exams since one from the general surgeon, and one from OBGYN both said they were normal and no fistula was seen. I had 2 barium enemas, and a vaginogram and both showed no signs of a fistula, and my surgeion felt it was cross contamination, and rescheduled the surgery for Aug 2nd. However my OBGYN who I have known for 25yrs, told me to get a 2nd opinion from a Colorectal surgeon. So on July 19th I went for a consult. I was shocked to hear her approach. She said that Fistula's are hard to detect from test, and based on my one time symptom she would plan ahead and proceed with the surgery by bringing in a ORGYN Oncology surgeon to remove my uterus so she can repair the fistula, then she would remove the remaining diseased colon and complete the bowel reversal, then she want to give me an illestomy for 3 months while the bowel and fitula heals. She blew me away, and I couldn't even process what she was telling me. It sounds very invassive, and the more they do the more complications likely to happen. Has anyone ever had this experince, and does anyone know a good Colorectal Surgeon? I live in Massachusetts. Thanks Friends
JoDee Jul 23, 2010 10:25 PM
Allen
Let me just say this, the pain is not like the pain that I endured after my emergency surgery with the bag. the pain will just decide to reveal its ugly head one day for no particular reason. It isn't pain that is not tolerable, but it is something that I never had prior to all of this. Most days are just wonderful. I continue to take stool softeners with each meal and have learned to eat well...alot of fish, pasta, etc. You know, stuff that makes it easier to poop. I am exercising every day and have since my reversal. I get mad sometimes because I am not supposed to eat strawberries, pineapple, tomatoes with seeds, lettuce and basically all of the stuff I used to pig out on. But when I look back in retrospect, I am glad to be alive. Don't get me wrong, when I have a "bad" day I have myself a lil pity party and then get on with it. I hated the bag and couldn't wait to get rid of it, but I was so scared of the reversal surgery. I had the bag only 3 months and so the emergency surgery was very vivid in my mind. I was so relieved after it was over and I could actually get out of the bed and walk the evening of my surgery. I hope you're doing okay. If you are afraid of the reversal...don't be, well, especially if you have a good surgeon. I have just been horrified hearing sooo many stories of our "friends' here that have had terrible problems because of poor medicine. Good luck and keep me posted.
Allen Jul 23, 2010 7:14 PM
Denise
Please let me know how it goes as I am going in for reversal in August.

JoDee, how longago did you have yours? Sorry to hear you are still having pain.
denise barker Jul 23, 2010 10:07 AM
colostmy reversal
I have just heard i am having my colostomy reversed on 30th july. i have had my stoma for a year following bowel cancer. after radio/chemo treatment the cancer apparently has gone. i have a hernia on my stoma which is giving me problems, hence the reversal. i just hope it works and i do not have to wear a bag anymore. i was very grateful at the time to have a colostomy as i was in so much pain but would feel so much more feminine and confident to have my body back to normal.
i will let you know how it goes.
JoDee Jul 22, 2010 11:07 PM
All of My New Friends Here
I cannot believe the horror stories I have read on this site. I felt like I was going thru so much and in retrospect I have found that I am extremely lucky. I had a hernia when I was wearing my bag but that was taken care of during the reversal surgery. I was sooo lucky that I had the surgeon that I did (Ididn't even know him prior to my emergency surgery due to my colon bursting). All I can do is pray for everyone here and tell you, there is light at the end of the tunnel. Reversal surgery, at least for me, was so much easier and less invasive. I surprised my husband with the attitude that this just wouldn't knock me down, and believe me there were some really bad and painful days. But, I was just determined to get back to "me". I'm still not there and there are so many daily struggles as far as diet, pain and emotions. But I am getting there. If I can endure this all of you can. OMG prior to this ordeal I had to make the doc lay me down when they were taking my blood for a physical. It's been an eye opener and I have never been so thankful for my life....I wish and pray for all of you and us that go thru this. There are several things that we all have in common: (1) nobody will understand what we are going thru but the people that are and (2) we will never be the same person. Good luck to all of you. I pray for my friends every night...it is a tough battle, but stay strong.
Debby Jul 22, 2010 9:28 PM
Insurance
I just found out that my insuance company UNITED HEALTH CARE has been terminated by Florida hospital and its affilitates. OMG, and I need another surgery. Now I will have to find a new surgeon and go to a hospital 20 miles away.. too much stress. I wanted to get this all done before the school year starts, as last year I missed the whole first 6 weeks of school. (teacher)
Doris Holly-Barksdale Jul 22, 2010 7:13 PM
Colostomy Reveral
This is for Shirley I had surgery on June 21,2010 and I have a colostomy bag, during this time I get depressed but like I'll be glad when I become normal again.
Sue Jul 22, 2010 1:31 AM
Lacy
Lacy: I got sick in Nov. 2009 and I am still in pain and have complications aplenty. I was told it would take a year to heal.
I have to have yet another abdominal surgery I just found out today for a hernia. That will be 3 of them since November.
I am very depressed to say the least and it was no picnic nor piece of cake as promised by the surgeon.
I feel like I have been deceived quite frankly.
With all of the pain and suffering I'm going through I honesty wish I'd just plain died in November 2009.
Pain is all I know. I am sick of it! Is there truly an end in site with this nightmare!
I know what you mean about waking up with a damned bag on you with no real warning. Same story here.
These "professionals" sure lack communication skills don't they?
Take care of yourself best you can. Try to stay positive they keep telling me.
My patience has run out however. :(
*sigh*
debby Jul 21, 2010 9:34 PM
reversal
LACY, Please do not be scared, the surgery to reverse your colosotmy is nothing compared to what you have been through. You will do fine, and we will send prayers your way. The surgery is not as painful as the first one, and you will be up and chasing after those little guys. : = )_
Lacy Jul 21, 2010 1:54 PM
colostomy reversal
My name is Lacy and i am a 31 year old mother of three very active boys. On halloween last year on my way to pick up the boys to go trick or treating i was in a horrific car accident. Thank God i was alone. I was in a coma in ICU for 33 days before i woke up. When i woke up i had a colostomy bag it was so devistating i thought it was the grossest thing ever. but now 8 months later im on my way to have it reversed in 10 days and im soooo scared! I know i dont wanna keep it any longer im just freaked out about the srgery and how long will it take to recover?
Tonia Jul 20, 2010 9:41 AM
Hi Jason
Jason, I truly understand in regards to you feeling like your life has been ripped from you in a split second it seemed like! I'm 41 years old and was devastated when I learned that I had Colrectal cancer! As you stated I to was a working person and pretty much out going! I went to work on Friday and Saturday was sitting in emergency thinking I had gas on my stomach...well that was 8 months ago! Complication after complication has arised and I to have to deal with docs resheduling! Now I'm facing another surgery August 17th! Please stay strong and believe that GOD has you here for a purpose! You will make it out of this and have a helleva testimonial! Some days will be better than others and its ok to be angry but turn that anger into a smile knowing that you perhaps have encouraged someone else to be strong! The good thing is that you are "STILL STANDING" and you are making it! It's working out for you...just gotta have patience which it sounds like you have alot of! Your life will just be beginning all over again and better than ever! Don't stress about the medical bills...trust me we all have them but right now we can't be stressed about paying it all back...do a payment plan and let GOD work the rest out! Stretch the plan out as if you were buying a house...over the next 30-40 yrs! You are still young and got your whole life ahead of you! Feel free to email me @ tonia.johnson41@yahoo.com or look me up on facebook under tonia renee johnson. Take care!
Judie Jul 19, 2010 3:58 PM
Don't lose hope
Hi, Jason

I read your story and you must be going through so much emotional pain right now. Don't give up. You're life is going to be great. It's just on a different course right now. If the reversal is what you want, keep pushing the insurance companies. Don't let them keep pushing back the surgery time. They don't want to pay.

My whole experience since my first surgery, which lead to the colostomy bag, back in June 2009 has been the hardest thing I have ever endured in my life. It has taken me a long time to come to terms with what has happened to me. Scary stuff. I can relate to many people on this site who share their experience, we want to call it that.

Please keep us posted, Jason.

Judie
JASON Jul 19, 2010 1:33 PM
COLOSTOMY BAG REVERSAL GONE WRONG
i was a 20 yr old college student with a job living the best times of my life, but all that came crashing down one night wen i suffered a gunshot wound at a party which ultimately put put me in a colostomy bag at the end of my 6 hr surgery. At the time i had idea wat it was,being so young i was devestated but at the same time i was happy to be alive. i was supposed to have it removed within months of the accident but the doctors found a cancerous tissue in my chest during a regular check up. my colostomy reversal was delayed so i can follow up on this mystirious tissue. eventually i was dianosed with testical cancer, and went through kemotherapy. i was 21 yrs old living with a colostomy bag and having to deal with cancer all by myself, i was living a nightmare compared to the life i once had. Im a pretty strong person but damn this was too much i felt like my life was stolen from me at my peak. but being as young as iam i knew i had much fight in me i wasnt gonna let all this ruin the rest of my life so i had to some how stay positive.after months of kemo i grinded it out and after 2yrs of many doctor visits and ct scans the cancer had shrunk and was pretty much under control.(in addition during this whole process im stuck with thousands of dollars of hospital bills that i dont think i can ever pay). now im 23 and in the process of FINALLY gettin the colostomy reversal but STILL more problems came up like having to deal with medi-cal and doctors re scheduling appointments which take a month or 2 to be seen again. so those few months of having the colostomy bag turned into yrs and still waiting till this day to have it reversed so i can resume goin back to work and college living the life i once had
Sue Jul 18, 2010 10:50 AM
debby
debby: The surgeon that operated on me could feel the hernia with his hand when he had me cough. I never had any xrays nor a CAT scan. This has me concerned! It seems rather odd to me. I am supposed to go to the hospital for test on the 10th of August. I'm tempted to cancel this surgery. I'm just beginning to feel 1/2 alive now and dread being cut open again. I don't know anything about hernias. I do know that is I try to do anything for any length of time, I get this pain in my left lower quadrant not far from where the colostomy bag was located. I am really depressed about this to say the least. I
I hope you get answers soon. Please keep us posted on your condition. This is a horrible thing to go through and being broke makes it all that much worse! Take care debby and thanks for the message.
Sue
debby Jul 17, 2010 12:26 PM
hernia
to SUE, I may also have a hernia, I have to go tomorrow, (sunday) to have yet another CT scan. I had my first surgery August 25, 2009 for diverticulitis, the surgery failed and a week later I was sporting a colostomy bag. I had three serious infections that put me back in the hospital and had wound care home nurses and colosotomy nurses. I was broke. was in the hospital a total of 23 days. I had my reversal surgery December 15, 2009, had yet another infection after that surgery. I have had pain and swelling ever since, had a CT scan 3 months ago, still paying the hospital off. and now I have a swelling and when I cough it expands, I have pain in my back just like when I had diverticulitis. So, I am praying all is well for us all. SIGH
JoDee Jul 14, 2010 11:22 PM
Marina
Although I am surprised of your decision, I totally support you. All of this experience is based upon each of us as individuals. NO person experiences the same emotional and physical trauma. When you are ready, you will know it. I for one, could not wait to get rid of my bag. Oh, sure, it was convenient for me at times, but I knew I was ready to be rid of it. If you have a competent doc, rethink reversal. It is much easier than you may think and you will be able to live your life to the fullest once again. But, that is soooo up to you. Good luck to you, and keep all of us posted.
JoDee Jul 14, 2010 12:04 AM
Shirley
No, it is horrible to wait. but it is a wait well worth it. You will see. Just keep thinking positive and when you're in the hospital just keep thinking how much better it all will be.Make them get you out of bed and walk...even if around the nurses desk. It will help. Believe me, and we all know this, you are going to be a different person after this is all over with. You will be thankful for your life and your health. Nobody understands that better than I do and your friend here. Stay strong and please, please keep me posted. You will be just fine. Wait and see.
Carol Jul 13, 2010 5:06 AM
RE: Colostomy Reversal Surgery
Has anyone had trouble with their gallbladder. I was in the ER on Saturday with a stabbing pain in my right side that went up to my shoulder. They took so many test including an EKG Doc said he thinks it might be my gallbladder.

Gary I do work for a great place very family friendly.

Martina I friended you on facebook. Also good for
you for knowing what you want and sticking to it.
Best of luck to you.

Shirley I am so happy everything went well for you and your reversal surgery.


If anyone is interested feel free to add me to their facebook page . Facebook name is Carol Miiss.
shirley Jul 12, 2010 8:40 AM
JoDee
Thanks for your well wishes. If I do need to talk, I will email you. I have also be taking long walks and it helps with the mind and body. I hope to get back into it ,after I am up to it. I am a bit anxious about this surgery. It is no fun to wait. The first one was an emergency and my surgeon slip me in over the weekend because she was on call. Lucky Me !!
thank again JoDee
Martina Caravan Jul 11, 2010 11:51 PM
UPDATE :)
Hey everyone, I just thought I would post an update...I kinda feel odd sharing it with my non-ostomate friends cause they don't seem to understand any of my crap talk :P Anyhow, I had my colonoscopy appointment on wednesday and all went well, the surgeon said everything looked perfect from both ends..all nice and pink with no signs of anything :) He said..I'll see you on tuesday for the reversal...and I replied...the only way your seeing me on tuesday is if your taking me out to dinner cause I;m not getting the reversal :P I kinda caught him off guard and he was quite surprised that at 31 yrs old I was actually refusing the reversal, although when I explained my reasoning for it he said he understood where I was coming from and that he respected my decision :) He said he would be gone (practicing in another area) for a year but would be back next september and that he would pass along my file to his colleague who will be taking his patients just in case I change my mind...but I don't think I will. For once since this whole sickness started I finally have my life back, I am in control, I am able to do things with my kids. I have missed out on so much because I was always sick. I even played basketball and baseball !! I thank everyone who has posted their experiences both good and bad cause it gives us all the information that the doctors don't tell you. I think for me not having the reversal is the way to go :) If any of you would like to chat about the colostomy or the weather or just need a friend feel free to add me if your on facebook or drop me an email, my facebook id is martina osborne-caravan and my email is carlcaravan@nf.sympatico.ca
JoDee Jul 11, 2010 11:17 PM
Shirley
My prayers are with you girl. Trust me, the reversal surgery shouldn't be nearly as bad as the first. I was one of the lucky ones and made it through like a breeze. Only 3 days in hospital. My reversal was March 16...I was so afraid of another blockage that I find that I am still chewing my food ALOT and watching what I eat. My doc put me on stool softeners and they have helped. I walk everyday and I think just getting your body moving help recovery. I wish you good luck and pray for you. Stay positive...this whole experience is mental and physical as well. I can be contacted at jodeebobh@aol.com if you want to chat. This is such a great site. You have already become friends with some really great people. Just wait and see!!
shirley Jul 11, 2010 10:40 PM
colostomy reversal
Hi
I had a Colectomy preformed in mid April 2010 (due to 30 years of Crohn's/Colitis)
I have a bag and I am having no problems with it at all. Next week (end July 2010) I am going back to the hospital to have a reversal. I hope that all goes as well as my first operation. I have no great expections, but in a way, will be happy to be "back to normal". I know that I will be going to the bathroom much more ofter and will have to know what foods work for me. Wish me luck
thanks
Tonia Jul 10, 2010 3:57 PM
Sue
Hi Sue! Let me 1st say God Bless You! You sound like you really need some shoulders to lean on for support and you have found it right here on chat! You can be yourself with all of us because we all share similiar the same worries, pains, and recoveries! We will all pray for you but please understand that God has you on this earth for a reason and your good time is coming! You are a valuable person and just imagine the lives you have helped by just chatting on this line! God knows all of our pain and suffering and he will not put to much on us that we cannot bear! My heart goes out to you because I too faced so many complications that docs say they had never experienced which I found out was a bunch of crock because I found you guys here on chat! Until now...I felt so alone and felt no one possibly understood what I was going through! You are stronger than you give yourself credit for and your will to fight still remains. Might be a few adjustments in your life that you have to get use to but you are strong enough to make it and we all on this chat line are strong enough to become apart of your family and lift you up in encourament! Docs have screwed some of us over big time but they are not the last person to have the last say so...GOD is! That doc that botched you up he has a higher power to answer to when his time comes and it will be 3 times worse then him messing up the life of such a beautiful person!
Gary Jul 10, 2010 9:09 AM
Carol
Wow! You work for a great company! My idiot boss did not care. He told me to do chemo on a Friday and come back to work on Monday. I told him I don't think that is how it works. Man, was I right. Chemo just wiped me out! I was so sick. Since they did not offer any benefits, I said Adios and never looked back. you are so fortunate to have such a great place to work!!
Carol Jul 9, 2010 7:32 PM
Thanks Gary
This site is very inspirational. It is so good to have people to talk to that are going through what we are going through. Family and friends can say they know what we are going through. Really they have no clue. I have had great support through family and friend. Reconnected with classmates on facebook. Very lucky to have a job that is supportive. Never gave me any problems when I needed to take off for chemo treatment. My boss set me home one day when I was feeling horrible. If any one needs to talk of just want to vent. feel free to email me at purpleno1@comcast.net
JoDee Jul 8, 2010 5:14 PM
Gary
Hear, Hear. I totally agree with you, Gary. On this site the door is open...we don't have to be embarrassed about asking questions. In the world we each live in, the people around us do not and cannot know or even begin to understand the emotional and physical roller coaster that we have to ride each day. I love this site too, but find myself very leary of doctors. I can't believe the problems people have had to endure because of stupid and lazy doctors. I found this site when I was wearing my "bag" and going through painful times. I found it comforting to listen to others explanations and stories and it made my transition through the reversal surgery so much easier. I feel very lucky to be alive today and hope that I can help anybody out there that has to go through this experience.

Stay strong my colostomy friends....we will always have a common and strong bond.,
Gary Miller Jul 8, 2010 12:50 PM
All who write to this site
Everyone who writes on here is such an inspiration to me! The surgeries, the pain, the not so good doctors and the problems---all of us had some, if not all of these. I love this site. Everyone of you tries to find some kind of peace after these tough surgeries and I think of each and every one of you. No one in the world understands what we go through. And the pain for some of us!!! Hard to explain and I don't want people to think i'm a whiner, but it hurts at times!!!

Here's to all of my colostomy friends---you are tough people and an inspiration!!!!!
Sue Jul 8, 2010 12:12 PM
Tonia
I already had the scar tissue removed when the took the bag off of me. It was so thick that the surgeon could not see my colon. My internist said that most of my colon is now gone, that is right, gone.
I did not have cancer, my problems all stemmed from a botched up hysterectomy! I had a pain that appeared on the left side after this surgery at 6 weeks post-op and was told it was adhesions. I lived with this for 6 years before the whole thing manifested in diverticulitis and peritonitis had set in. I ended up being operated on at 3:00 a.m. because I was set to die.
It would have been ok with me if I had died. I am so miserable and my life is a nightmare.
I'd had never found out I had this hernia (which is the type that can lead to gangrene) unless I had pursued this with the surgeon. He told me that I might have been born with it (yeah right) or he had "missed" it.
All said and done, I am a mess and I'm sure sad and depressed.
I hope that your hysterectomy goes ok. Make sure you check the doctor out very well that plans to do it. I wish I had done this. Blind faith in these "doctors" has led me nowhere.
As for pain pills, I can barely get any of them as they cause constipation.
I am still taking stool softeners and laxatives because I like Gary has too - that is because there is not much of my colon left I was advised after the surgery by my internist, not the surgeon himself!
I am so frustrated and sad and depressed. I guess that comes with this topic. :( again.
Tonia Jul 8, 2010 10:05 AM
Sue
Hi Sue,
I too can share with you about the scar tissue...my scar tissue is so thick til I have to have a surgeon to come in and remove the scar tissue in order to be able to see my organs an get to where they need to be so they can perform the surgery. I too suffer with hernias and it seems they keep coming back! I have had 3 major surgeries prior to this and it has been explained to me that in other surgeries the docs did not take the time out to remove the excess scar tissue so it just kept building up more and more and now its just causing more and more severe pain! In 2008 I had a mass hernia on my stomach til it just started to take over and cause problems with organs i needed to function! They had to cut me open while trying to do laproscopic surgery to remove my gallbladder and discovered that inside the big hernia was 5 other hernias! After they removed them i ended up my stomach had so much space til the excess fluid didn't know where to go because they gave me no draining tube. My stomach just kept pertruding and growing til in a matter of 2 days I look like I was about to deliver twins! Docs had to sedate me and mash and the fluid was running out of my navel like niagara falls! This continued until the fluid just started to evaporate throughout my body. So by all means please let them take care of the scar tissue and hernias...it will help you so much in the long run and help with things not building up on top of eachother. Please keep us posted on how you are doing. Best of luck to you and God Bless!
Tonia Jul 8, 2010 9:51 AM
Thank You Gary!
Hi Gary! Thank you so much for taking the time out to explain things to me in detail and finally knowing that I am NOT ALONE! It seems that no one understands...my husband, my family, my friends! I think they feel like the pain could not possibly be that severe and constant! I have tried to make them understand but in doing that I get exhausted! Docs had told me that this matter is urgent but then got a call and said the surgery had been pushed back to Aug 17th due to one of the docs conflicting shedule. You are so right...I am overwhelmed and for the past going on 8 months I have kept so much bottled up...until I got on this chat session and know that there are people who care and know what I'm going through. You are a GREAT INSPIRATION TWIN! It just seems that I was at work and going on ith my life and the next it was like my life had been swepted away from me! Docs have advised that colon is filled to capacity with stool so don't do anything to cause it to burst...how do I know what to do and what not to do? How will I know it has ruptured? Gary right now I'mon 4 different pain meds...before this cancer came about I did not drink, smoke, drugs or anything...now the pain is so severe til I have to chew ice and rock alot just to stay afloat and focus on something positive! I just never thought it would be like this an the doc that did the surgery told me this was an easy fix...no I no longer hear from him and that's been 4 mths ago!
Sue Jul 8, 2010 7:30 AM
Complications
I ended up with a colostomy bag as well. I had the reversal surgery done at the end of January 2010. I kept waiting for fabulous results and have had nothing but severe pain for the most part. I was told this was scar tissue.
It seems that it is not scar tissue but it is a hernia. Now I have to have yet another surgery to have this hernia repaired in August.
Oh what fun, 3 abdominal surgeries since November of 2009.
Has any one else developed a hernia from these procedures?
I am both sick and scared to death (again ... seems non-stop to me).
Really jealous of those that seem to get through this with no problems whatsoever.
Replies appreciated and support even more appreciated.
Seems I'll be going to/from the surgery via a taxi cab as I can't find anyone that seems willing to pick me up and bring me home.
I think I need a new life/new set of friends. :(
pam rosser Jul 7, 2010 8:53 PM
colostomy reversal
Hi to everyone who is scared of reversal. I nearlly died in Feb 2009 due to Divaticulitis & Peritonitis.I had to have a colostomy .I was ok & was sent home. My stoma nurse visited me 3 days later & rushed me back into hospital as my stoma had retracted - another 5hour operation. I recovered well & was back in work by July. I coped very well with my bag (I had no choice). Obviously I sometimes had bad times. I am 54 now & a hairdresser so I am active. I had my reversal on 12th of May this year. I can`t believe how well I feel after only 8 weeks!! It was nothing as traumatic as the first op`s. Obviously I`m not running round yet - but I feel good. It seems a lot of people have problems with dairrhoea after the op, but that did`nt happen to me.(that was a big fear). So I would say Go for it .if you have the chance!!!!! I hope I have taken some worry off someones mind. I know how I felt before op. Be Happy Love Pam x







Hi everyone who is worried,
Gary Miller Jul 6, 2010 4:27 PM
Tonia
Well, hello twin sister! I had anal cancer--close enough--and the pain was just horrible. It lasted over a year. Had to take so many pain pills. They helped a little but that is a very sensitive area. Having cancer in that area affects how you sit, lay, stand, etc. I feel for you. Now, for the good news! Get that temporary colostomy done! It gave my butt a rest. I had it for 8 months and it was a Godsend.. A colostomy is the last thing you need to worry about. It is really not that big of deal. It will also keep the poop from stacking up. Yes, it was embarassing and somewhat of an inconvenience, but you adjust to it. Everyone on here will tell you the same thing. It really is not that big of deal. My pain has finally gone away. I thought I would have to live like that the rest of my life but it went away. I do get a little discomfort once in a while and have to take laxatives everyday to poop, but from what I went through, you will be fine. My damage was done from the radiation treatments. My dr. never told me that I might have radiation damage and it burned the last foot of my colon. It will always be like that. But, the laxatives make it easier to go. What you are experiencing, all of us have, in one way or another. Keep in touch by posting on this site. You have a great support group on here. Now, for the hysterectomy, worry about one thing at a time. Sounds like you are overwhelmed. It just so happens it coincided at the same time. Take it one matter at a time. You will be just fine. Please let us know how you are. All of us on here care!!!!!!!
Tonia Jul 6, 2010 3:38 PM
Thank you Allen for your uplifting words!
Hi Allen! Thank you so much for the words of encouragment because they were truly needed! I just keep feeling like my life is being put on hold and i'm so afraid they will not get to me in time! I'm only 41 yrs old and still consider myself young and vibrant...up until 8 months ago! My e-mail address is tonia.johnson41@yahoo.com...we can keep eachother uplifted and praising GOD that we are still on this earth. I dont feel sorry for myself...I just want my life back in order. I keep asking myself if perhaps GOD t me down so that I could get a clear look at the surroundings in my life because I use to work all the time...perhaps there are some things I need t add and some things I need to illiminate.
Allen Jul 6, 2010 7:59 AM
Tonia
Sorry to hear about your ordeal. It has been 6 weeks that I have been out of surgery and have 60 more days with the bag. I understand your worries of going, crappy doctors, going back to surgery and the possibility of dying. I always ask myself the same question.... why me. I seem to accept the facts the more time passes and have really learned to appreciate life and everything it has to offer. Feel free to contact me if you'd like to chat with someone who understands. saillakemi@yahoo.com
This blog has been very helpful to know that I am not the only person going through this nightmare. Thankyou to everyone who has shared their ordeal. and prayers our out to all.
Tonia Jul 5, 2010 5:13 PM
RECTAL CANCER
Hello, I was diagnosed with rectal cancer 8 months ago and I have went thru trauma & pain ever since! What was suppose to be an easy fix with a 6-8 wk recovery time has turned into a walk thru hell!Every complication that could arise...did! My colon has partically closed up,my colon is filled to capacity with stool,i have had anal fissures...you name it an I have experienced it! The doc that performed the surgery has been little to no help in repairing what he obviously messed up! Now 8 months later, countless trips back to ER, a world of severe pain, 3 diffrent hospitals, and still on paim meds! Finally I got a doc that is willing to help me get my life back on track! I'm so afraid! He says i'll have to wear a colostomy bag for 6-8 wks or longer andto top it off...I have to have a hysterectomy along with this surgery! I will have to major surgeries at 1 time! I'm so afraid! I'm scared I might die! My worklife is destroyed! My marriage is on the rocks! It's like damn where in the hell are my friends now! I'm so bitter right now and I know I shouldnt be...but I cant help it! I keep asking myself and GOD please tell me what I did that was so bad that I deserve this! I'm missing out on so much of my life! The surgery date will be confirmed some time this week and I feel like my back is up against a wall and I can't breathe! I just don't know what to do. My mom died of pancreatic cancer Feb. 5, 2009 and 10 months later I was diagnosed with rectal cancer...talk about a shocker! OMG!
Carol Jun 27, 2010 2:42 PM
Shawnee
Glad you are doing better. My daughter hardly left the hospital either. I will be going through the reversal late next month and have had the bad for 8 months now. Im little nervous about it but looking forward to being reconnected My husband and I are still very intimate Good luck with what every you decide.
Allen Jun 27, 2010 11:53 AM
Shawnee
Sorry to hear of your misfortunes. It is so unbelievable to hear of simple procedures going wrong (please see my story). I am so greatful to be alive and looking forward to reversal in Sept. I hope your son and family also recoupe. I know how hard it was on my wife and am so glad to have her support. Hang in there and feel free to contact me if you want to vent.
Shawnee Poling Jun 26, 2010 8:50 AM
Colostomy
I went in for a simple laporscopic ovary removal. During the surgery my rectum was nicked and I didn't know it. I went home and on Easter Sunday I went into the ER in the most horrible pain I've had in my life. I was taken in for exploratory surgery to find out what was wrong and woke up in ICU on a Ventilator. I had turned septic and almost died. There weren't sure I would live after I went into ICU either. I was in ICU for a week and med/surg for 20 days. I had to go back in to surgery again because of an infection, hernia and abcess. It was a horrible experience! My 9 year old was so traumatized that he wouldn't leave the hospital after I was able to stay on a floor that allowed visitors. I had to endure 10 weeks of wound care that was painful. I'm just now able to shower when I want. I thought I might keep my bag, but it has caused issues with my hudband and out intimate life. I hate it, but I'm so terrified about the reversal surgery because I don't want to end up on a ventilator again. We contacted a lawyer because the doctor admitted she made a mistake, but we were told that it was a horrible accident. Our hospital bills are over $300,000 dollars. I am very thankful that I am alive and I look forward to each day, but I;m still scared to have the reversal, but hate my bag so much I don't see a choice. Thank you everyone for your posts and experiences. It's helpful to know I'm not alone.
Carol Jun 15, 2010 9:47 PM
colostomy due to cancer
I had a colostomy due to colon cancer on Oct. 26th of last year. I went through chemo with flying colors and my Doc said I did so much better then he ever expected. I am schedule for the reversal surgery on July 29th. Though I am use to the bag I am so looking forward to being reconnected Good luck to anyone going though this. If anyone has any advice on what to do before and after pls email me purpleno1@comcast.net Thanks
Gary miller Jun 14, 2010 6:52 AM
Allen
Allen, you will find this easier than you expected! I think we were all horrified at first, but you get used to it. I cleaned my bag often because I do not want ppl to see the bulge under my clothes (please, no jokes! Ha Ha!). I just felt cleaner. I also rinsed mine out with warm water after cleaning it. I would change mine every 4 days. The skin was no problem, but if there is, there is a powder you can buy. I am so glad you are alive and well. Time will go by quickly! Don't rush it though. Hang in there! Keep us posted!
Allen Jun 13, 2010 5:02 PM
Thank You
Went in for a routine colonoscopy June 1st. Woke up the next day with extreme pain in the lower abdoman, like nothing i've felt before. Wen't to the emergency room and turns out my colon was ruptured and my body became severely infected (Septic). Mind you, here is an athletic (baseball player) going into a routine procedure, coming out almost dying. 4 days in ICU and 4 in med surg, I am finally home. I can't tell you the appreciation I have for the nurses and surgeon that saved my life. Recovering as well as expected, but not have to deal with this colostomy bag and everything associated with it. What type to get, how often to change, how to keep skin in good shape? I am so happy to be alive that my life has changed for ever. I am still upset with the dr that performed the original Colonoscopy and still wondering if I should get a lawyer involved. This has been the best post and has given me hope. Seems that the 3 months should go quickly and the reversal should not be nearly as bad as my original surgery, but not a walk in the park.

Any suggestions are welcome.
ANNE Jun 12, 2010 5:41 PM
RECENT REVERSAL
Martina, I am from Scotland and had my reversal 3 weeks ago. I almost died last June as my bowel ruptured with diverticulitis and peritonitis. I was in ICU for 5 days expected to die.and really ill for months with burst would and internal infection from bowel. Dreaded reversal and stoma was a nightmare so did not want to keep it. I am cut from pubic bone to breast bone to allow surgeons to clear adhesions and unstick my organs - my bowel was jammed under my rib cage. I am doing so well and was walking on day 3 and am so grateful for all the wind and eventual bowel movement. This was so different an experience. go for it and don't look back good luck,,,,,,,,.
JoDee Jun 11, 2010 10:52 PM
Martina
It is totally up to you, but if you don't feel ready, you probably aren't. If you can find another respectable doc, transfer your records and get back to YOU and when YOU are ready. Not when the dr is. Just my opinion, but looking back on things, I wouldn't have had the reversal if I didn't feel strong and emotionally ready. Think about it and do some online research for another dr.
Martina Jun 11, 2010 3:25 PM
COLOSTOMY REVERSAL
Just an update: I recieved a call today to tell me that they want me to have the reversal next THURSDAY! I am in no way prepared (not sure I would ever be prepared) I told the lady that I was in no way ready to have the reversal and she said that my doctor is leaving the province and if I don't get it done now that I will have to be transferred to another doctor who is unfamiliar with my history :( I have literally been sick thinking about it. I just got my kids back about 2 months ago cause after I got out of the hospital I was unable to care for them so they went to stay with my grandparents and now they may have to go back with them again. I haven't even had a colonoscopy or ct scan since my initial surgery so I can't see them being able to do the reversal without making sure everything is ok to go ahead first ...
JACK SUTTON Jun 5, 2010 10:33 AM
nausea vomiting & tingling sensation
Me again, After my original colostomy, I could not keep food down. As it turned out I was given Percoset/Percodan. Finally I was given morphine instead. That cleared up the vomiting. During the colostomy procedure, however an incision was made in my groin and a cauterization device was inserted and moved around inside my abdomen looking for "leaks" or whatever. Later as I became coherent I noticed that there was a tingling in my right leg all the way down to my feet. 2 years later and I still have the tingliing. So I think that the incision in my groin severed some nerves. Has any one else experienced this?
Any way if someone still has the nausea consider changing whatever pain medication you are taking.
Lisa cook Jun 4, 2010 7:21 PM
colostomy reversal
This a a general comment about reversal. I had a colostomy done from a surgical complication in 10/09. Mind you I do have multiple health problems, diabetes, ibs, gerd and more. For me my doctor did not want to consider a reversal for 6 months I went 7. I am a week out of my reversal, it was a lot easier than getting the bag, I couldn't walk for 8 days after the first surgery and got up post op day 1 with the second, but don't get me wrong, it still hurt. Before going into my reversal I felt pretty good, was back to work, exercising and felt generally ok, I think thats why I feel so well now only one week post op. I'm off pain meds and can walk all over the place. Good luck to everyone going through this experience.
jack sutton Jun 3, 2010 8:48 AM
reversal colostomy
I posted a comment 5/26 about my experience. Would like to clear up my point..I went to the emergency room with shortness of breath and was diagnosed with "congetive heart failure" not chronic heart failure as I previously mistakenly posted. The doctors immediately began injecting Luvinox into my lower abdomen. I was admitted into ICU where my abdomen began to swell. I can't remember how long afterward that the decision was made to do a colostomy, a few days though. The procedure left me with just 8" of colon and the doctor said she found 8 punctures. I had a colonscopy 3 months prior and was found to be healthy and re-scheduled for another procedure in 5 YEARS!!. I was confined to the hospital in various critical care stages, ICU, CCU. for 3 months. I too had to learn to walk and live with "the Bag" for a year.
I obtained a complete print-out of all the procedures, lab reports, Dr. comments, test results etc, and saw an attorney. My wife, a retired nurse felt that the transcripts had been "corrected". The attorney felt the same. So there was no legal grounds for a law suit. The bottom line is that for the last 2 years I have been anywhere from critical to an extensive re-hab, because they administered the injections incorrectly. I hope no one has had a similiar experince. By the way,I am now 73 years old, which makes it an even more un-fun thing to experience. Thanks for listening and good luck to all.
Mechelle Jun 2, 2010 6:05 PM
Colostomy
November 2009 I went to shands jacksonville they sent me home with a perscription for female problems. 2 days later went back to the er 3 months later i relearned how to kinda walk talk and breathe i have a colostomy my lungs went down my heart quit 2times all my organs were septic i now have hernieas cysts in pain all the time.
JoDee May 31, 2010 9:40 PM
Martina
Wow, you really have had a tough one. I totallly agree w/Gary, you really do need to talk to the doc. It is my opinion, however, that you should be the person to tell them when you are ready...our bodies tell us when we are ready. Your age is a plus, but even tho the reversal surgery is not as invasive and painful, you still need alot of strength emotionally AND physically. I wish you much luck and keep us all posted on your status.
Martina May 31, 2010 9:34 PM
@gary
Thanks Gary, I am hoping that it all goes smoothly and I have become very accustom to the colostomy right now as it isn't interfering with any aspects of my life. I am just scared that the diverticulitis is back or will come back and I will have to go through this horrible mess again. If it would have been diagnosed and treated properly I would have never gotten so sick but all the doctors refused to treat me, telling me I was too young and that the diagnosis had to have been wrong!! I was diagnosed using ct.scan, colonoscopy and barium enema so what else did they want? A letter from god! I was refused pain meds because they said it would bind the bowel, which hadn't ever been an issue cause I had constant diarhea for almost 10 yrs! By the time they finally done the surgery I was dehyrdrated to the point where they couldn't even find a vein that hadn't collapsed and my potassium levels were so low that they had to pump it through me before transferring me because they said I was in critical condition and at risk of having a massive heart attack. If only some of these doctors would get off their high horse and believe their patients it would be nice. I was basically told that all the pain was in my head and it couldn't be as bad as I was saying it was...they even went as far as to review my medications for the last 10 yrs!! I had never as much as taken tylenol for a headache until this whole mess, but I certainly didn't want to be in pain and I wanted something to make it go away. I still have a lot of pain in the upper stomach, I think it may be gas or indigestion but boy does it ever hurt, I usually vomit and scream with pain when its there. Hopefully it will all be over soon . After a full year of praying for the lord to either make me better or take me I would feel a lot more at ease to be feeling back to normal :)
Gary miller May 31, 2010 8:57 PM
Martina
You've had a tough time! Trust me---- all of us on here had these questions and all of us wanted to be normal again. I would definitely ask a lot of questions before the reversal. I knew I was ready after 8 long months. I would ask the dr if he/she were sure you are ready for the surgery. Also, you being so young is a big plus. it took me at least a couple of months to get better so be patient. I did not rush the reversal. I wanted to make sure I was ok inside. All of us on here wish you a healthy and quick recovery!!!!
Martina May 31, 2010 7:15 PM
colostomy reversal
I had my colostomy on feb 2/2010, after a long year of suffering with diverticulitis and with no decent doctor who would treat me. I have a huge scar from above the belly button to the pubic area then across almost to the hip, I spent 12 days in the hospital as I couldn't walk after surgery, whatever happened I lost all feeling from my waist down and my legs and feet swelled to 5 times the normal size. When I finally got home I had public health visit every 2nd day to clean and dress my incision and later found out that I have GERD and I had an MRSA infection. Its been almost 4 months and my incision is just now healed and my doctor wants to do the reversal in July. I am wondering if maybe its a little quick considering I have been so sick since the surgery, I have some strength back but not near where I should be, and I have had 2 bowel infections since the surgery. What should I expect when I go for the reversal, I am really not looking forward to it due to the difficulties I had with the original surgery. At 31 yrs old I would love to have my bowel back inside but not at the cost that I will get sick again or have to go through a rough recovery like I did with the last surgery .
jack May 26, 2010 1:03 PM
colostomy problems
Had my colostomy 4/8/2009. My doc said in a myear she would do a reversal, Year went by and she refused to do the surgury saying I would have to wear that bag for the rest of my life. I was 71 at the time I said "uh-uh that dog won"t hunt" Found me another surgeon and he said after readiing her report, no reason why not reverse. Did same and it was a breeze, except for the gas. No pain just lots of it. I didn't mind. as I hadn't "farted" in a year. Doing fine now. I too have had trouble gaining weight Guess why I had to have the colostomy?? I went to the emergency room and was diagnosed with chronic heart failure. They began injecting Luvinox, (?) into my abdomen and punctured my colon 8 times. My gut swelled and about 2/3 days later, operated. out of space...
Gary May 4, 2010 1:20 PM
Keith
It all depends if your dr thinks you are ready and you feel like you are ready. Sounds like the timing is about right but don't rush it if there is any doubt. I had a drainage tube under the length of my incision. I was changing bandages and it accidentally slid out! I was freaked but it was just fine.
JoDee May 4, 2010 1:00 PM
Keith
I didn't have any tests prior to my reversal surgery, however, I did have to have a Colonoscopy a week before. They told me it was like a GPS for them, to see how things had settled and to give them a "heads up" to what they would probably need to do for surgery. I did have a drain tube during my hospital stay (3 days) and then for a 5 day period at home. They gave me small cups to gather the drainage. I had to keep track of the amounts and when I returned to doctor they pulled it out. It didn't hurt, but it did feel strange. I am so excited for you, the reversal surgery for me was a breeze in comparison to the emergency surgery I had to have. Good luck to you!! If you have more questions, please feel free to email me at: jodeebobh@aol.com
Keith Kindle May 1, 2010 1:05 PM
Colostomy Reversal
I had my surgery on Feb 11, 2010 and will see the surgeon for the reversal on June 7th. Can anyone tell what test they have you take to tell if it is time?

Also for anyone who had a reversal, did you have a drain tube in and how long?

Thanks Keith
dona Apr 22, 2010 8:58 PM
RE: Colostomy Reversal Surgery
thanks anne
jessica Apr 22, 2010 11:35 AM
RE: Colostomy Reversal Surgery
im glad to know im not the only person that had that had to get that done.mine happen after i got out of a coma.a nurse said she was tierd of cleaning me up i couldnt move cause i was n a coma 4 a month and lost a son from this coma over a kendney stone i was only 23 im pregnant agin 24 now she is still inside me 27 weeks preg now so evryone getting this surg stay strong!960451
scottw Apr 20, 2010 7:14 PM
Reversal
JoDee nailed it, my reversal was 3/25 and I went home 3/28. I didn't have a bowel movement for 8 days and when I finally started getting them I would have almost no notice so you may want to plan on laying low for a while after surgery. I experienced quite a bit of pain from the CO2 that they pumped into my belly as well. It apparently collected in my shoulders and bothered me for about a week.

I went back to work 4/7. I still have some more weight and muscle to gain but I feel fine.

My only advice would be to walk as much as you can after surgery, it really does help.
JoDee Apr 19, 2010 4:44 PM
Bob
I had to wait 3 months until my reversal surgery on March 16th and it went very well. My 1st surgery was emergency so it was a rough surgery for me (large incision, infection, etc) reversal was less invasive and was out of hospital in 3 days. I'm in my mid 50's so you shouldn't have any trouble. Doc has me on stool softeners (1 w/each meal) and have found that just watching what I eat and chewing my food more have helped in the process. Still trying to gain the weight and strength I lost from all of this, but you will be glad to get back to normal and your normal activities. Welcome your reversal with a vengeance. Good luck and if you ever need to talk I am at jodeebobh@aol.com and Jim is also a HUGE help. He's helped all of us out.
Bob Apr 19, 2010 10:19 AM
Reversal
Surgery..2/11,Colostomy..have follow up with Surgeon on 5/11 and want this reversed as soon as possible. Doing pretty well. Stronger every day. Back to work. GREAT Wife !! With reversal,how long in Hosp and how long recovery ?? 63 Y/o..
Venkat Apr 17, 2010 11:52 AM
Colostomy Reversal
My Dad had diverticulitis and had to go into emergency in Oct 2009. A week later they removed his colon (laparoscopy) and did anastomosis. Within a week, they found out while in the hospital that he had a mechanical blockage in his colon and had to do an emergency surgery and put a colostomy on his left side on Nov 8th. Since than he recovered and became normal. He went in for reversal on Apr 8th and came home on Apr 15th. He had bowl movement when in hospital. Since he came home he did not have any BM and he has nausea and vomiting. He didn't eat any. Anyone has any insight or suggestions of what we are looking at.

Thank you in advance for your responses.
Ben S Apr 14, 2010 4:46 PM
gary
Thanks 4 you're Comment =D
anne Apr 14, 2010 1:55 PM
att dona
Hi Dona I had my op on 4th Jan, had a few complications and yes that happened to me bowel moved a lot of times which is great, hang in there its just great to have a bowel movement again and it goes to normal after a few weeks, it did for me
anne larkin Apr 14, 2010 1:49 PM
dona
hi dona I had my reversal on the 4th January 10 and the same as yourself after a few weeks i was going to the toilet maybe 3 times a day but im now down to an ordinary day but sometimes if i eat or drink something different from my normal stuff i find that i could go a few times per day but thats ok , part of the healing process
Dona Apr 12, 2010 12:06 PM
colostomy reversal
Hi, I had my reversal done on march 8th, things are going well . I just am curious about bowel movement habits of others that have gone thru this. I feel urgency to move my bowels and it seems I go frequently. Is this still part of the healing process.
Gary Miller Apr 11, 2010 6:32 PM
Ben S and Cathy
Ben, you are so young and I bet your body will be back to normal eventually. We have all felt the same way--will we be normal ever again? Also, some of us have had to wear the bag a little longer than we wanted. I had mine for 8 months. All of us who read these posts are behind you 100%. I was like you--didn't want anyone to know so it kept me from dating, etc. It's a very emotional thing also.

Cathy, I hated my bag at first. It was an embarrassment, however, as time went by, I grew kind of fond of it. I kept it a secret, but found it to be very convenient at times!! Hang in there--it will all be over one day!!
Jim Flamish Apr 10, 2010 9:59 PM
Attn cathy
Mine took exactly 3 months since I had my
ostomy, but it depends on the person.
If u want to chat about it u can email me at
jflamish2000@yahoo.com and we can talk
there or call me. My phone number will be
on the email. I've helped 4 people on here
so far and I'm willing to talk to u to help u
if I can. Don't worry though I know it's hard
now but u will be fine.

Jim
Ben S Apr 10, 2010 5:28 PM
COLOSTOMY
Hey every 1 im maybe going to have reversal but Iv got to get 3 tests there not every nice like but if i pass all 3 of them I may have a good chance of it working =D I got a colostomy when I was 9 because when I was a kid I was all ways to scared of going the toilet because it hurt so I tryed to make my self not go but because I did it so much I could see lumps and that in my stomach and any ways I blocked a load of my bowl up and messed it up so when I was 9 they had to take some of my bowl away =[ but any way im 16 now im nearly 17 but I hate having a colotomy because I dont want any 1 knowing about it and I dont want to get in a relationship because I dont want to get to close to them and then there going to find out so I get really upset some times about it because it knocks down a loat of my confidentence and it gets on my nerves because I nearly have my boxys over my head any way im about to have these 3 tests so fingers crost I pass them and the operation works =D
JoDee Apr 9, 2010 11:51 AM
Cathy
I had my surgery Dec 8 and my reversal was on Mar 16. It probably depends on the reason or reasons you had to have the "bag" in the first place. My colon burst, was pretty bad, but since I healed up and everything was going ok I got to have my reversal after 3 months. Ask your doc, see what he is looking at. I don't know if it is true, but I have heard they like to wait several months. If you want to talk you can get me at jodeebobh@aol.com. I know what you mean about the bag, but after my reversal I am consumed with worry about my diet and having a regular bowel movement. When I had the bag I could eat anything I wanted, except nuts. Good luck and I hope to hear from you.
CATHY Apr 9, 2010 8:59 AM
HOW LONG BEFORE REVERSAL
CAN ANYONE TELL ME HOW LONG BEFORE THEY CAN DO A REVERSAL... I HAD MY OPERATION FEB 12 2010.... I FEEL STRONG AND GET HEALTHIER EVERY DAY .. IT IS JUST I HAVE A HARD TIME DEALING WITH THE BAG.. IF ANYONE CAN HELP I WOULD BE VERY HAPPY TO TALK TO YOU
Sue Mar 25, 2010 2:31 PM
for Gary
Gary,
Give it some time. I was 8 weeks post-op yesterday and can now tell some great improvement much to my surprise.
I have another very serious medical condition for which there is no cure. It was a huge risk for me to have the reversal done but I have made it through the worst part of it it seems. :)

I think you need to give it time and patience and also, I do not think that nausea and vomiting are at all normal. I would advise you check with your doctor re: these symptoms.

RE: Pain - make sure you keep up the stool softeners and you might try some senna leaves. Senna leaves aren't as strong as i.e. Senakot. They are much milder and not rough on the system. Can you tolerate any pain medication at all?

Hang in there Gary. You will get better - it just takes time.

As I mentioned before, the surgeon I went to said it takes one year to heal from this surgery.

Take care!!
Gary Miller Mar 24, 2010 5:41 PM
cancer
Has anyone out there ever had a colostomy due to cancer? I had anal cancer (the absolute worst place to get cancer!) and had to get a colostomy so I could give the area a rest. I had the reversal and the anus is still sensitive. Now, I find it hard to have a bowel movement and don't know if it is from the radiation I had to do or is it from the reversal. Just curious!!! Oh, they got the cancer but the healing has been long and painful.
JoDee Mar 23, 2010 10:46 PM
Gary
I have some pain around my incision, but my insides are more sore than painful. About the nausea, are you on any meds that could be making you sick? If not, you might want to ask the doc about it. One thing I've learned through this whole process......ASK QUESTIONS. I get really tired and have to take naps alot, but have been luck to not have nausea. I hope you feel better soon.
Natasa Mar 22, 2010 6:09 PM
JoDee
It's good to hear that you are optimistic and feel good. I wish you that your future farts are just "farts" LOL. Thank you for the e-mail, I still don't know the exact date of the reversal but I know it'll be very soon.
Gary, I think that it's normal to feel week and have some pain around the insicion a month after the opeation. They say that you should take into account how many hours you were under anesthesia - you need so many months of recovery It worked for me and I had 4 operations until now. Important thing is that you don't have fever. Hang in there!
Gary Miller Mar 22, 2010 12:43 PM
Post reversal
I had my reversal February 25th and almost a month later, I feel weak, nauseated, and some pain around my incision. I don't have a fever but am tired of feeling like this! Have any of you had the same or similar symptons? Am I rushing things and need to give it some more time? Thanks to all of my reversal brothers and sisters out there. I love reading your comments!
Debby Mar 21, 2010 10:57 AM
reversal
I want to wish you all the best of health and good luck. After 3 surgeries and 4 infections I am almost 95% normal. Thank God! Keep the faith and live long and healthy.
JoDee Mar 20, 2010 4:30 PM
Natasa
My reversal is overwith. I had it done on the 16th, and left the hospital yesterday afternoon. I am on stool softeners and a low fiberous diet. I am so glad that part is overwith. I experienced my first real "fart" in 4 months and it turned out to be poop!! LOL Doc told me it is normal for us to have these accidents because our bodies have to readjust their habits back to the way we were prior to the infamous bag. He did tell me that too many accidents can be a problem too, but didn't go into much detail about that. I am excited for your reversal surgery and am praying for you. Let me know if you would like to talk, my email address is jodeebobh@aol.com
Natasa Mar 18, 2010 9:31 AM
for Gary
Gary, thank you so much for your answer. I know it will be a bit longer journey than Id like it to be :) I must say stool softeners seem a bit better than the runs some people complain about. Anyway I'd like to hug my younger son without him asking "what's that on your belly?"
Hope everything went well with jodee.
Good luck to you all.
Gary Miller Mar 16, 2010 5:49 PM
For Natasa
Natasa, I think we all have thought about the incontinence situation. I say, just take it all one step at a time. I had my reversal and I am still not 100%. I have to take stool softeners to complete my mission and might have to do this the rest of my life. However, I think we all want to get back to normal ASAP but it does take patience. Now, I have had accidents but I expected to at first. I say give yourself plenty of time and if that time ever comes around to where you ask yourself that question again, then talk to a dr. I say just take it easy at first. Your body has been through a lot! Give it some time to heal itself!!! Hang in there!!
Natasa Mar 16, 2010 2:14 PM
colostomy reversal
Hi, a year ago I had a huge operation due to ovarian cancer. I ended up with a few organs less inside me and a temporary colostomy. Im due for reversal next week and Im really afraid. Not so much of the operation, but the possibility of incontinence afterwards. What are your experiences with that? I read all your posts and they are all so full of hope. Its beautiful.
Gary Miller Mar 12, 2010 12:49 PM
Sue
Sue, thanks so much for the info. Glad I am not the only one that is healing a little slower than I expected!! I hope you continue to do better and thanks for the hints on what to eat or drink. You hang in there, too!!!!!
Sue Mar 10, 2010 8:56 PM
for Gary
Gary,

It has been slow going for me too. I am just now getting off of the stool softeners and the senna leaves and the Miralax.

I have severe adhesions and it seems they are not as bad as I had feared.

I am now 6 weeks post-op and the fear is beginning to go away.

I got some psyllium husks that you can add to juice or water yesterday. I am experimenting with all of this as I don't know where I stand quite yet.

I was told it will take a year for me to heal up yesterday by the surgeon for what that might be worth.

I did not have cancer however, I ended up in this boat because of diverticulitis and peritonitis caused by a hole in my large intestine which hit me late last year.

It has been a long, slow and painful recovery and the longest and coldest winter I can remember!

Hang in there.
Gary Miller Mar 10, 2010 1:41 PM
question
About how long did it take some of you to go back to a regular poop? I still have to take stool softeners to clean me out. Now, I had cancer and had to do radiation and chemo and the radiation just did a big job on my mid section. I feel like my poop is getting hung up somewhere. Thanks for your replies.
anne larkin Mar 9, 2010 11:10 AM
Jim Flamish
Hi Jim, its Anne again from Ireland, you heard from me last December 14th and my reversal was to be on Jan 4th, your words were great comfort to me at that time. I had op on 4th and it was to be half an hour but went on for 4 hours because of adhesions from previous operation (they were causing me pain when bending down or tying on my car belt but i had no idea what it was, in fact i thought the worst. Anyhow i got pneumonia, fluid in lungs and lack of oxygen to brain and was in the High Intensity Unit for a week, since i came out i have never felt better, it is only 8 weeks now and for the last 2 weeks me and my dog Lady have done every beach in Co. Donegal (very beautiful place in Ireland) you asked me to let you know how i got on so i just wanted to say im over it now 8 weeks later and for anyone out there im 64 years young and ready to go back to work. I must say Jim i read this site a few times every week and i think you are a wonderful person allowing yourself to be contacted on your personal email and phone, i thank you for me and for all those people whom you are helping along that road of fear of the unknown Anne
jodee Mar 8, 2010 2:47 PM
colostomy reversal
lharrisboyd

Gosh, you HAVE been through so much and yet so positive. You are a testiment to the attitude one needs to have during all of this. My reversal is next tues the 13th and I am excited and nervous. Have been going back to gym and working out to get physically ready, and quite honestly feel as tho I am emotionally ready. This has been a great site to frequent to help me through the hard stuff. Jim has especially been wonderful. Good Luck to you.
Gary Miller Mar 8, 2010 2:10 PM
IHarrisboyd
Wow! I thought I had it bad with just a plain colostomy! My hat is off to you for enduring such a tough time! I hope you are better and hang in there.
lharrisboyd Mar 8, 2010 1:06 AM
colostomy reversal
Hi,
I had a colostomy done June of 2009, but I had to have it done twice in two days because they didn't take enough. They also gave me an unnecesary hysterectomy and vaginal fistula. In october of 2009, they tried to do a reversal, but it was too soon and the fistula start bleeding which they didn't know that I had a fitstula. I kept telling them something wasn't right. They tried to fix the fistula, but it didn't work. Now I hava a new doctor and he said that it has to be done when you are inside doing the reversal. I am having it done in June. I am scared, but I look forward to the day that I don't have this bag. The doctor said that it was low, but he can do it. For the person that is having a hard time, I say to them just keep getting up everyday and it gets a little easier. It is hard, but just try to overcome this obstacle. Someone may need you and at least now you have a testimony. I was angry and scared at first, but now I have just learned that things happen in life. I hope that I can help someone going to the same thing that I am going through, because I know it's hard. We just have to do it.
Gary M Mar 5, 2010 6:16 PM
Reversal for Scott
Scott,

It is much easier to clean your system out with a bag. Yes, it does fill up very quickly and a lot, but it is better than having it come out the old fashioned way!!!!!
Gary M Mar 5, 2010 6:13 PM
Judie
Judie,

I am so glad for you also!!! I kind of miss the bag because it was so convenient! I had mine for 8 months due to cancer, so this was the last thing I had to do. Would love to chat with you more! My e-mail is gm3gm@aol.com
Judie Mar 5, 2010 1:46 PM
Gary M.
Gary,

Congratulations on your reversal. I also had mine done on the 16th of February. Exactly one week after the surgery, I had bad nasua and I did vomit the whole day. The next day I still had the nasua, but no vomiting. Since this all took place over the weekend, I didn't want to call my surgeon or go to E.R. I think this is normal, either due to the strong anesthetic, and the stress your body went through during the surgery. But I can relate, and I hope you've come through those symptoms.

Wishing you the best.
Judie
JoDee Mar 5, 2010 7:53 AM
Scott
My reversal surgery is scheduled in a couple of weeks. I had my colonoscopy this week. I had to drink 1 bottle of magnesium citrate....half in the a.m. the other half in the p.m. Of course, food wasn't allowed, but I drank alot of liquids. Actually having the bag for this prep was wonderful in comparison to constantly running to the bathroom. Colonoscopy went well. They go through the stoma and the rectum to see if there are any problems that they need to know about prior to the surgery. It's kind of like a GPS for them. Good luck on your reversal surgery...I can't wait for mine.
anne Mar 5, 2010 6:39 AM
kara and sue
Hi kara, ive just read sue's comments on your worries and every word she says is so true and so supportive. Get out there and enjoy your life and do not look on the negative side of things, life is what YOU make of it, i am 63 years young and live in Co. Donegal in Ireland, I just had my reversal on 4th January with the complications of adhesions, and pneumonia but i am ready now to go back to work any day. As for clothes it just takes a little time to get to know what looks good on you and what does not and remember this is all about YOU and how you handle it. You are only very young and have a whole lifetime ahead of you, start living it NOW a stoma bag is not the end of the world. You should never worry about what other people think of your stoma bag, you have been through enough and most people accept you the way you are the rest are just not worth the bother
scott Mar 4, 2010 10:52 PM
Reversal question
My reversal is scheduled for later this month. The surgeon wants to do a colonoscopy the day before. Has anyone here dealt with colonoscopy prep with "the bag". Any tips?
Gary M Mar 3, 2010 6:07 PM
Colostomy Reversal
I had my colostomy reversed a week ago and was fine for the first few days but now feel a little sick to my stomach. Is this normal? Still tender where the incision was made but I don't like the upset stomach. Anyone else experience this?
Sue Feb 18, 2010 2:31 PM
msg. for Kara
Kara,
You need to focus on YOU, not other people. YOU are very sick right now and it is up to YOU to get better. As for your mother and her very rude and condescending remarks, I would IGNORE her and move along with YOUR life.
Be glad that you will able to have a reversal done and that you will not be like this forever.
As for clothing, try wearing dresses. That is what I have been doing and I've noted that many men see me in a dress and now do things like open doors for me, etc. being I appear to be so "dressed up" so to speak. :)
I bought a few inexpensive ones from womanwithin.com. I'll be glad when I can throw them away but it won't be anytime soon. You might check them out depending on what size you are. They do carry the size small which might fit you. As for swimming, people do swim with the bags. I never tried it myself but it is apparently doable.
Wearing pants is out of the question for me for quite some time, but I am not a usual candidate for this surgery - I was indeed high risk.
Sadly, I did not have laparoscopic surgery for my reversal. They cut open the same incision that was cut before and this same incision has been there since 2003 when I had a botched up hysterectomy which is apparently one of the reasons I am in this boat right now and also the severe pain is likely due to the fact that I have severe adhesions from all of these surgeries.
You are still young Kara and not an old woman like I am. It is amazing that I am even alive!
Keep your chin up and know that this will end. As for the bag, many types are available. Find one that is suitable for your needs and whatever you do, make you you keep things VERY CLEAN so you don't end up with an infected stoma.
I know how awful it is and I found out that is was very necessary for me to dump several people from my life that were uncaring, rude and lacked compassion . I have found some unexpected friends as well during this process. :)
Jim flamish Feb 17, 2010 8:33 PM
Anyone out there that is afraid of reversal
This goes out to anyone that is afraid of
having the reversal. Feel free to email
me at jflamish2000@yahoo.com. I had
mine done almost 4 months ago and I'm
fine and u will be also. I know it's hard
and scary right now but u will get through
it fine. I was actually anxious to have it
done and be rid of the bag.

Thank you
Jim
Kara Feb 17, 2010 1:58 PM
attn: Jim and JoDee
thank you so much, actually you guys both almost made me cry, i'm just having a real hard time in my life right now and it's so difficult to be able to talk to anyone about it because they have never had to have one. like today i went into my job that i had before this happened and when we walked out my mom told me no one will want to have you working again if they see your bag, it's like i'm not used to having it and having to hide it and keep an eye on it making sure it's not hanging out and stuff. it made me cry. and still am very upset about it.

if either of u would like to help me and talk me through and just to have someone there to talk to through the next 6 months before i have my reversal that would be great. if you knoe either of u would like to..my email is..
kwhipx3@yahoo.com

thanks you guys.
scott Feb 17, 2010 11:44 AM
Reversal
Wow! I had no idea there were this many people in the same boat. My original emergency surgery was 12/31 (worst New Years ever) and my reversal is scheduled for the end of March. I am really looking forward to it but at the same time I am a little concerned by the wide range of results posted here.
Sue Feb 16, 2010 9:53 PM
colostomy reveral
Hello,

I had a reversal done about 3 weeks ago. I am still in a great deal of pain but my bowels are working again. This happened to me on 11/8/2009 due to diverticulitis (no idea what was wrong!). I had a hole in my large intestine and 1-1/2 feet of it were removed along with an abcess on my appendix. Peritonitis had set in when I arrived at the ER. The reversal has been very painful. The surgeon gave me no pain medications and told me to eat only whole grains and drink Metamucil! This has been the most horrific time in my life! I am glad that horrid colostomy bag is gone regardless of what happens in the future. Would love to hear from others going through this and what you do for the pain and what your diet is like now. Thank you!
Jim flamish Feb 16, 2010 8:44 PM
Attn: kara
Kara I had mine done almost 4 months and
I'm fine, u will be also. If u need to talk my
email is jflamish2000@yahoo.com. I'll say
my prayers for u.
Jim
JoDee Feb 16, 2010 8:37 PM
colostomy reversal
Kara, I haven't had my reversal yet, it will be sometime in March. But I can tell you that after what you have been through, wearing the stupid bag really isn't so bad. I know you cant wear the clothes you want,but vanity will never take the place of a healthy life for the rest of your life. Be patient with the bag and all of the interruptions it creates in the near future, cuz you are working toward a healthy 'rest of your life" JoDee
Kara Feb 16, 2010 7:30 PM
colonostomy
so i was shot january 16th in my side and had to have my spleen and kidney removed, my lung collapsed, my diaphragm was bruised and my back ribs were broken, i also have the pellets from the shot gun in my spine they were just to dangerous to take out, so i also had part of my colon removed in which case i had to had to have a colostomy bag. I am 19 yrs old and lucky to even be alive, but i can't even get over the fact the in the summer i have to have this thing on still. i'm not gonna be able to wear tight tank tops go swimming or anything like that. i want the thing off already but i am sooo scared to have the reversal surgery. it makes me super nervous, and i don't know what to do. PLEASE SOMEONE HELPP
JoDee Feb 11, 2010 1:53 PM
colostomy reversal
Mocha, sounds like we are in the same boat and around the same time frame. It is scary stuff and I am also looking forward to the reversal...just scared about the surgery. I guess waiting and guessing has made me nervous. Good luck to you.
Judie Feb 10, 2010 11:25 AM
Reversal scheduled for next Tuesday!!
Hi to everyone who has posted a comment.

I can relate to most everything in your blogs. I, too, still have a colostomy bag. My colon was perforated due to a colonoscopy. When you wake up in ICU and realize you're bowel movements are going to be at the mercy of a bag hanging off your side, it's terrifying, to say the least. My heart and prayers go out to the "newcomers" of this new way of life. It's not easy, but you will adjust, you will find the strength to get up every day and be productive, and as the date of your reversal surgery nears, you will be ready for the next chapter in your life. This ordeal did change me for the better. I, feel, I have gone through the worst thing that someone could go through, and if I can survive this, I can take on anything. And so can you!! Be strong and stay positive.

With much love and prayer.

Judie
Mocha Feb 8, 2010 12:28 PM
Reversal
on 1/4 my colon/bowel ruptured due to diverticulitis. I had never heard of this before. I had emergency surgery on 1/4, now I have a colostomy bag. Still waiting for the wounds from surgery to heal. This has been the scariest ordeal in my life. Reading allm of your comments has been encouraging. I am going to talk to the doctor tomorrow about a time frame for reversal.
denise barker Feb 7, 2010 8:56 AM
colostomy reversal
I had a colostomy operation in July 09 as I had stage 3/4 anal cancer. After 6 weeks of chemo/radiotherapy I am told it has gone. I am waiting for a reversal as my stoma is not working properly due to hernias and awful leakages and accidents !!

It has been quite a harrowing few months and I am looking forward to getting 'put back together' - just hope it works.

It certainly is 'scary stuff' !
JoDee Feb 6, 2010 8:23 PM
cvolostomy reverswal
Thanks to all for the information. I look forward to getting rid of the colostomy bag, but continue to be nervous for the surgery. Supposed to have a colonoscopy and if things are as they should be, the reversal surgery. I had no idea I had diverticulitis until my colon burst. So scary how these things can happen and so quickly.
Suzanne Flores Feb 6, 2010 4:51 PM
Colostomy Bag
I am waiting for the DR. to call me with CT SCAN results for my colostomy reversal. I am ready to go forward after a long suffering journey of having colon cancer and now I am cancer free. Thanks To God. I had emegency sugery on Nov 25,2009 with real bad rectal infection. This is the time I got my Colostomy bag,I have been doing real good and working after being out for 6 months. I look forward to what is ahead that all will be good.
debby Jan 31, 2010 7:39 PM
stoma reversal
My orginal surgery was August 25, 2009 had diseased colon removed and reconnected but, it failed and 7 ndays later I had emergency surgery and a colostomy. I ended up with two life threathening infections and spent a total of 23 days in the hospital and 7 weeks off from work. On December 15, 2009 I had my colostomy reversed and the same day was walking and eating, I felt great. however, a couple of weeks later I began having pain where the stoma used to be, I still have mild pain there but not bacl. All in all I am doing fine. and should be back to work next week.l
kurt kimball Jan 31, 2010 12:18 PM
hartman reversal
i had it done in oct. doing fine now...after i got home,severe pain,,they found my gall bladder was junk,,so out it came..good to go now..cheer up everybody it will be fine...
JoDee Herrera Jan 26, 2010 11:08 AM
Preparing for reversal
Had emergency surgery 12/8, which resulted in colostomy. Am scheduled to have reversal in March. I've already lost so much weight, and had so much pain from first surgery, that i am scared about the reversal. What can I expect? and, afterward, how soon can you eat a normal healthy diet?
Tina Dec 20, 2009 9:44 AM
my revearsal
hello everyone,well i had my reversal done on dec,7th.just got home on friday. had i little set back in hospital.which the nurses were not much help.my dr. had to repair 2 good size hernias put me back together.and clean up scare tissue.but i have been having bowel movements,&passing gas. really weird after 10 months, but all inside is perfect,no leaks. i did get sent home with a drain tube i had alot of fluid on my stomach .alot has came out so far.im just so glad this is over and i can go on with my life, just need to build up my strength and endurace,i go back to work in febuary. 1 year from this all started.i also beleive alot has to do with your doctor which mine is wonderful, and prayers,that is what has got me through this far .keep the faith!!! god bless. be strong dont let it bring you down.im home and doing fine,just being home makes a big difference,
my email is tmontgomery8@zoomtown.com.i live in cincinnati.well in a town outside of cinci.
Kathy Marlowe Dec 18, 2009 6:07 PM
to the other Kathy
It totally blows my mind that this happens so often. I had exactly the same thing happen to me with the ovaries and all. I almost died and was in hospital 6 weeks. Colostomy is a pain and I can't wait to get it reversed, but I'm scared to death. Thanks for words of encouragement, it means alot!
Elma Dec 15, 2009 4:07 PM
colostomy reversal with hernia repair
Hi, I had my reversal surgery on 12/10 and came home from the hospital last night. Am having alot of pain and discomfort... would love to talk with someone else who has been through this successfully.... please email me if we could chat...
iamtotallyelma@yahoo.com
Jim flamish Dec 14, 2009 10:40 PM
Attn anne
Anne I'm glad my words where of comfort
to u and that u are having ur surgery.
Email me back after it is done and
don't worry everything will be ok.

Jim
anne larkin Dec 14, 2009 3:03 PM
jim flamish
hi jim, glad to hear ur words of comfort, i did not even think about reversal for 2 years but now i have got the letter to go on january 2nd from my surgeon, im afraid of kidney failure as i learned a lot from my first op which was like yours diverticulitis, hope i get on as well as you did. ur words are comfort to me anne
Kathy Dec 10, 2009 9:33 PM
Same thing colostomy reversal
Tina..wow! the exact same thing happened to me! I had an ovary removed...got an infection went septic, got pneumonia, had a staph infection..then 10 days after the ovary came out they needed to remove a foot of my colon and give me the colostomy. Yes, I am lucky to be here also! I am still waiting for the date of my reversal...I can't wait..I really hate the colostomy bag! I spent a month in the hospital most of that time in the ICU.
I didn't have a stroke or my lung collapse but they really didn't think I would make it. Scary stuff! I hope you are doing better.
James flamish Dec 7, 2009 11:57 AM
Waiting time
Blake I had to wait extactly 3 months to have
my reversal. Now a month later and I'm doing
great. You'll be fine don't worry.

Jim
Blake Hernandez Dec 6, 2009 9:11 PM
Colostomy reversal
Hey James, how long did you have to wait from the time you first got the colostomy bag until time you were to have it reversed.
James Flamish Dec 4, 2009 10:56 PM
Tina don't worry
Tina don't worry everything will be fine!
I was scared at first like I said but I'm
doing great now. Call me if u need to
talk about it.
Jim
Tina Dec 4, 2009 12:46 PM
colostomy
WELL I GO MONDAY I HAVE HAD MINE FOR 10 MONTHS ALSO HAVE A HERNIA. I AM SCARED ON HOW IM GOING TO FEEL AND HAVING MY FIRST BM.
James flamish Dec 3, 2009 12:31 PM
Reversal sucsess
I had mine done now a little over 1 month and
everything is fine. I am back driving again
and I go back to work in a liitle over 2 weeks
and I feel great. I'll be honist the most thing
I was scared about at first afterwords was having
a bowel movement but everything went fine
with that also. Don't worry u will be fine too.

Jim
Blake Hernandez Dec 3, 2009 7:55 AM
Colostomy Reversal
I had surgery in october to remove a ft. of colon, due to diverticulitis. When it was reattached it leaked and i became very sick. I had emergency surgery and now have a colostomy bag. My doctor told me that i could have the reversal in april. I am 27 yrs old, a police officer and healthy but im worried that when i go in to have the reversal, that it may do the same thing. I need my life back because i cannot even do my job. I don't want to have to quit being a cop because i have been a cop since i was 19. I also have twins due in possibly may or before so i have to be well when they come. Can anybody give me some hope or statistics on the outcome of people in the past who have had the reversal. My family, friends and doctor say it will work but i just worry if it doesnt.
kurt kimball Dec 2, 2009 8:19 AM
reversal
hi tina,,i had mine done 6 weeks ago,,seems to be ok,,i was real worried about all this but its fine now,,and so will yours..i also had my gall bladder out 2 weeks ago...
carol labonte Nov 29, 2009 1:01 PM
colostomy reversel
i had a reversel about two weeks ago and experiencing burning feeling when i move my bowels is this normal after surgery
James flamish Nov 7, 2009 1:19 AM
I forgot to tell u tina
I forgot to tell u, u can also email me jflamish2000@yahoo.com if u would like to. It goes directly to my phone so I can answer u back quickly. Anyhow I hope you feel better and that you are out soon.
Jim
p.s my thoughts and prayers are with u
James flamish Nov 7, 2009 1:08 AM
Tina please call me
Sorry to hear u are in the hospital. As I said ur welcome to call me anytime. I would like to talk to u as well. Everything will be ok. My number again is 610-703-9621. Please call, I am waiting to hear from u and don't worry, everything will be ok. Talk soon.

Jim
tina Nov 6, 2009 10:40 PM
revearsal
no problem,i didnt ecpect to here from you for a little while.right now as i right to you im in the hospital.for cellulitus.i had this back in aug, boy its painful.on my stomach red as fire.& i live in cincinnati.glad to here all went well.
judie Nov 5, 2009 1:15 PM
colostomy reversal
I have a colostomy. It all started back in August 2009 when I was diagnosed with diverticulitis and after a colonoscopy, they discovered that two feet of my intestine was very diseased from it. I had the bowel resection and had many complications, so they did a second colonoscopy which showed I had an obstruction and major infection. That's when I got the colostomy, which was in September. I'm still in pain and have lost so much weight. I have also lost my gallbladder. This has been such a tremendous ordeal. Is all this normal and when can I have this reversed?

Thank you

Ps Tina, I hope your surgery went well. If you are able, could you drop me a line?
James Flamish Nov 4, 2009 5:09 PM
Sorry it took so long
Sorry it took so long to get back to u. I was also supposed to be in 7-10 days and I was out in 5, because of how good I did. Your young to like me so don't worry. Where u from by the way? I'm from Bethlehem pa. Call me anytime u want 610-703-9621. Hope to talk soon.
James
James Flamish Nov 4, 2009 4:59 PM
My reversal a sucsess
Hi my reverssal was a total sucsess and yours will be also. My ostomy was the cause of diverticulitis. My phone # is 610-703-9621. Feel free anytime to call me to talk about it. Don't worry u will be fine too.

James
TINA Oct 28, 2009 7:39 PM
REVERSAL
well this is the big day, how exciting,wish my could be done sooner.im going to be 40 on dec. 18 .
what caused you to have your costomy? i am sooo ready to get rid of mine.sure let me have your phone # its nice to talk to someone that has the same issuse.hope the best for you. get well soon.
James Flamish Oct 27, 2009 4:54 PM
My ostomy
I've had mine now 3 months. I'm 43 years old, how old are u? Yes I am scared but I'm more anxious than anything just to get rid of this bag. U can have my phone # to call to talk about it if u want. You will be ok and so will I.

James
TINA Oct 27, 2009 3:20 PM
REVERSAL
thanks for comment, I hope all goes well for you. how long have you had yours. and when you feel up to it could you keep me posted on how your feeling afterwards. I have great confidents in my doctor . i guess its only normal for me to be scared , are you ?
James Flamish Oct 27, 2009 2:21 AM
Reversal
I am having mine done this wensday and my doctor has done it over 400 times with only 1 failure. I have at least 5 friends that had it and they are fine. U will be fine also.
tina Oct 17, 2009 1:32 PM
colostomy reversal
I AM GOING IN FOR MY REVEARSAL ON DEC.7TH MINE IS DUE TO A PERFORATED BOWL FROM HAVING LAPOSCOPIC SURGERY TO HAVE MY OVARIES REMOVED.BACK IN FEBUARY,WHICH I ALMOST DIED FROM. I WAS IN ICU FOR 2 MONTHS,I WAS 100%SEPTIC.WHILE IN THERE I HAD A STROKE, MY LUNG COLLAPSED, THE GOT ANOMIA,I AM VERY BLESSED TO BE HERE, I ALSO RECENTLY HAD MY GALL BLADDER REMOVED, THEY HAD TO CUT ME FOR THAT.I HAVE BEEN READING ABOUT AFTER A REVEARSALS FROM OTHER PEOPLE, IM ALL READY SCARED . AND AFTER READING STORIES IT DONT SOUND VERY GOOD AFTERWARDS.IM WANTING TO GET BACK TO MY NORMAL LIFE AGAIN.IS THERE ANYONE OUT THERE WITH GOOD EXPERIENCE PLEASE GET BACK WITH ME.THNAKS
 
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